Resources for Caregivers and Caregiving

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Resources for Caregiving

The resources I've gathered together on this page are intended to help both caregivers and the clinicians who work with them to find information, support, and other resources.

This site is designed to be fully accessible for people with disabilities; please follow this link to change text size, color, or contrast; please follow this link for other accessibility functions for those with visual, mobility, and other disabilities.

I've organized the caregiving resources into 3 categories:

a) books,

b) articles and chapters, &

c) web sites.

Currently there are 51 books, 268 articles, and 61 web sites. However, I will update the site several times a year.

PLEASE NOTE: This web site includes 10 other pages of related sets of resources:

Books:

American Cancer Society. (2008). Cancer Caregiving A-to-Z: An At-Home Guide for Patients and Families. Washington, DC: American Cancer Society
American Medical Association. (2001). American Medical Association Guide to Home Caregiving. Washington, DC: American Medical Association.
Beerman, S. (2002). Eldercare 911: The Caregiver's Complete Handbook for Making Decisions. Amherst, NY: Promethius Books.
Bernhard, T. (2010). How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers. Somerville, MA: Wisdom Publications.
Blazer, D. G. (1998). Emotional problems in later life: Intervention strategies for professional caregivers (2nd ed.). New York, NY, US: Springer Publishing Co.
Bledsoe, W. S., & Bledsoe, M. (2006). Walking together through illness: Twelve steps for caregivers and care receivers. Minneapolis, MN, US: Augsburg Fortress Publishers, Publishing House of The Evangelical Lutheran Church in America.
Bolletino, R. C. (2009). How to talk with family caregivers about cancer. New York, NY, US: W W Norton & Co.
Delaney, H., & Ginzler, E. (2005). Caring for Your Parents. New York: American Association of Retired Persons.
Denholm, D. D. (2012). The Caregiving Wife's Handbook: Compassionate Strategies, Stories of Success. Hunter House.
Gilbar, O., & Ben-Zur, H. (2002). Cancer and the family caregiver. Distress and coping. Springfield, IL, US: Charles C. Thomas Publisher.
Green, C. R., & Beloff, J. (2008). Through the seasons: An activity for memory-challenged adults and caregivers. Baltimore, MD, US: Johns Hopkins University Press.
Greenberg, T. M. (2012). When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Cedar Fort, Inc.
Haug, K. C. (1984). Christian Caregiving: A Way of Life. Grove City, OH: Augsburg Publishing House.
Ilardo, J. A., & Rothman, C. R. (1999). I'll take care of you: A practical guide for family caregivers. Oakland, CA, US: New Harbinger Publications, Inc.
Jacobs, B. J. (2006). The emotional survival guide for caregivers: Looking after yourself and your family while helping an aging parent. New York, NY, US: Guilford Press.
Kane, R., & Quellette, J. (2011). The good caregiver: A one-of-a-kind compassionate resource for anyone caring for an aging loved one. New York, NY: Avery/Penguin Group.
Kaplan, M. (1996). Clinical practice with caregivers of dementia patients. Philadelphia, PA, US: Taylor & Francis.
Keene, N. (2010). Childhood Leukemia: A guide for Families, Friends & Caregivers, 4th Edition. Sebastopol, CA: Patient Centered Guides.
Kestenbaum, Y. (2009). Whence My Help Come: Caregiving In The Jewish Tradition. Jesuralem: Mazo Publishers.
Knutson, L. (2007). Compassionate Caregiving: Practical Help and Spiritual Encouragement. Ada, MI: Bethany House.
Kramer, B. J., & Thompson, E. (Eds.). (2002). Men as caregivers: Theory, research, and service implications. New York, NY, US: Springer Publishing Co.
LeBlanc, G. J. (2011). Staying Afloat in a Sea of Forgetfulness: Common Sense Caregiving Expanded Edition. Xlibris Corporation.
LoboPrabhu, S. M., Molinari, V. A., & Lomax, J. W. (2006). Supporting the caregiver in dementia: A guide for health care professionals. Baltimore, MD, US: Johns Hopkins University Press.
