Caregiver Resources

home  » caregiving resources

Resources for Caregiving:

56 Books, 307 Recent Articles, & 62 Websites

Kenneth S. Pope, Ph.D., ABPP

The resources I've gathered together on this page are intended to help both caregivers and the clinicians who work with them to find information, support, and other resources.

I created this site to be fully accessible for people with disabilities; please follow this link to change text size, color, or contrast; please follow this link for other accessibility functions for those with visual, mobility, and other disabilities.

I've organized the caregiving resources into 3 categories:

a) books,

b) articles and chapters, &

c) web sites.

Currently there are 56 books, 307 recent articles (published 2010-2014), and 62 web sites. However, I will update the site several times a year.

PLEASE NOTE: This web site includes 10 other pages of related sets of resources:

56 Books:

307 Articles & Chapters:

Abdollahpour, I., Noroozian, M., Nedjat, S., & Majdzadeh, R. (2012). Caregiver Burden and its Determinants among the Family Members of Patients with Dementia in Iran. Int J Prev Med, 3(8), 544-551.

Adams, Greg, Green, Angela, Towe, Shannon, & Huett, Amy. (2013). Bereaved caregivers as educators in pediatric palliative care: Their experiences and impact. Journal of Palliative Medicine, 16(6), 609-615. doi: 10.1089/jpm.2012.0475

Agera-Ortiz, L., Frank-Garca, A., Gil, P., & Moreno, A. (2010). Clinical progression of moderate-to-severe Alzheimer s disease and caregiver burden: a 12-month multicenter prospective observational study. International Psychogeriatrics, 22(8), 1265-1279.

Aggarwal, Brooke, Liao, Ming, & Mosca, Lori. (2013). Medication adherence is associated with having a caregiver among cardiac patients. Annals of Behavioral Medicine, 46(2), 237-242. doi: 10.1007/s12160-013-9492-8

Agren, S., Evangelista, L., & Strmberg, A. (2010). Do partners of patients with chronic heart failure experience caregiver burden? European Journal of Cardiovascular Nursing, 9(4), 254-262.

Ahn, S., Hochhalter, A. K., Moudouni, D. K., Smith, M. L., & Ory, M. G. (2012). Self-reported physical and mental health of older adults: The roles of caregiving and resources.Maturitas, 71(1), 62-69. doi: 10.1016/j.maturitas.2011.10.011

Akiyama, A., Numata, K., & Mikami, H. (2010). Importance of end-of-life support to minimize caregiver's regret during bereavement of the elderly for better subsequent adaptation to bereavement. Archives of Gerontology and Geriatrics, 50(2), 175-178. doi: 10.1016/j.archger.2009.03.006

Allen, S. M., Lima, J. C., Goldscheider, F. K., & Roy, J. (2012). Primary caregiver characteristics and transitions in community-based care. J Gerontol B Psychol Sci Soc Sci, 67(3), 362-371. doi: 10.1093/geronb/gbs032

Alsafran, S. K., Davis, J., Tankel, S., Varas, R., Quintana, O., Manning, R., et al. (2012). The Impact of Caregiver Support on Mortality Following Burn Injury in the Elderly. J Burn Care Res. doi: 10.1097/BCR.0b013e31825d5552

Alwin, J., nberg, B., & Krevers, B. (2010). Support/services among family caregivers of persons with dementia'AeiPerceived importance and services received. International Journal of Geriatric Psychiatry, 25(3), 240-248. doi: 10.1002/gps.2328

Ampalam, P., Gunturu, S., & Padma, V. (2012). A comparative study of caregiver burden in psychiatric illness and chronic medical illness. Indian J Psychiatry, 54(3), 239-243. doi: 10.4103/0019-5545.102423

Anderson, J. R., & Turner, W. L. (2010). When caregivers are in need of care: African-American caregivers' preferences for their own later life care. Journal of Aging Studies, 24(1), 65-73. doi: 10.1016/j.jaging.2008.06.002

Aoun, S. M., Bentley, B., Funk, L., Toye, C., Grande, G., & Stajduhar, K. J. (2012). A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions. Palliat Med. doi: 10.1177/0269216312455729

Applebaum, A. J., & Breitbart, W. (2012). Care for the cancer caregiver: A systematic review. Palliat Support Care, 1-22. doi: 10.1017/S1478951512000594

Athay, M. M. (2012). Caregiver life satisfaction: relationship to youth symptom severity through treatment. J Clin Child Adolesc Psychol, 41(4), 433-444. doi: 10.1080/15374416.2012.684273

Au, A., Li, S., Lee, K., Leung, P., Pan, P.-C., Thompson, L., et al. (2010). The Coping With Caregiving group program for Chinese caregivers of patients with Alzheimer's disease in Hong Kong. Patient Education and Counseling, 78(2), 256-260. doi: 10.1016/j.pec.2009.06.005

Bakker, T. J., Duivenvoorden, H. J., van der Lee, J., Olde Rikkert, M. G., Beekman, A. T., & Ribbe, M. W. (2013). Benefit of an integrative psychotherapeutic nursing home program to reduce multiple psychiatric symptoms of psychogeriatric patients and caregiver burden after six months of follow-up: a re-analysis of a randomized controlled trial. Int Psychogeriatr, 25(1), 34-46. doi: 10.1017/S1041610212001305

Bass, D. M., Judge, K. S., Snow, A. L., Wilson, N. L., Looman, W. J., McCarthy, C., & Kunik, M. E. (2012). Negative Caregiving Effects Among Caregivers of Veterans With Dementia.Am J Geriatr Psychiatry. doi: 10.1097/JGP.0b013e31824108ca

Bass, David M., Judge, Katherine S., Snow, A. Lynn, Wilson, Nancy L., Morgan, Robert, Looman, Wendy J., . . . Kunik, Mark E. (2013). Caregiver outcomes of partners in dementia care: Effect of a care coordination program for veterans with dementia and their family members and friends. Journal of the American Geriatrics Society, 61(8), 1377-1386. doi: 10.1111/jgs.12362

Bauer, R., Spiessl, H., & Schmidt, T. (2012). Are there associations between caregiver information and suicidal behavior in psychiatric inpatients? Int J Psychiatry Clin Pract, 16(3), 238-242. doi: 10.3109/13651501.2012.687453

Beentjes, T. A., Goossens, P. J., & Poslawsky, I. E. (2012). Caregiver burden in bipolar hypomania and mania: a systematic review. Perspect Psychiatr Care, 48(4), 187-197. doi: 10.1111/j.1744-6163.2012.00328.x

Beinart, N., Weinman, J., Wade, D., & Brady, R. (2012). Caregiver burden and psychoeducational interventions in Alzheimer's disease: a review. Dement Geriatr Cogn Dis Extra, 2(1), 638-648. doi: 10.1159/000345777

Bekhet, A. K. (2012). Effects of positive cognitions and resourcefulness on caregiver burden among caregivers of persons with dementia. Int J Ment Health Nurs. doi: 10.1111/j.1447-0349.2012.00877.x

Bekhet, Abir K. (2013). Effects of positive cognitions and resourcefulness on caregiver burden among caregivers of persons with dementia. International Journal of Mental Health Nursing, 22(4), 340-346. doi: 10.1111/j.1447-0349.2012.00877.x

Bernabei, R., Rossini, P. M., Di Cioccio, L., Gragnaniello, D., Luda di Cortemiglia, E., Attar, M., et al. (2012). Compliance and Caregiver Satisfaction in Alzheimer's Disease: Results from the AXEPT Study. Dement Geriatr Cogn Dis Extra, 2(1), 418-432. doi: 10.1159/000338228

Bertrand, R. M., Saczynski, J. S., Mezzacappa, C., Hulse, M., Ensrud, K., & Fredman, L. (2012). Caregiving and cognitive function in older women: evidence for the healthy caregiver hypothesis. J Aging Health, 24(1), 48-66. doi: 10.1177/0898264311421367

Bertrand, R. M., Saczynski, J. S., Mezzacappa, C., Hulse, M., Ensrud, K., & Fredman, L. (2012). Caregiving and cognitive function in older women: evidence for the healthy caregiver hypothesis. J Aging Health, 24(1), 48-66. doi: 10.1177/0898264311421367

Bevans, M., & Sternberg, E. M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA, 307(4), 398-403. doi: 10.1001/jama.2012.29

Bialon, L. N., & Coke, S. (2012). A study on caregiver burden: stressors, challenges, and possible solutions. Am J Hosp Palliat Care, 29(3), 210-218. doi: 10.1177/1049909111416494

Black, S. E., Gauthier, S., Dalziel, W., Keren, R., Correia, J., Hew, H., et al. (2010). Canadian Alzheimer's Disease Caregiver Survey: Baby-boomer caregivers and burden of care.International Journal of Geriatric Psychiatry, 25(8), 807-813. doi: 10.1002/gps.2421

Bobinac, A., van Exel, N. J., Rutten, F. F., & Brouwer, W. B. (2010). Caring for and caring about: disentangling the caregiver effect and the family effect. Journal of Health Economics, 29(4), 549-556.

Boerner, K., & Mock, S. E. (2012). Impact of patient suffering on caregiver well-being: the case of amyotrophic lateral sclerosis patients and their caregivers. Psychol Health Med, 17(4), 457-466. doi: 10.1080/13548506.2011.613942

Bolden, L., & Wicks, M. N. (2010). Predictors of mental health, subjective burden, and rewards in family caregivers of patients with chronic liver disease. Archives of Psychiatric Nursing, 24(2), 89-103. doi: 10.1016/j.apnu.2009.04.010

Bouldin, E. D., & Andresen, E. (2010). Caregiving and health Aging in America, Vol 2: Physical and mental health. (pp. 81-99): Santa Barbara, CA, US: Praeger/ABC-CLIO.

