Resources for Caregivers and Caregiving

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Resources for Caregiving

Ken Pope, Ph.D., ABPP

The resources on this page are intended to help both caregivers and the clinicians who work with them to find information, support, and other resources.

This site is designed to be fully accessible for people with disabilities; please follow this link to change text size, color, or contrast; please follow this link for other accessibility functions for those with visual, mobility, and other disabilities.

I've organized the caregiving resources into 3 categories:

a) books,

b) articles and chapters, &

c) web sites.

Currently there are 48 books, 303 chapters and articles, and 62 web sites. However, I will update the site several times a year.

PLEASE NOTE: This web site includes 8 other pages of related sets of resources:

Books:

American Cancer Society. (2008). Cancer Caregiving A-to-Z: An At-Home Guide for Patients and Families. Washington, DC: American Cancer Society
American Medical Association. (2001). American Medical Association Guide to Home Caregiving. Washington, DC: American Medical Association.
Beerman, S. (2002). Eldercare 911: The Caregiver's Complete Handbook for Making Decisions. Amherst, NY: Promethius Books.
Bernhard, T., & Boorstein, S. (2010). How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers. Somerville, MA: Wisdom Publications.
Blazer, D. G. (1998). Emotional problems in later life: Intervention strategies for professional caregivers (2nd ed.). New York, NY, US: Springer Publishing Co.
Bledsoe, W. S., & Bledsoe, M. (2006). Walking together through illness: Twelve steps for caregivers and care receivers. Minneapolis, MN, US: Augsburg Fortress Publishers, Publishing House of The Evangelical Lutheran Church in America.
Bolletino, R. C. (2009). How to talk with family caregivers about cancer. New York, NY, US: W W Norton & Co.
Delaney, H., & Ginzler, E. (2005). Caring for Your Parents. New York: American Association of Retired Persons.
Denholm, D. D. (2012). The Caregiving Wife's Handbook: Compassionate Strategies, Stories of Success. Hunter House.
Gilbar, O., & Ben-Zur, H. (2002). Cancer and the family caregiver. Distress and coping. Springfield, IL, US: Charles C. Thomas Publisher.
Green, C. R., & Beloff, J. (2008). Through the seasons: An activity for memory-challenged adults and caregivers. Baltimore, MD, US: Johns Hopkins University Press.
Greenberg, T. M. (2012). When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Cedar Fort, Inc.
Haug, K. C. (1984). Christian Caregiving: A Way of Life. Grove City, OH: Augsburg Publishing House.
Ilardo, J. A., & Rothman, C. R. (1999). I'll take care of you: A practical guide for family caregivers. Oakland, CA, US: New Harbinger Publications, Inc.
Jacobs, B. J. (2006). The emotional survival guide for caregivers: Looking after yourself and your family while helping an aging parent. New York, NY, US: Guilford Press.
Kane, R., & Quellette, J. (2011). The good caregiver: A one-of-a-kind compassionate resource for anyone caring for an aging loved one. New York, NY: Avery/Penguin Group.
Kaplan, M. (1996). Clinical practice with caregivers of dementia patients. Philadelphia, PA, US: Taylor & Francis.
Keene, N. (2010). Childhood Leukemia: A guide for Families, Friends & Caregivers, 4th Edition. Sebastopol, CA: Patient Centered Guides.
Kestenbaum, Y. (2009). Whence My Help Come: Caregiving In The Jewish Tradition. Jesuralem: Mazo Publishers.
Knutson, L. (2007). Compassionate Caregiving: Practical Help and Spiritual Encouragement. Ada, MI: Bethany House.
Kramer, B. J., & Thompson, E. (Eds.). (2002). Men as caregivers: Theory, research, and service implications. New York, NY, US: Springer Publishing Co.
LeBlanc, G. J. (2011). Staying Afloat in a Sea of Forgetfulness: Common Sense Caregiving Expanded Edition. Xlibris Corporation.
LoboPrabhu, S. M., Molinari, V. A., & Lomax, J. W. (2006). Supporting the caregiver in dementia: A guide for health care professionals. Baltimore, MD, US: Johns Hopkins University Press.
Loewy, J. V., & Hara, A. F. (Eds.). (2002). Caring for the caregiver: The use of music and music therapy in grief and trauma. Silver Spring, MD, US: American Music Therapy Association.