Loewy, J. V., & Hara, A. F. (Eds.). (2002). Caring for the caregiver: The use of music and music therapy in grief and trauma. Silver Spring, MD, US: American Music Therapy Association.
Martin, W., & Martin, N. (2011). The Caregiver's Tao Te Ching: Compassionate Caring for Your Loved Ones and Yourself. Novato, CA: New World Library.
McBee, L. (2008). Mindfulness-based elder care: A CAM model for frail elders and their caregivers. New York, NY, US: Springer Publishing Co.
McCurry, S. M. (2006). When a family member has dementia: Steps to becoming a resilient caregiver. Westport, CT, US: Praeger Publishers/Greenwood Publishing Group.
McQuellon, R. P., & Cowan, M. A. (2010). The art of conversation through serious illness: Lessons for caregivers. New York, NY, US: Oxford University Press.
Meyer, M., & Derr, P. (2007). The Comfort of Home: A Complete Guide for Caregivers. Portland, OR: CareTrust Publications.
Miller, F., & Bachrach, S. (2006). Cerebral Palsy: A Complete Guide for Caregiving, 2nd Edition (A Johns Hopkins Press Health Book). Baltimore, MD: Johns Hopkins Press.
Miller, M. D. (2009). Clinician's guide to interpersonal psychotherapy in late life: Helping cognitively impaired or depressed elders and their caregivers. New York, NY, US: Oxford University Press.
Mills, H. L., & Casciani,J. M. (2010). Caregiving Tips for Families Managing Dementia. Kindle e-book.
Moroney, R. M., Dokecki, P. R., Gates, J. J., Haynes, K. N., Newbrough, J. R., & Nottingham, J. A. (1998). Caring & competent caregivers. Athens, GA, US: University of Georgia Press.
Murphy, B., & Roberts, L. (2007). Guide to Careiving in the Final Months of Life. Middleburg, VA: T. M. Brown Publishers.
Nouwen, H. (2011). A Spirituality of Caregiving. Upper Room.
Olshevski, J. L., Katz, A. D., & Knight, B. G. (1999). Stress reduction for caregivers. Philadelphia, PA, US: Brunner/Mazel.
Percy, K. W. (2010). Working with aging families: Therapeutic solutions for caregivers, spouses, & adult children. New York, NY, US: W W Norton & Co.
Qualls, S. H., & Williams, A. A. (2013). Caregiver family therapy: Empowering families to meet the challenges of aging. Washington, DC: American Psychological Association.
Radlin, L., & Radlin, G. (Eds.). (2003). What if it's not Alzheimer's? A caregiver's guide to dementia. Amherst, NY, US: Prometheus Books.
Rando, T. A. (Ed.). (2000). Clinical dimensions of anticipatory mourning: Theory and practice in working with the dying, their loved ones, and their caregivers. Champaign, IL, US: Research Press.
Roukema, R. W. (2003). What every patient, family, friend, and caregiver needs to know about psychiatry (2nd ed.). Arlington, VA, US: American Psychiatric Publishing, Inc.
Schulz, R. (Ed.). (2000). Handbook on dementia caregiving: Evidence-based interventions for family caregivers. New York, NY, US: Springer Publishing Co.
Sheehy, G. (2011). Passages in Caregiving: Turning Chaos into Confidence. New York: William Morrow.
Shifren, K. (Ed.). (2009). How caregiving affects development: Psychological implications for child, adolescent, and adult caregivers. Washington, DC, US: American Psychological Association.
Siles, M., & Beuret, L. J. (2006). Brain heal thyself: A caregiver's new approach to recovery from stroke, aneurysm, and traumatic brain injuries. Charlottesville, VA, US: Hampton Roads Publishing Company.
Smith, P. (2009). To weep for a stranger: Compassion fatigure in caregiving. Seattle, WA: CreateSpace.
Steere, D. A. (1997). Spiritual presence in psychotherapy: A guide for caregivers: Philadelphia, PA, US: Brunner/Mazel.
Talley, R. C., McCorkle, R., & Baile, W. F. (Eds.). (2012). Cancer caregiving in the United States: Research, practice, policy. New York, NY: Springer Science
Toseland, R. W., Haigler, D. H., & Monohan, D. J. (Eds.). (2011). Education and Support Programs for Caregivers: Research, Practice, Policy. New York: Springer.
Whiteside, J. W. (2009). The Caregiver's Compass: How to Navigate with Balance & Effectiveness Using Mindful Caregiving. CreateSpace Publisher.