Braun, M., Mura, K., Peter-Wight, M., Hornung, R., & Scholz, U. (2010). Toward a better understanding of psychological well-being in dementia caregivers: The link between marital communication and depression. Family Process, 49(2), 185-203. doi: 10.1111/j.1545-5300.2010.01317.x

Brazil, K., Bainbridge, D., & Rodriguez, C. (2010). The stress process in palliative cancer care: A qualitative study on informal caregiving and its implication for the delivery of care.American Journal of Hospice & Palliative Medicine, 27(2), 111-116. doi: 10.1177/1049909109350176

Breitborde, N. J. K., Lpez, S. R., & Kopelowicz, A. (2010). Expressed emotion and health outcomes among Mexican-Americans with schizophrenia and their caregiving relatives.Journal of Nervous and Mental Disease, 198(2), 105-109. doi: 10.1097/NMD.0b013e3181cc532d

Buchanan, R. J., & Huang, C. (2012). Caregiver perceptions of accomplishment from assisting people with multiple sclerosis. Disabil Rehabil, 34(1), 53-61. doi: 10.3109/09638288.2011.587091

Burns, Catherine M., Abernethy, Amy P., Dal Grande, Eleanora, & Currow, David C. (2013). Uncovering an invisible network of direct caregivers at the end of life: A population study. Palliative Medicine, 27(7), 608-615. doi: 10.1177/0269216313483664

Buscemi, V. r., Font, A., & Viladricht, C. (2010). Focus on relationship between the caregivers unmet needs and other caregiving outcomes in cancer palliative care. Psicooncologia, 7(1), 109-125.

Byrne, M. B., Hurley, D. A., Daly, L., & Cunningham, C. G. (2010). Health status of caregivers of children with cerebral palsy. Child Care, Health & Development, 36(5), 696-702.

Camargos, E. F., Souza, A. B., Nascimento, A. S., Morais, E. S. A. C., Quintas, J. L., Louzada, L. L., et al. (2012). Use of psychotropic medications by caregivers of elderly patients with dementia: is this a sign of caregiver burden? Arq Neuropsiquiatr, 70(3), 169-174.

Canonici, A. P., Andrade, L. P., Gobbi, S., Santos-Galduroz, R. F., Gobbi, L. T., & Stella, F. (2012). Functional dependence and caregiver burden in Alzheimer's disease: a controlled trial on the benefits of motor intervention. Psychogeriatrics, 12(3), 186-192. doi: 10.1111/j.1479-8301.2012.00407.x

Carbonneau, H. l. n., Caron, C., & Desrosiers, J. (2010). Development of a conceptual framework of positive aspects of caregiving in dementia. Dementia: The International Journal of Social Research and Practice, 9(3), 327-353. doi: 10.1177/1471301210375316

Carcone, A. I., Ellis, D. A., & Naar-King, S. (2012). Linking caregiver strain to diabetes illness management and health outcomes in a sample of adolescents in chronically poor metabolic control. J Dev Behav Pediatr, 33(4), 343-351. doi: 10.1097/DBP.0b013e31824eaac8

Carek, V., Norman, P., & Barton, J. (2010). Cognitive appraisals and posttraumatic stress disorder symptoms in informal caregivers of stroke survivors. Rehabilitation Psychology, 55(1), 91-96. doi: 10.1037/a0018417

Carlson, K. F., Meis, L. A., Jensen, A. C., Simon, A. B., Gravely, A. A., Taylor, B. C., et al. (2012). Caregiver reports of subsequent injuries among veterans with traumatic brain injury after discharge from inpatient polytrauma rehabilitation programs. J Head Trauma Rehabil, 27(1), 14-25. doi: 10.1097/HTR.0b013e318236bd86

Carr, G. F., Hayslip, B., Jr., & Gray, J. (2012). The role of caregiver burden in understanding African American custodial grandmothers. Geriatr Nurs, 33(5), 366-374. doi: 10.1016/j.gerinurse.2012.03.004

Carter, J. H., Lyons, K. S., Stewart, B. J., Archbold, P. G., & Scobee, R. (2010). Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson s disease. Movement Disorders, 25(6), 716-722.

Casale, M., & Wild, L. (2012). Effects and Processes Linking Social Support to Caregiver Health Among HIV/AIDS-Affected Carer-Child Dyads: A Critical Review of the Empirical Evidence. AIDS Behav. doi: 10.1007/s10461-012-0275-1

Cassidy, T. (2012). Benefit finding through caring: The cancer caregiver experience. Psychol Health. doi: 10.1080/08870446.2012.717623

Cavalari, R. N., & Romanczyk, R. G. (2012). Caregiver perspectives on unintentional injury risk in children with an autism spectrum disorder. J Pediatr Nurs, 27(6), 632-641. doi: 10.1016/j.pedn.2011.07.013

Chan, B. (2010). Negative caregiving experience: A predictor of high expressed emotion among caregivers of relatives with schizophrenia. Social Work in Mental Health, 8(4), 375-397. doi: 10.1080/15332980903539971

Chiambretto, P., Moroni, L., Guarnerio, C., Bertolotti, G., & Prigerson, H. G. (2010). Prolonged grief and depression in caregivers of patients in vegetative state. Brain Injury, 24(4), 581-588. doi: 10.3109/02699051003610490

Chiang, L. C., Chen, W. C., Dai, Y. T., & Ho, Y. L. (2012). The effectiveness of telehealth care on caregiver burden, mastery of stress, and family function among family caregivers of heart failure patients: a quasi-experimental study. Int J Nurs Stud, 49(10), 1230-1242. doi: 10.1016/j.ijnurstu.2012.04.013

Chien, W.-T. (2010). An overview of mutual support groups for family caregivers of people with mental health problems: Evidence on process and outcomes. In L. D. Brown & S. Wituk (Eds.), Mental health self-help: Consumer and family initiatives. (pp. 107-152). New York, NY, US: Springer Science + Business Media.

Chih, M. Y., Dubenske, L. L., Hawkins, R. P., Brown, R. L., Dinauer, S. K., Cleary, J. F., et al. (2012). Communicating advanced cancer patients' symptoms via the Internet: A pooled analysis of two randomized trials examining caregiver preparedness, physical burden, and negative mood. Palliat Med. doi: 10.1177/0269216312457213

Chio, A., Vignola, A., Mastro, E., Dei Giudici, A., Iazzolino, B., Calvo, A., et al. (2010). Neurobehavioral symptoms in ALS are negatively related to caregivers' burden and quality of life. European Journal of Neurology, 17(10), 1298-1303. doi: 10.1111/j.1468-1331.2010.03016.x

Choi, C. W., Stone, R. A., Kim, K. H., Ren, D., Schulz, R., Given, C. W., et al. (2012). Group-based trajectory modeling of caregiver psychological distress over time. Ann Behav Med, 44(1), 73-84. doi: 10.1007/s12160-012-9371-8

Chow, J. C.-C., Auh, E. Y., Scharlach, A. E., Lehning, A. J., & Goldstein, C. (2010). Types and sources of support received by family caregivers of older adults from diverse racial and ethnic groups. Journal of Ethnic & Cultural Diversity in Social Work: Innovation in Theory, Research & Practice, 19(3), 175-194. doi: 10.1080/15313204.2010.499318

Chwalisz, K., & Dollinger, S. C. (2010). Evidence-based practice with family caregivers: Decision-making strategies based on research and clinical data. In R. G. Frank, M. Rosenthall & B. Caplan (Eds.), Handbook of rehabilitation psychology, 2nd ed. (pp. 301-311): Washington, DC, US: American Psychological Association.

Cohen-Mansfield, J., & Golander, H. (2012). Analysis of caregiver perceptions of "hallucinations" in people with dementia in institutional settings. Am J Alzheimers Dis Other Demen, 27(4), 243-249. doi: 10.1177/1533317512446475

Coleman, C. I., Coleman, S. M., Vanderpoel, J., Nelson, W., Colby, J. A., Scholle, J. M., et al. (2012). Factors associated with 'caregiver burden' for atrial fibrillation patients. Int J Clin Pract, 66(10), 984-990. doi: 10.1111/j.1742-1241.2012.02996.x

Collinge, W., Kahn, J., Walton, T., Kozak, L., Bauer-Wu, S., Fletcher, K., et al. (2012). Touch, Caring, and Cancer: randomized controlled trial of a multimedia caregiver education program. Support Care Cancer. doi: 10.1007/s00520-012-1682-6

Conway, P., Boeckel, J., Shuster, L., & Wages, J. (2010). Grandparent caregivers' use of resources and services, level of burden, and factors that mediate their relationships. Journal of Intergenerational Relationships, 8(2), 128-144. doi: 10.1080/15350771003741931

Conzemius, M. G., & Evans, R. B. (2012). Caregiver placebo effect for dogs with lameness from osteoarthritis. J Am Vet Med Assoc, 241(10), 1314-1319. doi: 10.2460/javma.241.10.1314

Coon, D. W. (2005). Exploring interventions for LGBT caregivers: Issues and examples. Journal of Gay & Lesbian Social Services: Issues in Practice, Policy & Research, 18(3-4), 109-128. doi: 10.1300/J041v18n03_07

Courtenay, K., Jokinen, N. S., & Strydom, A. (2010). Caregiving and adults with intellectual disabilities affected by dementia. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 26-33. doi: 10.1111/j.1741-1130.2010.00244.x

Cousino, Melissa K., & Hazen, Rebecca A. (2013). Parenting stress among caregivers of children with chronic illness: A systematic review. Journal of Pediatric Psychology, 38(8), 809-828.

Creedle, C., Leak, A., Deal, A. M., Walton, A. M., Talbert, G., Riff, B., et al. (2012). The impact of education on caregiver burden on two inpatient oncology units. J Cancer Educ, 27(2), 250-256. doi: 10.1007/s13187-011-0302-3

Creedle, C., Leak, A., Deal, A. M., Walton, A. M., Talbert, G., Riff, B., & Hornback, A. (2012). The Impact of Education on Caregiver Burden on Two Inpatient Oncology Units. J Cancer Educ. doi: 10.1007/s13187-011-0302-3

Cruzado, J. A., & de la Morena, M. J. Elvira. (2013). Coping and distress in caregivers of patients with disorders of consciousness. Brain Injury, 27(7-8), 793-798. doi: 10.3109/02699052.2013.793402

Cucciare, M. A., Gray, H., Azar, A., Jimenez, D., & Gallagher-Thompson, D. (2010). Exploring the relationship between physical health, depressive symptoms, and depression diagnoses in Hispanic dementia caregivers. Aging & Mental Health, 14(3), 274-282. doi: 10.1080/13607860903483128

Davies, H. D., Sridhar, S. B., Newkirk, L. A., Beaudreau, S. A., & O'Hara, R. (2012). Gender differences in sexual behaviors of AD patients and their relationship to spousal caregiver well-being. Aging Ment Health, 16(1), 89-101. doi: 10.1080/13607863.2011.609532

de la Cuesta-Benjumea, C. (2010). The legitimacy of rest: Conditions for the relief of burden in advanced dementia care-giving. Journal of Advanced Nursing, 66(5), 988-998. doi: 10.1111/j.1365-2648.2010.05261.x

Delgado-Guay, Marvin Omar, Parsons, Henrique A., Hui, David, De la Cruz, Maxine G., Thorney, Steven, & Bruera, Eduardo. (2013). Spirituality, religiosity, and spiritual pain among caregivers of patients with advanced cancer. American Journal of Hospice & Palliative Medicine, 30(5), 455-461. doi: 10.1177/1049909112458030

Demirtepe-Saygili, D., & Bozo, O. (2010). Predicting depressive symptoms among the mothers of children with leukaemia: A caregiver stress model perspective. Psycholical Health, 1-15.