Articles & Chapters:

Abdollahpour, I., Noroozian, M., Nedjat, S., & Majdzadeh, R. (2012). Caregiver Burden and its Determinants among the Family Members of Patients with Dementia in Iran. Int J Prev Med, 3(8), 544-551.

Agera-Ortiz, L., Frank-Garca, A., Gil, P., & Moreno, A. (2010). Clinical progression of moderate-to-severe Alzheimer s disease and caregiver burden: a 12-month multicenter prospective observational study. International Psychogeriatrics, 22(8), 1265-1279.

Agren, S., Evangelista, L., & Strmberg, A. (2010). Do partners of patients with chronic heart failure experience caregiver burden? European Journal of Cardiovascular Nursing, 9(4), 254-262.

Ahn, S., Hochhalter, A. K., Moudouni, D. K., Smith, M. L., & Ory, M. G. (2012). Self-reported physical and mental health of older adults: The roles of caregiving and resources.Maturitas, 71(1), 62-69. doi: 10.1016/j.maturitas.2011.10.011

Akiyama, A., Numata, K., & Mikami, H. (2010). Importance of end-of-life support to minimize caregiver's regret during bereavement of the elderly for better subsequent adaptation to bereavement. Archives of Gerontology and Geriatrics, 50(2), 175-178. doi: 10.1016/j.archger.2009.03.006

Allen, S. M., Lima, J. C., Goldscheider, F. K., & Roy, J. (2012). Primary caregiver characteristics and transitions in community-based care. J Gerontol B Psychol Sci Soc Sci, 67(3), 362-371. doi: 10.1093/geronb/gbs032

Alsafran, S. K., Davis, J., Tankel, S., Varas, R., Quintana, O., Manning, R., et al. (2012). The Impact of Caregiver Support on Mortality Following Burn Injury in the Elderly. J Burn Care Res. doi: 10.1097/BCR.0b013e31825d5552

Alwin, J., nberg, B., & Krevers, B. (2010). Support/services among family caregivers of persons with dementia'AeiPerceived importance and services received. International Journal of Geriatric Psychiatry, 25(3), 240-248. doi: 10.1002/gps.2328

Ampalam, P., Gunturu, S., & Padma, V. (2012). A comparative study of caregiver burden in psychiatric illness and chronic medical illness. Indian J Psychiatry, 54(3), 239-243. doi: 10.4103/0019-5545.102423

Anderson, J. R., & Turner, W. L. (2010). When caregivers are in need of care: African-American caregivers' preferences for their own later life care. Journal of Aging Studies, 24(1), 65-73. doi: 10.1016/j.jaging.2008.06.002

Aoun, S. M., Bentley, B., Funk, L., Toye, C., Grande, G., & Stajduhar, K. J. (2012). A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions. Palliat Med. doi: 10.1177/0269216312455729

Applebaum, A. J., & Breitbart, W. (2012). Care for the cancer caregiver: A systematic review. Palliat Support Care, 1-22. doi: 10.1017/S1478951512000594

Athay, M. M. (2012). Caregiver life satisfaction: relationship to youth symptom severity through treatment. J Clin Child Adolesc Psychol, 41(4), 433-444. doi: 10.1080/15374416.2012.684273

Au, A., Li, S., Lee, K., Leung, P., Pan, P.-C., Thompson, L., et al. (2010). The Coping With Caregiving group program for Chinese caregivers of patients with Alzheimer's disease in Hong Kong. Patient Education and Counseling, 78(2), 256-260. doi: 10.1016/j.pec.2009.06.005

Bakker, T. J., Duivenvoorden, H. J., van der Lee, J., Olde Rikkert, M. G., Beekman, A. T., & Ribbe, M. W. (2013). Benefit of an integrative psychotherapeutic nursing home program to reduce multiple psychiatric symptoms of psychogeriatric patients and caregiver burden after six months of follow-up: a re-analysis of a randomized controlled trial. Int Psychogeriatr, 25(1), 34-46. doi: 10.1017/S1041610212001305

Bass, D. M., Judge, K. S., Snow, A. L., Wilson, N. L., Looman, W. J., McCarthy, C., & Kunik, M. E. (2012). Negative Caregiving Effects Among Caregivers of Veterans With Dementia.Am J Geriatr Psychiatry. doi: 10.1097/JGP.0b013e31824108ca

Bauer, R., Spiessl, H., & Schmidt, T. (2012). Are there associations between caregiver information and suicidal behavior in psychiatric inpatients? Int J Psychiatry Clin Pract, 16(3), 238-242. doi: 10.3109/13651501.2012.687453

Beentjes, T. A., Goossens, P. J., & Poslawsky, I. E. (2012). Caregiver burden in bipolar hypomania and mania: a systematic review. Perspect Psychiatr Care, 48(4), 187-197. doi: 10.1111/j.1744-6163.2012.00328.x

Beinart, N., Weinman, J., Wade, D., & Brady, R. (2012). Caregiver burden and psychoeducational interventions in Alzheimer's disease: a review. Dement Geriatr Cogn Dis Extra, 2(1), 638-648. doi: 10.1159/000345777

Bekhet, A. K. (2012). Effects of positive cognitions and resourcefulness on caregiver burden among caregivers of persons with dementia. Int J Ment Health Nurs. doi: 10.1111/j.1447-0349.2012.00877.x

Bernabei, R., Rossini, P. M., Di Cioccio, L., Gragnaniello, D., Luda di Cortemiglia, E., Attar, M., et al. (2012). Compliance and Caregiver Satisfaction in Alzheimer's Disease: Results from the AXEPT Study. Dement Geriatr Cogn Dis Extra, 2(1), 418-432. doi: 10.1159/000338228

Bertrand, R. M., Saczynski, J. S., Mezzacappa, C., Hulse, M., Ensrud, K., & Fredman, L. (2012). Caregiving and cognitive function in older women: evidence for the healthy caregiver hypothesis. J Aging Health, 24(1), 48-66. doi: 10.1177/0898264311421367

Bertrand, R. M., Saczynski, J. S., Mezzacappa, C., Hulse, M., Ensrud, K., & Fredman, L. (2012). Caregiving and cognitive function in older women: evidence for the healthy caregiver hypothesis. J Aging Health, 24(1), 48-66. doi: 10.1177/0898264311421367

Bevans, M., & Sternberg, E. M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA, 307(4), 398-403. doi: 10.1001/jama.2012.29

Bialon, L. N., & Coke, S. (2012). A study on caregiver burden: stressors, challenges, and possible solutions. Am J Hosp Palliat Care, 29(3), 210-218. doi: 10.1177/1049909111416494

Black, S. E., Gauthier, S., Dalziel, W., Keren, R., Correia, J., Hew, H., et al. (2010). Canadian Alzheimer's Disease Caregiver Survey: Baby-boomer caregivers and burden of care.International Journal of Geriatric Psychiatry, 25(8), 807-813. doi: 10.1002/gps.2421

Bobinac, A., van Exel, N. J., Rutten, F. F., & Brouwer, W. B. (2010). Caring for and caring about: disentangling the caregiver effect and the family effect. Journal of Health Economics, 29(4), 549-556.

Boerner, K., & Mock, S. E. (2012). Impact of patient suffering on caregiver well-being: the case of amyotrophic lateral sclerosis patients and their caregivers. Psychol Health Med, 17(4), 457-466. doi: 10.1080/13548506.2011.613942

Bolden, L., & Wicks, M. N. (2010). Predictors of mental health, subjective burden, and rewards in family caregivers of patients with chronic liver disease. Archives of Psychiatric Nursing, 24(2), 89-103. doi: 10.1016/j.apnu.2009.04.010

Bouldin, E. D., & Andresen, E. (2010). Caregiving and health Aging in America, Vol 2: Physical and mental health. (pp. 81-99): Santa Barbara, CA, US: Praeger/ABC-CLIO.

Braun, M., Mura, K., Peter-Wight, M., Hornung, R., & Scholz, U. (2010). Toward a better understanding of psychological well-being in dementia caregivers: The link between marital communication and depression. Family Process, 49(2), 185-203. doi: 10.1111/j.1545-5300.2010.01317.x

Brazil, K., Bainbridge, D., & Rodriguez, C. (2010). The stress process in palliative cancer care: A qualitative study on informal caregiving and its implication for the delivery of care.American Journal of Hospice & Palliative Medicine, 27(2), 111-116. doi: 10.1177/1049909109350176

Breitborde, N. J. K., Lpez, S. R., & Kopelowicz, A. (2010). Expressed emotion and health outcomes among Mexican-Americans with schizophrenia and their caregiving relatives.Journal of Nervous and Mental Disease, 198(2), 105-109. doi: 10.1097/NMD.0b013e3181cc532d

Buchanan, R. J., & Huang, C. (2012). Caregiver perceptions of accomplishment from assisting people with multiple sclerosis. Disabil Rehabil, 34(1), 53-61. doi: 10.3109/09638288.2011.587091

Buscemi, V. r., Font, A., & Viladricht, C. (2010). Focus on relationship between the caregivers unmet needs and other caregiving outcomes in cancer palliative care. Psicooncologia, 7(1), 109-125.