DeMond, D. (2010). Caring for the family caregiver: A spiritual journey. Journal of Religion, Spirituality & Aging, 22(1-2), 120-135. doi: 10.1080/15528030903313920

Denby, R. W. (2010). Kinship liaisons: A peer-to-peer approach to supporting kinship caregivers. Children and Youth Services Review, No Pagination Specified. doi: 10.1016/j.childyouth.2010.09.004

Denby, R. W. (2012). Parental incarceration and kinship care: caregiver experiences, child well-being, and permanency intentions. Soc Work Public Health, 27(1-2), 104-128. doi: 10.1080/19371918.2012.639639

Devito Dabbs, A., Terhorst, L., Song, M. K., Shellmer, D. A., Aubrecht, J., Connolly, M., et al. (2012). Quality of recipient-caregiver relationship and psychological distress are correlates of self-care agency after lung transplantation. Clin Transplant. doi: 10.1111/ctr.12017

Doan, Q. V., Brashear, A., Gillard, P. J., Varon, S. F., Vandenburgh, A. M., Turkel, C. C., et al. (2012). Relationship between disability and health-related quality of life and caregiver burden in patients with upper limb poststroke spasticity. PM R, 4(1), 4-10. doi: 10.1016/j.pmrj.2011.10.001

Doan, Q. V., Brashear, A., Gillard, P. J., Varon, S. F., Vandenburgh, A. M., Turkel, C. C., & Elovic, E. P. (2012). Relationship between disability and health-related quality of life and caregiver burden in patients with upper limb poststroke spasticity. PM R, 4(1), 4-10. doi: 10.1016/j.pmrj.2011.10.001

Donorfio, L. K. M., Vetter, R., & Vracevic, M. (2010). Effects of three caregiver interventions: Support, educational literature, and creative movement. Journal of Women & Aging, 22(1), 61-75. doi: 10.1080/08952840903489094

Dookie, Amanda L. (2013). Perspectives of animal assisted activities on empowerment, self-esteem and communication with caregivers on elders in retirement homes. Activities, Adaptation & Aging, 37(3), 189-212. doi: 10.1080/01924788.2013.816831

Dossa, A., Bokhour, B., & Hoenig, H. (2012). Care transitions from the hospital to home for patients with mobility impairments: patient and family caregiver experiences. Rehabil Nurs, 37(6), 277-285. doi: 10.1002/rnj.047

Douglas, S. L., & Daly, B. J. (2012). The impact of patient quality of life and spirituality upon caregiver depression for those with advanced cancer. Palliat Support Care, 1-8. doi: 10.1017/S1478951512000570

Driscoll, K. A., Johnson, S. B., Barker, D., Quittner, A. L., Deeb, L. C., Geller, D. E., et al. (2010). Risk factors associated with depressive symptoms in caregivers of children with type 1 diabetes or cystic fibrosis. Journal of Pediatric Psychology, 35(8), 814-822. doi: 10.1093/jpepsy/jsp138

Drossel, C., Fisher, J. E., & Mercer, V. (2010). A dbt skills training group for family caregivers of persons with dementia. Behavior Therapy, No Pagination Specified. doi: 10.1016/j.beth.2010.06.001

DuBenske, Lori L., Gustafson, David H., Namkoong, Kang, Hawkins, Robert P., Atwood, Amy K., Brown, Roger L., . . . Cleary, James F. (2013). CHESS Improves Cancer Caregivers' Burden and Mood: Results of an eHealth RCT. Health Psychology, No Pagination Specified. doi: 10.1037/a0034216

Eckshtain, D., & Gaynor, S. T. (2012). Combining individual cognitive behaviour therapy and caregiver-child sessions for childhood depression: an open trial. Clin Child Psychol Psychiatry, 17(2), 266-283. doi: 10.1177/1359104511404316

Elliott, A. F., Burgio, L. D., & Decoster, J. (2010). Enhancing caregiver health: findings from the resources for enhancing Alzheimer s caregiver health II intervention. Journal of the American Geriatric Society, 58(1), 30-37.

Falb, Melissa D., & Pargament, Kenneth I. (2013). Buddhist coping predicts psychological outcomes among end-of-life caregivers. Psychology of Religion and Spirituality, 5(4), 252-262. doi: 10.1037/a0032653

Fawley-King, K., Haine-Schlagel, R., Trask, E. V., Zhang, J., & Garland, A. F. (2012). Caregiver participation in community-based mental health services for children receiving outpatient care. The Journal of Behavioral Health Services & Research, No Pagination Specified. doi: 10.1007/s11414-012-9311-1

Fegg, M. J., Brandstaetter, M., Koegler, M., Hauke, G., RechenbergWinter, P., Fensterer, V., . . . Borasio, G. D. (2013). Existential behavioural therapy for informal caregivers of palliative patients: A randomised controlled trial. Psycho-Oncology, 22(9), 2079-2086. doi: 10.1002/pon.3260

Ferrell, B., Hanson, J., & Grant, M. (2012). An overview and evaluation of the oncology family caregiver project: improving quality of life and quality of care for oncology family caregivers. Psychooncology. doi: 10.1002/pon.3198

Fickert, N. A., & Ross, D. (2012). Effectiveness of a caregiver education program on providing oral care to individuals with intellectual and developmental disabilities. Intellect Dev Disabil, 50(3), 219-232. doi: 10.1352/1934-9556-50.3.219

Fischer, A. L., Butz, C., Nicholson, L., Blankenship, A., Dyke, P., & Cua, C. L. (2012). Caregiver anxiety upon discharge for neonates with congenital heart disease. Congenit Heart Dis, 7(1), 41-45. doi: 10.1111/j.1747-0803.2011.00600.x

Fischer, A. L., Butz, C., Nicholson, L., Blankenship, A., Dyke, P., & Cua, C. L. (2012). Caregiver Anxiety upon Discharge for Neonates with Congenital Heart Disease. Congenit Heart Dis, 7(1), 41-45. doi: 10.1111/j.1747-0803.2011.00600.x

Fitzpatrick, K. E., & Vacha-Haase, T. (2010). Marital satisfaction and resilience in caregivers of spouses with dementia. Clinical Gerontologist: The Journal of Aging and Mental Health, 33(3), 165-180. doi: 10.1080/07317111003776547

Foebel, A. D., Hirdes, J. P., & Heckman, G. A. (2012). Caregiver status affects medication adherence among older home care clients with heart failure. Aging Clin Exp Res. doi: 10.3275/8475

Ford, K. R., Hurd, N. M., Jagers, R. J., & Sellers, R. M. (2012). Caregiver Experiences of Discrimination and African American Adolescents' Psychological Health Over Time. Child Dev. doi: 10.1111/j.1467-8624.2012.01864.x

Foster, R. H., Kozachek, S., Stern, M., & Elsea, S. H. (2010). Caring for the caregivers: An investigation of factors related to well-being among parents caring for a child with Smith-Magenis syndrome. Journal of Genetic Counseling, 19(2), 187-198. doi: 10.1007/s10897-009-9273-5

Foust, J. B., Vuckovic, N., & Henriquez, E. (2012). Hospital to home health care transition: patient, caregiver, and clinician perspectives. West J Nurs Res, 34(2), 194-212. doi: 10.1177/0193945911400448

Fredman, L., Cauley, J. A., Hochberg, M., Ensrud, K. E., & Doros, G. (2010). Mortality associated with caregiving, general stress, and caregiving-related stress in elderly women: results of caregiver-study of osteoporotic fractures. Journal of the American Geriatric Society, 58(5), 937-943.

From, Ingrid, Nordstroem, Gun, WildeLarsson, Bodil, & Johansson, Inger. (2013). Caregivers in older peoples' care: Perception of quality of care, working conditions, competence and personal health. Scandinavian Journal of Caring Sciences, 27(3), 704-714. doi: 10.1111/j.1471-6712.2012.01083.x

Fuji, K. T., Abbott, A. A., & Norris, J. F. (2012). Exploring Care Transitions From Patient, Caregiver, and Health-Care Provider Perspectives. Clin Nurs Res. doi: 10.1177/1054773812465084

Gallagher-Thompson, D., Wang, P.-C., Liu, W., Cheung, V., Peng, R., China, D., et al. (2010). Effectiveness of a psychoeducational skill training DVD program to reduce stress in Chinese American dementia caregivers: Results of a preliminary study. Aging & Mental Health, 14(3), 263-273. doi: 10.1080/13607860903420989

Galvin, J. E., Duda, J. E., Kaufer, D. I., Lippa, C. F., Taylor, A., & Zarit, S. H. (2010). Lewy body dementia: Caregiver burden and unmet needs. Alzheimer Disease and Associated Disorders, 24(2), 177-181. doi: 10.1097/WAD.0b013e3181c72b5d

Ganguly, K. K., Chadda, R. K., & Singh, T. B. (2010). Caregiver burden and coping in schizophrenia and bipolar disorder: A qualitative study. American Journal of Psychiatric Rehabilitation, 13(2), 126-142. doi: 10.1080/15487761003757009

Gannotti, Mary, Oshio, Toko, & Handwerker, W. P. (2013). Caregiver practices of families of children with and without physical disability. Journal of Developmental and Physical Disabilities, 25(4), 419-435. doi: 10.1007/s10882-012-9318-9

Garcia-Alberca, J. M., Cruz, B., Lara, J. P., Garrido, V., Gris, E., Lara, A., et al. (2012). Disengagement coping partially mediates the relationship between caregiver burden and anxiety and depression in caregivers of people with Alzheimer's disease. Results from the MALAGA-AD study. J Affect Disord, 136(3), 848-856. doi: 10.1016/j.jad.2011.09.026

Gates, L., & Akabas, S. (2012). Meeting the demands of work and responsibilities of caring for a child with asthma: Consequences for caregiver well-being. Journal of Social Service Research, 38(5), 656-671. doi: 10.1080/01488376.2012.709481

Gaugler, J. E. (2010). The longitudinal ramifications of stroke caregiving: A systematic review. Rehabilitation Psychology, 55(2), 108-125. doi: 10.1037/a0019023

Giesbrecht, M., Crooks, V. A., Williams, A., & Hankivsky, O. (2012). Critically examining diversity in end-of-life family caregiving: implications for equitable caregiver support and Canada's Compassionate Care Benefit. Int J Equity Health, 11, 65. doi: 10.1186/1475-9276-11-65

Gillick, Muriel R. (2013). The critical role of caregivers in achieving patient-centered care. JAMA: Journal of the American Medical Association, 310(6), 575-576. doi: 10.1001/jama.2013.7310

Girgis, Afaf, Lambert, Sylvie D., McElduff, Patrick, Bonevski, Billie, Lecathelinais, Christophe, Boyes, Allison, & Stacey, Fiona. (2013). Some things change, some things stay the same: A longitudinal analysis of cancer caregivers' unmet supportive care needs. Psycho-Oncology, 22(7), 1557-1564. doi: 10.1002/pon.3166

Gitlin, L. N. (2012). Good news for dementia care: caregiver interventions reduce behavioral symptoms in people with dementia and family distress. Am J Psychiatry, 169(9), 894-897. doi: 10.1176/appi.ajp.2012.12060774

Gitlin, L. N., Hodgson, N., Jutkowitz, E., & Pizzi, L. (2010). The cost-effectiveness of a nonpharmacologic intervention for individuals with dementia and family caregivers: The Tailored Activity Program. The American Journal of Geriatric Psychiatry, 18(6), 510-519.