Byrne, M. B., Hurley, D. A., Daly, L., & Cunningham, C. G. (2010). Health status of caregivers of children with cerebral palsy. Child Care, Health & Development, 36(5), 696-702.

Camargos, E. F., Souza, A. B., Nascimento, A. S., Morais, E. S. A. C., Quintas, J. L., Louzada, L. L., et al. (2012). Use of psychotropic medications by caregivers of elderly patients with dementia: is this a sign of caregiver burden? Arq Neuropsiquiatr, 70(3), 169-174.

Canonici, A. P., Andrade, L. P., Gobbi, S., Santos-Galduroz, R. F., Gobbi, L. T., & Stella, F. (2012). Functional dependence and caregiver burden in Alzheimer's disease: a controlled trial on the benefits of motor intervention. Psychogeriatrics, 12(3), 186-192. doi: 10.1111/j.1479-8301.2012.00407.x

Carbonneau, H. l. n., Caron, C., & Desrosiers, J. (2010). Development of a conceptual framework of positive aspects of caregiving in dementia. Dementia: The International Journal of Social Research and Practice, 9(3), 327-353. doi: 10.1177/1471301210375316

Carcone, A. I., Ellis, D. A., & Naar-King, S. (2012). Linking caregiver strain to diabetes illness management and health outcomes in a sample of adolescents in chronically poor metabolic control. J Dev Behav Pediatr, 33(4), 343-351. doi: 10.1097/DBP.0b013e31824eaac8

Carek, V., Norman, P., & Barton, J. (2010). Cognitive appraisals and posttraumatic stress disorder symptoms in informal caregivers of stroke survivors. Rehabilitation Psychology, 55(1), 91-96. doi: 10.1037/a0018417

Carlson, K. F., Meis, L. A., Jensen, A. C., Simon, A. B., Gravely, A. A., Taylor, B. C., et al. (2012). Caregiver reports of subsequent injuries among veterans with traumatic brain injury after discharge from inpatient polytrauma rehabilitation programs. J Head Trauma Rehabil, 27(1), 14-25. doi: 10.1097/HTR.0b013e318236bd86

Carr, G. F., Hayslip, B., Jr., & Gray, J. (2012). The role of caregiver burden in understanding African American custodial grandmothers. Geriatr Nurs, 33(5), 366-374. doi: 10.1016/j.gerinurse.2012.03.004

Carter, J. H., Lyons, K. S., Stewart, B. J., Archbold, P. G., & Scobee, R. (2010). Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson s disease. Movement Disorders, 25(6), 716-722.

Casale, M., & Wild, L. (2012). Effects and Processes Linking Social Support to Caregiver Health Among HIV/AIDS-Affected Carer-Child Dyads: A Critical Review of the Empirical Evidence. AIDS Behav. doi: 10.1007/s10461-012-0275-1

Cassidy, T. (2012). Benefit finding through caring: The cancer caregiver experience. Psychol Health. doi: 10.1080/08870446.2012.717623

Cavalari, R. N., & Romanczyk, R. G. (2012). Caregiver perspectives on unintentional injury risk in children with an autism spectrum disorder. J Pediatr Nurs, 27(6), 632-641. doi: 10.1016/j.pedn.2011.07.013

Chan, B. (2010). Negative caregiving experience: A predictor of high expressed emotion among caregivers of relatives with schizophrenia. Social Work in Mental Health, 8(4), 375-397. doi: 10.1080/15332980903539971

Chiambretto, P., Moroni, L., Guarnerio, C., Bertolotti, G., & Prigerson, H. G. (2010). Prolonged grief and depression in caregivers of patients in vegetative state. Brain Injury, 24(4), 581-588. doi: 10.3109/02699051003610490

Chiang, L. C., Chen, W. C., Dai, Y. T., & Ho, Y. L. (2012). The effectiveness of telehealth care on caregiver burden, mastery of stress, and family function among family caregivers of heart failure patients: a quasi-experimental study. Int J Nurs Stud, 49(10), 1230-1242. doi: 10.1016/j.ijnurstu.2012.04.013

Chien, W.-T. (2010). An overview of mutual support groups for family caregivers of people with mental health problems: Evidence on process and outcomes. In L. D. Brown & S. Wituk (Eds.), Mental health self-help: Consumer and family initiatives. (pp. 107-152). New York, NY, US: Springer Science + Business Media.