Gitlin, L. N., Winter, L., Dennis, M. P., Hodgson, N., & Hauck, W. W. (2010). A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: The COPE randomized trial. JAMA: Journal of the American Medical Association, 304(9), 983-991. doi: 10.1001/jama.2010.1253

Giunta, N. (2010). The National Family Caregiver Support Program: a multivariate examination of state-level implementation. Journal of Aging & Social Policy, 22(3), 249-266.

Given, B. A., Given, C. W., & Sherwood, P. R. (2012). Family and caregiver needs over the course of the cancer trajectory. J Support Oncol, 10(2), 57-64. doi: 10.1016/j.suponc.2011.10.003

Given, B. A., Given, C. W., & Sherwood, P. R. (2012). Family and Caregiver Needs over the Course of the Cancer Trajectory. J Support Oncol. doi: 10.1016/j.suponc.2011.10.003

Godwin, Kyler M., Mills, Whitney L., Anderson, Jane A., & Kunik, Mark E. (2013). Technology-driven interventions for caregivers of persons with dementia: A systematic review. American Journal of Alzheimer's Disease and Other Dementias, 28(3), 216-222. doi: 10.1177/1533317513481091

Green, Sara E. (2013). Convergent caregiving: Exploring eldercare in families of children with disabilities. Journal of Loss and Trauma, 18(4), 289-305. doi: 10.1080/15325024.2012.688705

Green, T. L., Newcommon, N., & Demchuk, A. (2010). Quality of life and caregiver outcomes following decompressive hemicraniectomy for severe stroke: a narrative literature review. Canadian Journal of Neuroscience Nursing, 32(2), 24-33.

Greene, A., Aranda, S., Tieman, J. J., Fazekas, B., & Currow, D. C. (2012). Can assessing caregiver needs and activating community networks improve caregiver-defined outcomes? A single-blind, quasi-experimental pilot study: community facilitator pilot. Palliat Med, 26(7), 917-923. doi: 10.1177/0269216311421834

Grussel, E., Luttenberger, K., Trilling, A., & Donath, C. (2010). Counselling for dementia caregivers' Predictors for utilization and expected quality from a family caregiver's point of view. European Journal of Ageing, 7(2), 111-119. doi: 10.1007/s10433-010-0153-5

Guedes, Ana Catarina, & da Graca Pereira, Maria. (2013). Burden, Coping, Physical Symptoms and Psychological Morbidity in Caregivers of Functionally Dependent Family Members. Revista Latino-Americana de Enfermagem, 21(4), 935-940. doi: 10.1590/S0104-11692013000400015

Hadley, C., Tessema, F., & Muluneh, A. T. (2012). Household food insecurity and caregiver distress: equal threats to child nutritional status? Am J Hum Biol, 24(2), 149-157. doi: 10.1002/ajhb.22200

Haggstrom, E., Mamhidir, A.-G., & Kihlgren, A. (2010). Caregivers' strong commitment to their relationship with older people. International Journal of Nursing Practice, 16(2), 99-105. doi: 10.1111/j.1440-172X.2010.01818.x

Hales, S., Gagliese, L., Nissim, R., Zimmermann, C., & Rodin, G. (2012). Understanding bereaved caregiver evaluations of the quality of dying and death: an application of cognitive interviewing methodology to the quality of dying and death questionnaire. J Pain Symptom Manage, 43(2), 195-204. doi: 10.1016/j.jpainsymman.2011.03.018

Hernandez, A. M., & Bigatti, S. M. (2010). Depression among older Mexican American caregivers. Cultural Diversity and Ethnic Minority Psychology, 16(1), 50-58. doi: 10.1037/a0015867

Herrera, A. P., Mendez-Luck, C. A., Crist, J. D., Smith, M. L., Warre, R., Ory, M. G., et al. (2013). Psychosocial and cognitive health differences by caregiver status among older mexican americans. Community Ment Health J, 49(1), 61-72. doi: 10.1007/s10597-012-9494-1

Hirdes, J. P., Freeman, S., Smith, T. F., & Stolee, P. (2012). Predictors of caregiver distress among palliative home care clients in Ontario: evidence based on the interRAI Palliative Care. Palliat Support Care, 10(3), 155-163. doi: 10.1017/S1478951511000824

Holley, C. K., & Mast, B. T. (2010). Predictors of anticipatory grief in dementia caregivers. Clinical Gerontologist: The Journal of Aging and Mental Health, 33(3), 223-236. doi: 10.1080/07317111003793443

Holtslander, L., & Duggleby, W. (2010). The psychosocial context of bereavement for older women who were caregivers for a spouse with advanced cancer. Journal of Women & Aging, 22(2), 109-124. doi: 10.1080/08952841003716147

Hong, S.-l. (2010). Understanding patterns of service utilization among informal caregivers of community older adults. The Gerontologist, 50(1), 87-99. doi: 10.1093/geront/gnp105

Hu, J., Lin, J.-D., Yen, C.-F., Loh, C.-H., Hsu, S.-W., Lin, L.-P., et al. (2010). Effectiveness of a stress-relief initiative for primary caregivers of adolescents with intellectual disability. Journal of Intellectual and Developmental Disability, 35(1), 29-35. doi: 10.3109/13668250903501499

Huang, T.-T., & Peng, J.-M. (2010). Role adaptation of family caregivers for ventilator-dependent patients: Transition from respiratory care ward to home. Journal of Clinical Nursing, 19(11-12), 1686-1694. doi: 10.1111/j.1365-2702.2009.03007.x

Hudson, Peter, Trauer, Tom, Kelly, Brian, O'Connor, Moira, Thomas, Kristina, Summers, Michael, . . . White, Vicki. (2013). Reducing the psychological distress of family caregivers of homebased palliative care patients: Shortterm effects from a randomised controlled trial. Psycho-Oncology, 22(9), 1987-1993. doi: 10.1002/pon.3242

Hwang, B., Howie-Esquivel, J., Fleischmann, K. E., Stotts, N. A., & Dracup, K. (2012). Family caregiving in pulmonary arterial hypertension. Heart Lung, 41(1), 26-34. doi: 10.1016/j.hrtlng.2011.03.002

Jacinto, G. A. (2010). The self-forgiveness process of caregivers after the death of care-receivers diagnosed with Alzheimer's disease. Journal of Social Service Research, 36(1), 24-36. doi: 10.1080/01488370903333538

Johns Hopkins Medical School. (2010). Healing the caregiver. Six steps to help you stay healthy while caring for a loved one. Johns Hopkins Medical Letter: Health After 50, 22(4), 3.

Kang, J., Shin, D. W., Choi, J. E., Sanjo, M., Yoon, S. J., Kim, H. K., & Yoon, W. H. (2012). Factors associated with positive consequences of serving as a family caregiver for a terminal cancer patient. Psychooncology. doi: 10.1002/pon.3033

Karch, D., & Nunn, K. C. (2010). Characteristics of Elderly and Other Vulnerable Adult Victims of Homicide by a Caregiver: National Violent Death Reporting System--17 U.S. States, 2003-2007. Journal of Interpersonal Violence.

Kim, H., Chang, M., Rose, K., & Kim, S. (2012). Predictors of caregiver burden in caregivers of individuals with dementia. J Adv Nurs, 68(4), 846-855. doi: 10.1111/j.1365-2648.2011.05787.x

Kim, Seon-Young, Kim, Jae-Min, Kim, Sung-Wan, Kang, Hee-Ju, Shin, Il-Seon, Shim, Hyun-Jeong, . . . Yoon, Jin-Sang. (2013). Determinants of a hopeful attitude among family caregivers in a palliative care setting. General Hospital Psychiatry, No Pagination Specified. doi: 10.1016/j.genhosppsych.2013.10.020

Kim, Y., & Carver, C. S. (2012). Recognizing the value and needs of the caregiver in oncology. Curr Opin Support Palliat Care, 6(2), 280-288. doi: 10.1097/SPC.0b013e3283526999

Kim, Y., & Spillers, R. L. (2010). Quality of life of family caregivers at 2 years after a relative's cancer diagnosis. Psycho-Oncology, 19(4), 431-440. doi: 10.1002/pon.1576

Kim, Y., Kashy, D. A., Spillers, R. L., & Evans, T. V. (2010). Needs assessment of family caregivers of cancer survivors: Three cohorts comparison. Psycho-Oncology, 19(6), 573-582. doi: 10.1002/pon.1597

Klaric, M., Franciskovic, T., Pernar, M., Nembic Moro, I., Milicevic, R., Cerni Obrdalj, E., et al. (2010). Caregiver burden and burnout in partners of war veterans with post-traumatic stress disorder. Collegium Antropologicum, 34 Suppl 1, 15-21.

Kuhlthau, K., Kahn, R., Hill, K. S., Gnanasekaran, S., & Ettner, S. L. (2010). The well-being of parental caregivers of children with activity limitations. Maternal and Child Health Journal, 14(2), 155-163. doi: 10.1007/s10995-008-0434-1

Kuipers, E., Onwumere, J., & Bebbington, P. (2010). Cognitive model of caregiving in psychosis. British Journal of Psychiatry, 196(4), 259-265. doi: 10.1192/bjp.bp.109.070466

Kyriacou, C. (2010). Family therapy for adult children caregivers and their families. In J. D. Atwood & C. Gallo (Eds.), Family therapy and chronic illness. (pp. 159-178): New Brunswick, NJ, US: AldineTransaction.