Chih, M. Y., Dubenske, L. L., Hawkins, R. P., Brown, R. L., Dinauer, S. K., Cleary, J. F., et al. (2012). Communicating advanced cancer patients' symptoms via the Internet: A pooled analysis of two randomized trials examining caregiver preparedness, physical burden, and negative mood. Palliat Med. doi: 10.1177/0269216312457213

Chio, A., Vignola, A., Mastro, E., Dei Giudici, A., Iazzolino, B., Calvo, A., et al. (2010). Neurobehavioral symptoms in ALS are negatively related to caregivers' burden and quality of life. European Journal of Neurology, 17(10), 1298-1303. doi: 10.1111/j.1468-1331.2010.03016.x

Choi, C. W., Stone, R. A., Kim, K. H., Ren, D., Schulz, R., Given, C. W., et al. (2012). Group-based trajectory modeling of caregiver psychological distress over time. Ann Behav Med, 44(1), 73-84. doi: 10.1007/s12160-012-9371-8

Chow, J. C.-C., Auh, E. Y., Scharlach, A. E., Lehning, A. J., & Goldstein, C. (2010). Types and sources of support received by family caregivers of older adults from diverse racial and ethnic groups. Journal of Ethnic & Cultural Diversity in Social Work: Innovation in Theory, Research & Practice, 19(3), 175-194. doi: 10.1080/15313204.2010.499318

Chwalisz, K., & Dollinger, S. C. (2010). Evidence-based practice with family caregivers: Decision-making strategies based on research and clinical data. In R. G. Frank, M. Rosenthall & B. Caplan (Eds.), Handbook of rehabilitation psychology, 2nd ed. (pp. 301-311): Washington, DC, US: American Psychological Association.

Cohen-Mansfield, J., & Golander, H. (2012). Analysis of caregiver perceptions of "hallucinations" in people with dementia in institutional settings. Am J Alzheimers Dis Other Demen, 27(4), 243-249. doi: 10.1177/1533317512446475

Coleman, C. I., Coleman, S. M., Vanderpoel, J., Nelson, W., Colby, J. A., Scholle, J. M., et al. (2012). Factors associated with 'caregiver burden' for atrial fibrillation patients. Int J Clin Pract, 66(10), 984-990. doi: 10.1111/j.1742-1241.2012.02996.x

Collinge, W., Kahn, J., Walton, T., Kozak, L., Bauer-Wu, S., Fletcher, K., et al. (2012). Touch, Caring, and Cancer: randomized controlled trial of a multimedia caregiver education program. Support Care Cancer. doi: 10.1007/s00520-012-1682-6

Conway, P., Boeckel, J., Shuster, L., & Wages, J. (2010). Grandparent caregivers' use of resources and services, level of burden, and factors that mediate their relationships. Journal of Intergenerational Relationships, 8(2), 128-144. doi: 10.1080/15350771003741931

Conzemius, M. G., & Evans, R. B. (2012). Caregiver placebo effect for dogs with lameness from osteoarthritis. J Am Vet Med Assoc, 241(10), 1314-1319. doi: 10.2460/javma.241.10.1314

Coon, D. W. (2005). Exploring interventions for LGBT caregivers: Issues and examples. Journal of Gay & Lesbian Social Services: Issues in Practice, Policy & Research, 18(3-4), 109-128. doi: 10.1300/J041v18n03_07

Courtenay, K., Jokinen, N. S., & Strydom, A. (2010). Caregiving and adults with intellectual disabilities affected by dementia. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 26-33. doi: 10.1111/j.1741-1130.2010.00244.x