Larson, E. (2010). Identifying indicators of well-being for caregivers of children with disabilities. Occupational Therapy International, 17(1), 29-39. doi: 10.1002/oti.284

Larson, E. (2010). Psychological well-being and meaning-making when caregiving for children with disabilities: Growth through difficult times or sinking inward. OTJR: Occupation, Participation and Health, 30(2), 78-86. doi: 10.3928/15394492-20100325-03

Lavela, S. L., & Ather, N. (2010). Psychological health in older adult spousal caregivers of older adults. Chronic Illness, 6(1), 67-80. doi: 10.1177/1742395309356943

LaVela, Sherri L., Etingen, Bella, & Pape, Theresa Louise-Bender. (2013). Caregiving experiences and health conditions of women veteran and non-veteran caregivers. Women's Health Issues, 23(4), e225-e232. doi: 10.1016/j.whi.2013.04.001

Lavretsky, H., Siddarth, P., & Irwin, M. R. (2010). Improving depression and enhancing resilience in family dementia caregivers: A pilot randomized placebo-controlled trial of escitalopram. The American Journal of Geriatric Psychiatry, 18(2), 154-162. doi: 10.1097/JGP.0b013e3181beab1e

Lehan, T., Arango-Lasprilla, J. C., de los Reyes, C. J., & Quijano, M. C. (2012). The ties that bind: the relationship between caregiver burden and the neuropsychological functioning of TBI survivors. NeuroRehabilitation, 30(1), 87-95. doi: 10.3233/NRE-2011-0730

Leiknes, I., Tysnes, O. B., Aarsland, D., & Larsen, J. P. (2010). Caregiver distress associated with neuropsychiatric problems in patients with early Parkinson s disease: the Norwegian ParkWest study. Acta Neurologica Scandinavica, 122(6), 418-424.

Leroi, I., McDonald, K., Pantula, H., & Harbishettar, V. (2012). Cognitive impairment in Parkinson disease: impact on quality of life, disability, and caregiver burden. J Geriatr Psychiatry Neurol, 25(4), 208-214. doi: 10.1177/0891988712464823

Levy, K., Lanctot, K. L., Farber, S. B., Li, A., & Herrmann, N. (2012). Does pharmacological treatment of neuropsychiatric symptoms in Alzheimer's disease relieve caregiver burden? Drugs Aging, 29(3), 167-179. doi: 10.2165/11599140-000000000-00000

Li, L. W., & McLaughlin, S. J. (2012). Caregiver confidence: does it predict changes in disability among elderly home care recipients? Gerontologist, 52(1), 79-88. doi: 10.1093/geront/gnr073

Li, L. W., & McLaughlin, S. J. (2012). Caregiver confidence: does it predict changes in disability among elderly home care recipients? Gerontologist, 52(1), 79-88. doi: 10.1093/geront/gnr073

Liew, T. M., Luo, N., Ng, W. Y., Chionh, H. L., Goh, J., & Yap, P. (2010). Predicting gains in dementia caregiving. Dementia and Geriatric Cognitive Disorders, 29(2), 115-122. doi: 10.1159/000275569

Lillo, P., Mioshi, E., & Hodges, J. R. (2012). Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: a comparative study. BMC Neurol, 12, 156. doi: 10.1186/1471-2377-12-156

Lippa, C. F. (2010). Focusing on the caregiver: Grief in dementia caregiving. American Journal of Alzheimer's Disease and Other Dementias, 25(1), 7-8. doi: 10.1177/1533317510361313

Lippa, C. F. (2012). Family caregiver issues in dementia: Dealing with children. American Journal of Alzheimer's Disease and Other Dementias, 27(8), 561-562. doi: 10.1177/1533317512466626

Lobchuk, M. M., McPherson, C. J., McClement, S. E., & Cheang, M. (2012). A comparison of patient and family caregiver prospective control over lung cancer. J Adv Nurs, 68(5), 1122-1133. doi: 10.1111/j.1365-2648.2011.05819.x

Loeckenhoff, C. E., Duberstein, P. R., Friedman, B., & Costa, P. T., Jr. (2011). Five-factor personality traits and subjective health among caregivers: The role of caregiver strain and self-efficacy. Psychology and Aging, 26(3), 592-604.

Lohne, V., Miaskowski, C., & Rustoen, T. (2012). The relationship between hope and caregiver strain in family caregivers of patients with advanced cancer. Cancer Nurs, 35(2), 99-105. doi: 10.1097/NCC.0b013e31821e9a02

Losada, A. s., Mrquez-Gonzalez, M. a., Knight, B. G., Yanguas, J., Sayegh, P., & Romero-Moreno, R. (2010). Psychosocial factors and caregivers' distress: Effects of familism and dysfunctional thoughts. Aging & Mental Health, 14(2), 193-202. doi: 10.1080/13607860903167838

Lui, M. H., Lee, D. T., Greenwood, N., & Ross, F. M. (2012). Informal stroke caregivers' self-appraised problem-solving abilities as a predictor of well-being and perceived social support. J Clin Nurs, 21(1-2), 232-242. doi: 10.1111/j.1365-2702.2011.03742.x

MacNeil, G., Kosberg, J. I., Durkin, D. W., Dooley, W. K., DeCoster, J., & Williamson, G. M. (2010). Caregiver mental health and potentially harmful caregiving behavior: The central role of caregiver anger. The Gerontologist, 50(1), 76-86. doi: 10.1093/geront/gnp099

Mao, A. R. (2012). Factors that contribute to caregiver burden for parents of children with autism spectrum disorder or attention-deficit/hyperactivity disorder. J Am Acad Child Adolesc Psychiatry, 51(9), 864-866. doi: 10.1016/j.jaac.2012.07.005

Marcen, M., & Molina, J. A. (2012). Informal caring-time and caregiver satisfaction. Eur J Health Econ, 13(6), 683-705. doi: 10.1007/s10198-011-0322-2

Martire, L. M., Schulz, R., Reynolds, C. F., III, Karp, J. F., Gildengers, A. G., & Whyte, E. M. (2010). Treatment of late-life depression alleviates caregiver burden. Journal of the American Geriatrics Society, 58(1), 23-29. doi: 10.1111/j.1532-5415.2009.02610.x

Mausbach, B. T., Roepke, S. K., Chattillion, E. A., Harmell, A. L., Moore, R., Romero-Moreno, R., Grant, I. (2012). Multiple mediators of the relations between caregiving stress and depressive symptoms. Aging Ment Health, 16(1), 27-38. doi: 10.1080/13607863.2011.615738

McCann, T. V., Lubman, D. I., & Clark, E. (2012). Primary caregivers' satisfaction with clinicians' response to them as informal carers of young people with first-episode psychosis: a qualitative study. J Clin Nurs, 21(1-2), 224-231. doi: 10.1111/j.1365-2702.2011.03836.x

McConigley, R., Halkett, G., Lobb, E., & Nowak, A. (2010). Caring for someone with high-grade glioma: A time of rapid change for caregivers. Palliative Medicine, 24(5), 473-479. doi: 10.1177/0269216309360118

McGrath-Morrow, S. A., Ryan, T., Riekert, K., Lefton-Greif, M. A., Eakin, M., & Collaco, J. M. (2012). The impact of bronchopulmonary dysplasia on caregiver health related quality of life during the first 2 years of life. Pediatr Pulmonol. doi: 10.1002/ppul.22687

McGuire, D. B., Grant, M., & Park, J. (2012). Palliative care and end of life: the caregiver. Nurs Outlook, 60(6), 351-356 e320. doi: 10.1016/j.outlook.2012.08.003

McPherson, C. J., Wilson, K. G., Chyurlia, L., & Leclerc, C. (2010). The balance of give and take in caregiver - partner relationships: An examination of self-perceived burden, relationship equity, and quality of life from the perspective of care recipients following stroke. Rehabilitation Psychology, 55(2), 194-203.

McWilliams, S., Egan, P., Jackson, D., Renwick, L., Foley, S., Behan, C., et al. (2010). Caregiver psychoeducation for first-episode psychosis. European Psychiatry, 25(1), 33-38. doi: 10.1016/j.eurpsy.2009.08.006

Miller, E. A., Rosenheck, R. A., & Schneider, L. S. (2012). Caregiver burden, health utilities, and institutional service use in Alzheimer's disease. Int J Geriatr Psychiatry, 27(4), 382-393. doi: 10.1002/gps.2730

Mioshi, E., Foxe, D., Leslie, F., McLinneuro, S. S., Hsieh, S., Miller, L., et al. (2012). The Impact of Dementia Severity on Caregiver Burden in Frontotemporal Dementia and Alzheimer Disease. Alzheimer Dis Assoc Disord. doi: 10.1097/WAD.0b013e318247a0bc

Mitnick, S. (2010). Family caregivers, patients and physicians: Ethical guidance to optimize relationships. Journal of General Internal Medicine, 25(6), 488. doi: 10.1007/s11606-010-1315-z

Mitnick, S., Leffler, C., & Hood, V. L. (2010). Family caregivers, patients and physicians: Ethical guidance to optimize relationships. Journal of General Internal Medicine, 25(3), 255-260. doi: 10.1007/s11606-009-1206-3

Mitsonis, C., Voussoura, E., Dimopoulos, N., Psarra, V., Kararizou, E., Latzouraki, E., et al. (2012). Factors associated with caregiver psychological distress in chronic schizophrenia. Soc Psychiatry Psychiatr Epidemiol, 47(2), 331-337. doi: 10.1007/s00127-010-0325-9

Mitsonis, C., Voussoura, E., Dimopoulos, N., Psarra, V., Kararizou, E., Latzouraki, E., . . . Katsanou, M. N. (2012). Factors associated with caregiver psychological distress in chronic schizophrenia. Soc Psychiatry Psychiatr Epidemiol, 47(2), 331-337. doi: 10.1007/s00127-010-0325-9

Miyazaki, E. T., Dos Santos, R., Miyazaki, M. C., Domingos, N. M., Felicio, H. C., Rocha, M. F., et al. (2010). Patients on the waiting list for liver transplantation: caregiver burden and stress. Liver Transplant, 16(10), 1164-1168.