Creedle, C., Leak, A., Deal, A. M., Walton, A. M., Talbert, G., Riff, B., et al. (2012). The impact of education on caregiver burden on two inpatient oncology units. J Cancer Educ, 27(2), 250-256. doi: 10.1007/s13187-011-0302-3

Creedle, C., Leak, A., Deal, A. M., Walton, A. M., Talbert, G., Riff, B., & Hornback, A. (2012). The Impact of Education on Caregiver Burden on Two Inpatient Oncology Units. J Cancer Educ. doi: 10.1007/s13187-011-0302-3

Cucciare, M. A., Gray, H., Azar, A., Jimenez, D., & Gallagher-Thompson, D. (2010). Exploring the relationship between physical health, depressive symptoms, and depression diagnoses in Hispanic dementia caregivers. Aging & Mental Health, 14(3), 274-282. doi: 10.1080/13607860903483128

Davies, H. D., Sridhar, S. B., Newkirk, L. A., Beaudreau, S. A., & O'Hara, R. (2012). Gender differences in sexual behaviors of AD patients and their relationship to spousal caregiver well-being. Aging Ment Health, 16(1), 89-101. doi: 10.1080/13607863.2011.609532

de la Cuesta-Benjumea, C. (2010). The legitimacy of rest: Conditions for the relief of burden in advanced dementia care-giving. Journal of Advanced Nursing, 66(5), 988-998. doi: 10.1111/j.1365-2648.2010.05261.x

Demirtepe-Saygili, D., & Bozo, O. (2010). Predicting depressive symptoms among the mothers of children with leukaemia: A caregiver stress model perspective. Psycholical Health, 1-15.

DeMond, D. (2010). Caring for the family caregiver: A spiritual journey. Journal of Religion, Spirituality & Aging, 22(1-2), 120-135. doi: 10.1080/15528030903313920

Denby, R. W. (2010). Kinship liaisons: A peer-to-peer approach to supporting kinship caregivers. Children and Youth Services Review, No Pagination Specified. doi: 10.1016/j.childyouth.2010.09.004

Denby, R. W. (2012). Parental incarceration and kinship care: caregiver experiences, child well-being, and permanency intentions. Soc Work Public Health, 27(1-2), 104-128. doi: 10.1080/19371918.2012.639639

Devito Dabbs, A., Terhorst, L., Song, M. K., Shellmer, D. A., Aubrecht, J., Connolly, M., et al. (2012). Quality of recipient-caregiver relationship and psychological distress are correlates of self-care agency after lung transplantation. Clin Transplant. doi: 10.1111/ctr.12017

Doan, Q. V., Brashear, A., Gillard, P. J., Varon, S. F., Vandenburgh, A. M., Turkel, C. C., et al. (2012). Relationship between disability and health-related quality of life and caregiver burden in patients with upper limb poststroke spasticity. PM R, 4(1), 4-10. doi: 10.1016/j.pmrj.2011.10.001

Doan, Q. V., Brashear, A., Gillard, P. J., Varon, S. F., Vandenburgh, A. M., Turkel, C. C., & Elovic, E. P. (2012). Relationship between disability and health-related quality of life and caregiver burden in patients with upper limb poststroke spasticity. PM R, 4(1), 4-10. doi: 10.1016/j.pmrj.2011.10.001

Donorfio, L. K. M., Vetter, R., & Vracevic, M. (2010). Effects of three caregiver interventions: Support, educational literature, and creative movement. Journal of Women & Aging, 22(1), 61-75. doi: 10.1080/08952840903489094

Dossa, A., Bokhour, B., & Hoenig, H. (2012). Care transitions from the hospital to home for patients with mobility impairments: patient and family caregiver experiences. Rehabil Nurs, 37(6), 277-285. doi: 10.1002/rnj.047

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Ornstein, K., & Gaugler, J. E. (2012). The problem with "problem behaviors": A systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the dementia patient–caregiver dyad. International Psychogeriatrics, 24(10), 1536-1552. doi: 10.1017/S1041610212000737

Ornstein, K., Gaugler, J. E., Devanand, D. P., Scarmeas, N., Zhu, C., & Stern, Y. (2012). The Differential Impact of Unique Behavioral and Psychological Symptoms for the Dementia Caregiver: How and Why Do Patients' Individual Symptom Clusters Impact Caregiver Depressive Symptoms? Am J Geriatr Psychiatry. doi: 10.1097/JGP.0b013e31826d6b31

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