Moeller-Leimkuehler, A. M., & Wiesheu, A. (2012). Caregiver burden in chronic mental illness: The role of patient and caregiver characteristics. European Archives of Psychiatry and Clinical Neuroscience, 262(2), 157-166. doi: 10.1007/s00406-011-0215-5

Mohamed, S., Rosenheck, R., Lyketsos, C. G., & Schneider, L. S. (2010). Caregiver burden in Alzheimer disease: cross-sectional and longitudinal patient correlates. American Journal of Geriatric Psychiatry, 18(10), 917-927.

Mohamed, S., Rosenheck, R., Lyketsos, C. G., Kaczynski, R., Sultzer, D. L., & Schneider, L. S. (2012). Effect of second-generation antipsychotics on caregiver burden in Alzheimer's disease. J Clin Psychiatry, 73(1), 121-128. doi: 10.4088/JCP.10m06574

Moller-Leimkuhler, A. M., & Wiesheu, A. (2012). Caregiver burden in chronic mental illness: the role of patient and caregiver characteristics. Eur Arch Psychiatry Clin Neurosci, 262(2), 157-166. doi: 10.1007/s00406-011-0215-5

Moon, Heehyul, & Adams, Kathryn Betts. (2013). The effectiveness of dyadic interventions for people with dementia and their caregivers. Dementia: The International Journal of Social Research and Practice, 12(6), 821-839. doi: 10.1177/1471301212447026

Moore, A. M., Gamblin, T. C., Geller, D. A., Youssef, M. N., Hoffman, K. E., Gemmell, L., et al. (2010). A prospective study of posttraumatic growth as assessed by self-report and family caregiver in the context of advanced cancer. Psychooncology.

Moorman, S. M., & Macdonald, C. (2012). Medically Complex Home Care and Caregiver Strain. Gerontologist. doi: 10.1093/geront/gns067

Mosca, L., Aggarwal, B., Mochari-Greenberger, H., Liao, M., Blair, J., Cheng, B., et al. (2012). Association between having a caregiver and clinical outcomes 1 year after hospitalization for cardiovascular disease. Am J Cardiol, 109(1), 135-139. doi: 10.1016/j.amjcard.2011.07.072

Mosca, L., Aggarwal, B., Mochari-Greenberger, H., Liao, M., Blair, J., Cheng, B., Umann, T. (2012). Association between having a caregiver and clinical outcomes 1 year after hospitalization for cardiovascular disease. Am J Cardiol, 109(1), 135-139. doi: 10.1016/j.amjcard.2011.07.072

Mulligan, John, Sellwood, William, Reid, Graeme S., Riddell, Suzanne, & Andy, Natasha. (2013). Informal caregivers in early psychosis: Evaluation of need for psychosocial intervention and unresolved grief. Early Intervention in Psychiatry, 7(3), 291-299.

Naden, Dagfinn, Rehnsfeldt, Arne, Raholm, Maj-Britt, Lindwall, Lillemor, Caspari, Synnove, Aasgaard, Trygve, . . . Lohne, Vibeke. (2013). Aspects of indignity in nursing home residences as experienced by family caregivers. Nursing Ethics, 20(7), 748-761. doi: 10.1177/0969733012475253

Napoles, A. M., Chadiha, L., Eversley, R., & Moreno-John, G. (2010). Developing culturally sensitive dementia caregiver interventions: Are we there yet? American Journal of Alzheimer's Disease and Other Dementias, 25(5), 389-406. doi: 10.1177/1533317510370957

Navidian, A., Kermansaravi, F., & Rigi, S. N. (2012). The effectiveness of a group psycho-educational program on family caregiver burden of patients with mental disorders. BMC Res Notes, 5, 399. doi: 10.1186/1756-0500-5-399

Noyes, B. B., Hill, R. D., Hicken, B. L., Luptak, M., Rupper, R., Dailey, N. K., et al. (2010). The role of grief in dementia caregiving. American Journal of Alzheimer's Disease and Other Dementias, 25(1), 9-17. doi: 10.1177/1533317509333902

O'Hara, R. E., Hull, J. G., Lyons, K. D., Bakitas, M., Hegel, M. T., Li, Z., et al. (2010). Impact on caregiver burden of a patient-focused palliative care intervention for patients with advanced cancer. Palliative and Supportive Care, 8(4), 395-404.

Ornstein, K., & Gaugler, J. E. (2012). The problem with "problem behaviors": a systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the dementia patient-caregiver dyad. Int Psychogeriatr, 24(10), 1536-1552. doi: 10.1017/S1041610212000737

Ornstein, K., & Gaugler, J. E. (2012). The problem with "problem behaviors": A systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the dementia patient - caregiver dyad. International Psychogeriatrics, 24(10), 1536-1552. doi: 10.1017/S1041610212000737

Ornstein, K., Gaugler, J. E., Devanand, D. P., Scarmeas, N., Zhu, C., & Stern, Y. (2012). The Differential Impact of Unique Behavioral and Psychological Symptoms for the Dementia Caregiver: How and Why Do Patients' Individual Symptom Clusters Impact Caregiver Depressive Symptoms? Am J Geriatr Psychiatry. doi: 10.1097/JGP.0b013e31826d6b31

Osman, C. B., Alipah, B., Tutiiryani, M. D., & Ainsah, O. (2010). Depressive disorders and family functioning among the caregivers of patients with schizophrenia. East Asian Archives of Psychiatry, 20(3), 101-108.

Ownsworth, T., Henderson, L., & Chambers, S. K. (2010). Social support buffers the impact of functional impairments on caregiver psychological well-being in the context of brain tumor and other cancers. Psycho-Oncology, 19(10), 1116-1122. doi: 10.1002/pon.1663

Palamaro Munsell, E., Kilmer, R. P., Cook, J. R., & Reeve, C. L. (2012). The effects of caregiver social connections on caregiver, child, and family well-being. Am J Orthopsychiatry, 82(1), 137-145. doi: 10.1111/j.1939-0025.2011.01129.x

Pangalila, R. F., van den Bos, G. A., Stam, H. J., van Exel, N. J., Brouwer, W. B., & Roebroeck, M. E. (2012). Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy. Disabil Rehabil, 34(12), 988-996. doi: 10.3109/09638288.2011.628738

Parveen, S., & Morrison, V. (2012). Predicting caregiver gains: a longitudinal study. Br J Health Psychol, 17(4), 711-723. doi: 10.1111/j.2044-8287.2012.02067.x

Pellegrino, R., Formica, V., Portarena, I., Mariotti, S., Grenga, I., Del Monte, G., et al. (2010). Caregiver distress in the early phases of cancer. Anticancer Research, 30(11), 4657-4663.

Perkins, E. A. (2010). The compound caregiver: A case study of multiple caregiving roles. Clinical Gerontologist: The Journal of Aging and Mental Health, 33(3), 248-254. doi: 10.1080/07317111003773619

Perkins, E. A., & Haley, W. E. (2010). Compound caregiving: When lifelong caregivers undertake additional caregiving roles. Rehabilitation Psychology, 55(4), 409-417

Perkins, Martinique, Howard, Virginia J., Wadley, Virginia G., Crowe, Michael, Safford, Monika M., Haley, William E., . . . Roth, David L. (2013). Caregiving strain and all-cause mortality: Evidence from the REGARDS study. The Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 68B(4), 504-512. doi: 10.1093/geronb/gbs084

Perlick, D. A., Miklowitz, D. J., Lopez, N., Chou, J., Kalvin, C., Adzhiashvili, V., et al. (2010). Family-focused treatment for caregivers of patients with bipolar disorder. Bipolar Disorders, 12(6), 627-637. doi: 10.1111/j.1399-5618.2010.00852.x

Perreault, M., Rousseau, M., Provencher, H., Roberts, S., & Milton, D. (2012). Predictors of caregiver satisfaction with mental health services. Community Ment Health J, 48(2), 232-237. doi: 10.1007/s10597-011-9403-z

Perrin, P. B., Heesacker, M., Uthe, C. E., & Rittman, M. R. (2010). Caregiver mental health and racial/ethnic disparities in stroke: Implications for culturally sensitive interventions. Rehabilitation Psychology, 55(4), 372-382.

Piercy, K. W., Fauth, E. B., Norton, M. C., Pfister, R., Corcoran, C. D., Rabins, P. V., et al. (2012). Predictors of Dementia Caregiver Depressive Symptoms in a Population: The Cache County Dementia Progression Study. J Gerontol B Psychol Sci Soc Sci. doi: 10.1093/geronb/gbs116

Plank, A., Mazzoni, V., & Cavada, L. (2012). Becoming a caregiver: new family carers' experience during the transition from hospital to home. J Clin Nurs, 21(13-14), 2072-2082. doi: 10.1111/j.1365-2702.2011.04025.x

Poulin, M. J., Brown, S. L., Ubel, P. A., Smith, D. M., Jankovic, A., & Langa, K. M. (2010). Does a helping hand mean a heavy heart? Helping behavior and well-being among spouse caregivers. Psychology and Aging, 25(1), 108-117. doi: 10.1037/a0018064

Quinn, C., Clare, L., & Woods, R. T. (2010). The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: A systematic review. International Psychogeriatrics, 22(1), 43-55. doi: 10.1017/s1041610209990810

Raviv, T., & Wadsworth, M. E. (2010). The efficacy of a pilot prevention program for children and caregivers coping with economic strain. Cognitive Therapy and Research, 34(3), 216-228. doi: 10.1007/s10608-009-9265-7

Raymond, K. P., Fiese, B. H., Winter, M. A., Knestel, A., & Everhart, R. S. (2012). Helpful hints: Caregiver-generated asthma management strategies and their relation to pediatric asthma symptoms and quality of life. Journal of Pediatric Psychology, 37(4), 414-423. doi: 10.1093/jpepsy/jss001

Reid, R. C., Stajduhar, K. I., & Chappell, N. L. (2010). The impact of work interferences on family caregiver outcomes. Journal of Applied Gerontology, 29(3), 267-289. doi: 10.1177/0733464809339591

Rezende, T. C. B., Coimbra, A. M. V., Costallat, L. T. L., & Coimbra, I. B. (2010). Factors of high impacts on the life of caregivers of disabled elderly. Archives of Gerontology and Geriatrics, 51(1), 76-80. doi: 10.1016/j.archger.2009.08.003

Riffin, C., Lockenhoff, C. E., Pillemer, K., Friedman, B., & Costa, P. T., Jr. (2012). Care Recipient Agreeableness Is Associated With Caregiver Subjective Physical Health Status. J Gerontol B Psychol Sci Soc Sci. doi: 10.1093/geronb/gbs114

Robley, L., Ballard, N., Holtzman, D., & Cooper, W. (2010). The experience of stress for open heart surgery patients and their caregivers. Western Journal of Nursing Research, 32(6), 794-813. doi: 10.1177/0193945910361469

Rocca, P., Leotta, D., Liffredo, C., Mingrone, C., Sigaudo, M., Capellero, B., et al. (2010). Neuropsychiatric symptoms underlying caregiver stress and insight in Alzheimer s disease. Dement Geriatr Cogn Disord, 30(1), 57-63.

Rodakowski, J., Skidmore, E. R., Rogers, J. C., & Schulz, R. (2012). Role of social support in predicting caregiver burden. Arch Phys Med Rehabil, 93(12), 2229-2236. doi: 10.1016/j.apmr.2012.07.004

Rodriguez-Sanchez, Emiliano, Patino-Alonso, Maria C., Mora-Simon, Sara, Gomez-Marcos, Manuel A., Perez-Penaranda, Anibal, Losada-Baltar, Andres, & Garcia-Ortiz, Luis. (2013). Effects of a psychological intervention in a primary health care center for caregivers of dependent relatives: A randomized trial. The Gerontologist, 53(3), 397-406. doi: 10.1093/geront/gns086

Rohr, Margund K., Wagner, Jenny, & Lang, Frieder R. (2013). Effects of personality on the transition into caregiving. Psychology and Aging, 28(3), 692-700. doi: 10.1037/a0034133

Rosa, E., Lussignoli, G., Sabbatini, F., Chiappa, A., Di Cesare, S., Lamanna, L., et al. (2010). Needs of caregivers of the patients with dementia. Archives of Gerontology and Geriatrics, 51(1), 54-58. doi: 10.1016/j.archger.2009.07.008

Rosenberg, Abby R., Baker, K. Scott, Syrjala, Karen L., Back, Anthony L., & Wolfe, Joanne. (2013). Promoting resilience among parents and caregivers of children with cancer. Journal of Palliative Medicine, 16(6), 645-652. doi: 10.1089/jpm.2012.0494

Rospenda, K. M., Minich, L. M., Milner, L. A., & Richman, J. A. (2010). Caregiver burden and alcohol use in a community sample. Journal of Addictive Diseases, 29(3), 314-324. doi: 10.1080/10550887.2010.489450

Rossheim, B. N., & McAdams, C. R., III. (2010). Addressing the chronic sorrow of long-term spousal caregivers: A primer for counselors. Journal of Counseling & Development, 88(4), 477-482.

Rossi-Stahl, D., & Ahmed, J. (2012). Med reductions boost quality of life: A facility challenges the common practice of prescribing multiple drugs for the elderly, resulting in more caregiver time with patients. Provider, 38(5), 21-23, 25.

Rusby, Julie C., Jones, Laura Backen, Crowley, Ryann, & Smolkowski, Keith. (2013). Associations of caregiver stress with working conditions, caregiving practices, and child behaviour in home-based child care. Early Child Development and Care, 183(11), 1589-1604. doi: 10.1080/03004430.2012.742992

Salter, K., Zettler, L., Foley, N., & Teasell, R. (2010). Impact of caring for individuals with stroke on perceived physical health of informal caregivers. Disability and Rehabilitation: An International, Multidisciplinary Journal, 32(4), 273-281. doi: 10.3109/09638280903114394

Samia, L. W., Hepburn, K., & Nichols, L. (2012). "Flying by the seat of our pants": what dementia family caregivers want in an advanced caregiver training program. Res Nurs Health, 35(6), 598-609. doi: 10.1002/nur.21504

Sanderson, Christine, Lobb, Elizabeth A., Mowll, Jane, Butow, Phyllis N., McGowan, Naomi, & Price, Melanie A. (2013). Signs of post-traumatic stress disorder in caregivers following an expected death: A qualitative study. Palliative Medicine, 27(7), 625-631.

Santos-Garcia, D., Anon, M. J., Fuster-Sanjurjo, L., & de la Fuente-Fernandez, R. (2012). Duodenal levodopa/carbidopa infusion therapy in patients with advanced Parkinson's disease leads to improvement in caregivers' stress and burden. Eur J Neurol. doi: 10.1111/j.1468-1331.2011.03630.x

Savundranayagam, M. Y., & Montgomery, R. J. V. (2010). Impact of role discrepancies on caregiver burden among spouses. Research on Aging, 32(2), 175-199. doi: 10.1177/0164027509351473

Savundranayagam, M. Y., Montgomery, R. J., Kosloski, K., & Little, T. D. (2010). Impact of a psychoeducational program on three types of caregiver burden among spouses.International Journal of Geriatric Psychiatry.

Schindler, M., Engel, S., & Rupprecht, R. (2012). The impact of perceived knowledge of dementia on caregiver burden. GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry, 25(3), 127-134. doi: 10.1024/1662-9647/a000062

Schoenmakers, B., Buntinx, F., & Delepeleire, J. (2010). Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas, 66(2), 191-200. doi: 10.1016/j.maturitas.2010.02.009

Schoenmakers, B., Buntinx, F., & DeLepeleire, J. (2010). Supporting the dementia family caregiver: the effect of home care intervention on general well-being. Aging & Mental Health, 14(1), 44-56.

Schulz, R., Beach, S. R., Cook, T. B., Martire, L. M., Tomlinson, J. M., & Monin, J. K. (2012). Predictors and consequences of perceived lack of choice in becoming an informal caregiver. Aging & Mental Health, 16(6), 712-721. doi: 10.1080/13607863.2011.651439

Seeher, Katrin, Low, Lee-Fay, Reppermund, Simone, & Brodaty, Henry. (2013). Predictors and outcomes for caregivers of people with mild cognitive impairment: A systematic literature review. Alzheimer's & Dementia, 9(3), 346-355.

Sherwood, P. R., Given, B. A., Given, C. W., Sikorskii, A., You, M., & Prince, J. (2012). The impact of a problem-solving intervention on increasing caregiver assistance and improving caregiver health. Support Care Cancer, 20(9), 1937-1947. doi: 10.1007/s00520-011-1295-5

Shin, D. W., Park, J. H., Shim, E. J., Choi, J. Y., Kim, S. G., & Park, E. C. (2010). The development of a comprehensive needs assessment tool for cancer-caregivers in patient-caregiver dyads. Psychooncology.

Shin, H., Lee, J.-Y., Youn, J., Kim, J. S., & Cho, J. W. (2012). Factors contributing to spousal and offspring caregiver burden in Parkinson's disease. European Neurology, 67(5), 292-296. doi: 10.1159/000335577

Siegler, I. C., Brummett, B. H., Williams, R. B., Haney, T. L., & Dilworth-Anderson, P. (2010). Caregiving, residence, race, and depressive symptoms. Aging & Mental Health, 14(7), 771-778. doi: 10.1080/13607861003713257

Sims-Gould, J., & Martin-Matthews, A. (2010). We share the care: Family caregivers experiences of their older relative receiving home support services. Health & Social Care in the Community, 18(4), 415-423.

Smith, G. R., Williamson, G. M., Miller, L. S., & Schulz, R. (2011). Depression and quality of informal care: A longitudinal investigation of caregiving stressors. Psychology and Aging, 26(3), 584-591.

Spira, A. P., Friedman, L., Beaudreau, S. A., Ancoli-lsrael, S., Hernandez, B., Sheikh, J., et al. (2010). Sleep and physical functioning in family caregivers of older adults with memory impairment. International Psychogeriatrics, 22(2), 306-311. doi: 10.1017/s1041610209991153

Springate, Beth, & Tremont, Geoffrey. (2013). Caregiver burden and depression in mild cognitive impairment. Journal of Applied Gerontology, 32(6), 765-775. doi: 10.1177/0733464811433486

Steele, A., Maruyama, N., & Galynker, I. (2010). Psychiatric symptoms in caregivers of patients with bipolar disorder: A review. Journal of Affective Disorders, 121(1-2), 10-21. doi: 10.1016/j.jad.2009.04.020

Tarantino, M. D., Ye, X., Bergstrom, F., Skorija, K., & Luo, M. P. (2013). The impact of the economic downturn and health care reform on treatment decisions for haemophilia A: patient, caregiver and health care provider perspectives. Haemophilia, 19(1), 51-58. doi: 10.1111/hae.12008

Terpstra, J. L., Chavez, L. J., & Ayala, G. X. (2012). An intervention to increase caregiver support for asthma management in middle school-aged youth. J Asthma, 49(3), 267-274. doi: 10.3109/02770903.2012.656866

Thielman, N., Ostermann, J., Whetten, K., Whetten, R., O'Donnell, K., & Positive Outcomes for Orphans Research, T. (2012). Correlates of poor health among orphans and abandoned children in less wealthy countries: the importance of caregiver health. PLoS One, 7(6), e38109. doi: 10.1371/journal.pone.0038109

Thurman, T. R., Jarabi, B., & Rice, J. (2012). Caring for the caregiver: evaluation of support groups for guardians of orphans and vulnerable children in Kenya. AIDS Care, 24(7), 811-819. doi: 10.1080/09540121.2011.644229

Toscan, J., Mairs, K., Hinton, S., Stolee, P., & The InfoRehab Research, T. (2012). Integrated transitional care: patient, informal caregiver and health care provider perspectives on care transitions for older persons with hip fracture. Int J Integr Care, 12, e13.

Toupin April, K., Cavallo, S., Ehrmann Feldman, D., & Ni, A. (2012). The associations among economic hardship, caregiver psychological distress, disease activity, and health-related quality of life in children with juvenile idiopathic arthritis. Qual Life Res, 21(7), 1185-1191. doi: 10.1007/s11136-011-0033-2

Townsend, A. L., Ishler, K. J., Shapiro, B. M., Pitorak, E. F., & Matthews, C. R. (2010). Levels, types, and predictors of family caregiver strain during hospice home care for an older adult. Journal of Social Work in End-of-Life & Palliative Care, 6(1-2), 51-72. doi: 10.1080/15524256.2010.489222

Tschanz, J. T., Piercy, K., Corcoran, C. D., Fauth, E., Norton, M. C., Rabins, P. V., et al. (2012). Caregiver Coping Strategies Predict Cognitive and Functional Decline in Dementia: The Cache County Dementia Progression Study. Am J Geriatr Psychiatry. doi: 10.1097/JGP.0b013e31825c0b12

Tumosa, N. (2010). Self-help tools for older persons and their caregivers. In J. Toner, T. Mierswa & J. Howe (Eds.), Geriatric mental health disaster and emergency preparedness.(pp. 141-156): New York, NY, US: Springer Publishing Co.

Turner, F., Seiger, C., & Devine, N. (2012). Impact of Patient and Caregiver Transfer Training Provided by a Physical Therapist in the Hospice Setting: A Case Study. Am J Hosp Palliat Care. doi: 10.1177/1049909112444716

Umemura, T., Jacobvitz, D., Messina, S., & Hazen, N. (2012). Do toddlers prefer the primary caregiver or the parent with whom they feel more secure? The role of toddler emotion. Infant Behav Dev, 36(1), 102-114. doi: 10.1016/j.infbeh.2012.10.003

Valentino, L. A., Walsh, C. E., Reding, M. T., Young, G. A., Levendoglu-Tugal, O., & Cooper, D. L. (2012). Patient- and caregiver-reported bleeding symptoms and reasons for starting and stopping treatment with recombinant factor VIIa: analysis of the Dosing Observational Study in Haemophilia (DOSE). Haemophilia, 18(4), 554-560. doi: 10.1111/j.1365-2516.2012.02762.x

van der Kooij, C. H., Droees, R. M., de Lange, J., Ettema, T. P., Cools, H. J. M., & van Tilburg, W. (2013). The implementation of integrated emotion-oriented care: Did it actually change the attitude, skills and time spent of trained caregivers? Dementia: The International Journal of Social Research and Practice, 12(5), 536-550. doi: 10.1177/1471301211435187

van Gennip, Isis E., Pasman, H. Roeline W., Kaspers, Pam J., Oosterveld-Vlug, Mariska G., Willems, Dick L., Deeg, Dorly J. H., & Onwuteaka-Philipsen, Bregje D. (2013). Death with dignity from the perspective of the surviving family: A survey study among family caregivers of deceased older adults. Palliative Medicine, 27(7), 616-624. doi: 10.1177/0269216313483185

Van Mierlo, L. D., Meiland, F. J., Van der Roest, H. G., & Droes, R. M. (2012). Personalised caregiver support: effectiveness of psychosocial interventions in subgroups of caregivers of people with dementia. Int J Geriatr Psychiatry, 27(1), 1-14. doi: 10.1002/gps.2694

Van Mierlo, L. D., Meiland, F. J., Van der Roest, H. G., & Droes, R. M. (2012). Personalised caregiver support: effectiveness of psychosocial interventions in subgroups of caregivers of people with dementia. Int J Geriatr Psychiatry, 27(1), 1-14. doi: 10.1002/gps.2694

van Rysewyk, S. (2010). The integration of emotion and reason in caregiver pain assessment. The Journal of Pain, 11(8), 804-805. doi: 10.1016/j.jpain.2010.02.002

van Toledo, Annik, & Seymour, Fred. (2013). Interventions for caregivers of children who disclose sexual abuse: A review. Clinical Psychology Review, 33(6), 772-781. doi: 10.1016/j.cpr.2013.05.006

Vernooij-Dassen, M., Joling, K., van Hout, H., & Mittelman, M. S. (2010). The process of family-centered counseling for caregivers of persons with dementia: Barriers, facilitators and benefits. International Psychogeriatrics, 22(5), 769-777. doi: 10.1017/s1041610210000050

von Kanel, R., Mausbach, B. T., Dimsdale, J. E., Mills, P. J., Patterson, T. L., Ancoli-Israel, S., Grant, I. (2012). Effect of Chronic Dementia Caregiving and Major Transitions in the Caregiving Situation on Kidney Function: A Longitudinal Study. Psychosom Med. doi: 10.1097/PSY.0b013e3182408c14

Wade, S. L., Walz, N. C., Carey, J., McMullen, K. M., Cass, J., Mark, E., et al. (2012). A randomized trial of teen online problem solving: efficacy in improving caregiver outcomes after brain injury. Health Psychol, 31(6), 767-776. doi: 10.1037/a0028440

Waldron, E. A., Janke, E. A., Bechtel, C. F., Ramirez, M., & Cohen, A. (2012). A systematic review of psychosocial interventions to improve cancer caregiver quality of life. Psychooncology. doi: 10.1002/pon.3118

Waldron, Elizabeth A., Janke, E. Amy, Bechtel, Colleen F., Ramirez, Michelle, & Cohen, Abigail. (2013). A systematic review of psychosocial interventions to improve cancer caregiver quality of life. Psycho-Oncology, 22(6), 1200-1207. doi: 10.1002/pon.3118

Waldrop, D. P., Meeker, M. A., Kerr, C., Skretny, J., Tangeman, J., & Milch, R. (2012). The nature and timing of family-provider communication in late-stage cancer: a qualitative study of caregivers' experiences. J Pain Symptom Manage, 43(2), 182-194. doi: 10.1016/j.jpainsymman.2011.04.017

Wan, M. W., Green, J., Elsabbagh, M., Johnson, M., Charman, T., Plummer, F., et al. (2012). Quality of interaction between at-risk infants and caregiver at 12-15 months is associated with 3-year autism outcome. J Child Psychol Psychiatry. doi: 10.1111/jcpp.12032

Werner, P., Mittelman, M. S., Goldstein, D., & Heinik, J. (2012). Family stigma and caregiver burden in Alzheimer's disease. Gerontologist, 52(1), 89-97. doi: 10.1093/geront/gnr117

Werner, P., Mittelman, M. S., Goldstein, D., & Heinik, J. (2012). Family stigma and caregiver burden in Alzheimer's disease. Gerontologist, 52(1), 89-97. doi: 10.1093/geront/gnr117

Whitebird, Robin R., Kreitzer, Mary Jo, Crain, A. Lauren, Lewis, Beth A., Hanson, Leah R., & Enstad, Chris J. (2013). Mindfulness-based stress reduction for family caregivers: A randomized controlled trial. The Gerontologist, 53(4), 676-686. doi: 10.1093/geront/gns126

Williams, S. W., Zimmerman, S., & Williams, C. S. (2012). Family caregiver involvement for long-term care residents at the end of life. J Gerontol B Psychol Sci Soc Sci, 67(5), 595-604. doi: 10.1093/geronb/gbs065

Wilson, S. E., Ouedraogo, C. T., Prince, L., Ouedraogo, A., Hess, S. Y., Rouamba, N., et al. (2012). Caregiver recognition of childhood diarrhea, care seeking behaviors and home treatment practices in rural Burkina Faso: a cross-sectional survey. PLoS One, 7(3), e33273. doi: 10.1371/journal.pone.0033273

Wittenberg-Lyles, E., Debra, P. O., Demiris, G., Rankin, A., Shaunfield, S., & Kruse, R. L. (2012). Conveying empathy to hospice family caregivers: team responses to caregiver empathic communication. Patient Educ Couns, 89(1), 31-37. doi: 10.1016/j.pec.2012.04.004

Wittenberg-Lyles, E., Goldsmith, J., Oliver, D. P., Demiris, G., & Rankin, A. (2012). Targeting communication interventions to decrease caregiver burden. Semin Oncol Nurs, 28(4), 262-270. doi: 10.1016/j.soncn.2012.09.009

Wittenberg-Lyles, E., Oliver, D. P., Kruse, R. L., Demiris, G., Gage, L. A., & Wagner, K. (2012). Family Caregiver Participation in Hospice Interdisciplinary Team Meetings: How Does It Affect the Nature and Content of Communication? Health Commun. doi: 10.1080/10410236.2011.652935

Wolfe-Christensen, C., Mullins, L. L., Fedele, D. A., Rambo, P. L., Eddington, A., & Carpentier, M. Y. (2010). The relation of caregiver demand to adjustment outcomes in children with cancer: The moderating role of parenting stress. Children's Health Care, 39(2), 108-124. doi: 10.1080/02739611003679881

Wright, M. J., Battista, M. A., Pate, D. S., Hierholzer, R., Mogelof, J., & Howsepian, A. A. (2010). Domain-specific associations between burden and mood state in dementia caregivers. Clinical Gerontologist: The Journal of Aging and Mental Health, 33(3), 237-247. doi: 10.1080/07317111003773601

Yamamoto, Y., Hayashino, Y., Higashi, T., Matsui, M., Yamazaki, S., Takegami, M., et al. (2010). Keeping vulnerable elderly patients free from pressure ulcer is associated with high caregiver burden in informal caregivers. Journal of Evaluation in Clinical Practice, 16(3), 585-589.

Yeager, C. A., Hyer, L. A., Hobbs, B., & Coyne, A. C. (2010). Alzheimer's disease and vascular dementia: The complex relationship between diagnosis and caregiver burden. Issues in Mental Health Nursing, 31(6), 376-384. doi: 10.3109/01612840903434589

Yeh, P. M., & Bull, M. (2012). Use of the resiliency model of family stress, adjustment and adaptation in the analysis of family caregiver reaction among families of older people with congestive heart failure. International Journal of Older People Nursing, 7(2), 117-126. doi: 10.1111/j.1748-3743.2011.00275.x

Yoshioka, Eiji, Yamamoto, Shin, Yasuda, Motoji, Saijo, Yasuaki, & Kishi, Reiko. (2013). Spouse caregivers and behavioral and psychological symptoms of dementia. Aging & Mental Health, 17(8), 966-972. doi: 10.1080/13607863.2013.790927

Zarit, S. H., Femia, E. E., Kim, K., & Whitlatch, C. J. (2010). The structure of risk factors and outcomes for family caregivers: Implications for assessment and treatment. Aging & Mental Health, 14(2), 220-231. doi: 10.1080/13607860903167861

Zhang, A. Y., Zyzanski, S. J., & Siminoff, L. A. (2010). Differential patient' - caregiver opinions of treatment and care for advanced lung cancer patients. Social Science & Medicine, 70(8), 1155-1158. doi: 10.1016/j.socscimed.2009.12.023

Zucchella, C., Bartolo, M., Pasotti, C., Chiapella, L., & Sinforiani, E. (2012). Caregiver burden and coping in early-stage Alzheimer disease. Alzheimer Dis Assoc Disord, 26(1), 55-60. doi: 10.1097/WAD.0b013e31821aa6de

Zulman, D. M., Schafenacker, A., Barr, K. L., Moore, I. T., Fisher, J., McCurdy, K., et al. (2012). Adapting an in-person patient-caregiver communication intervention to a tailored web-based format. Psychooncology, 21(3), 336-341. doi: 10.1002/pon.1900

Zverova, M. (2012). Transient psychosis due to caregiver burden in a patient caring for severely demented spouses. Neuro Endocrinol Lett, 33(4), 372-374.

62 Websites:


[Back to Top]