Martin, W., & Martin, N. (2011). The Caregiver's Tao Te Ching: Compassionate Caring for Your Loved Ones and Yourself. Novato, CA: New World Library.
McBee, L. (2008). Mindfulness-based elder care: A CAM model for frail elders and their caregivers. New York, NY, US: Springer Publishing Co.
McCurry, S. M. (2006). When a family member has dementia: Steps to becoming a resilient caregiver. Westport, CT, US: Praeger Publishers/Greenwood Publishing Group.
McQuellon, R. P., & Cowan, M. A. (2010). The art of conversation through serious illness: Lessons for caregivers. New York, NY, US: Oxford University Press.
Meyer, M., & Derr, P. (2007). The Comfort of Home: A Complete Guide for Caregivers. Portland, OR: CareTrust Publications.
Miller, F., & Bachrach, S. (2006). Cerebral Palsy: A Complete Guide for Caregiving, 2nd Edition (A Johns Hopkins Press Health Book). Baltimore, MD: Johns Hopkins Press.
Miller, M. D. (2009). Clinician's guide to interpersonal psychotherapy in late life: Helping cognitively impaired or depressed elders and their caregivers. New York, NY, US: Oxford University Press.
Mills, H. L., & Casciani,J. M. (2010). Caregiving Tips for Families Managing Dementia. Kindle e-book.
Moroney, R. M., Dokecki, P. R., Gates, J. J., Haynes, K. N., Newbrough, J. R., & Nottingham, J. A. (1998). Caring & competent caregivers. Athens, GA, US: University of Georgia Press.
Murphy, B., & Roberts, L. (2007). Guide to Careiving in the Final Months of Life. Middleburg, VA: T. M. Brown Publishers.
Nouwen, H. (2011). A Spirituality of Caregiving. Upper Room.
Olshevski, J. L., Katz, A. D., & Knight, B. G. (1999). Stress reduction for caregivers. Philadelphia, PA, US: Brunner/Mazel.
Percy, K. W. (2010). Working with aging families: Therapeutic solutions for caregivers, spouses, & adult children. New York, NY, US: W W Norton & Co.
Radlin, L., & Radlin, G. (Eds.). (2003). What if it's not Alzheimer's? A caregiver's guide to dementia. Amherst, NY, US: Prometheus Books.
Rando, T. A. (Ed.). (2000). Clinical dimensions of anticipatory mourning: Theory and practice in working with the dying, their loved ones, and their caregivers. Champaign, IL, US: Research Press.
Roukema, R. W. (2003). What every patient, family, friend, and caregiver needs to know about psychiatry (2nd ed.). Arlington, VA, US: American Psychiatric Publishing, Inc.
Schulz, R. (Ed.). (2000). Handbook on dementia caregiving: Evidence-based interventions for family caregivers. New York, NY, US: Springer Publishing Co.
Sheehy, G. (2011). Passages in Caregiving: Turning Chaos into Confidence. New York: William Morrow.
Shifren, K. (Ed.). (2009). How caregiving affects development: Psychological implications for child, adolescent, and adult caregivers. Washington, DC, US: American Psychological Association.
Siles, M., & Beuret, L. J. (2006). Brain heal thyself: A caregiver's new approach to recovery from stroke, aneurysm, and traumatic brain injuries. Charlottesville, VA, US: Hampton Roads Publishing Company.
Smith, P. (2009). To weep for a stranger: Compassion fatigure in caregiving. Seattle, WA: CreateSpace.
Steere, D. A. (1997). Spiritual presence in psychotherapy: A guide for caregivers: Philadelphia, PA, US: Brunner/Mazel.
Toseland, R. W., Haigler, D. H., & Monohan, D. J. (Eds.). (2011). Education and Support Programs for Caregivers: Research, Practice, Policy. New York: Springer.
Whiteside, J. W. (2009). The Caregiver's Compass: How to Navigate with Balance & Effectiveness Using Mindful Caregiving. CreateSpace Publisher.

Articles & Chapters:

Agera-Ortiz, L., Frank-Garca, A., Gil, P., & Moreno, A. (2010). Clinical progression of moderate-to-severe Alzheimer s disease and caregiver burden: a 12-month multicenter prospective observational study. International Psychogeriatrics, 22(8), 1265-1279.

Agren, S., Evangelista, L., & Strmberg, A. (2010). Do partners of patients with chronic heart failure experience caregiver burden? European Journal of Cardiovascular Nursing, 9(4), 254-262.

Ahn, S., Hochhalter, A. K., Moudouni, D. K., Smith, M. L., & Ory, M. G. (2012). Self-reported physical and mental health of older adults: The roles of caregiving and resources. Maturitas, 71(1), 62-69. doi: 10.1016/j.maturitas.2011.10.011

Akiyama, A., Numata, K., & Mikami, H. (2010). Importance of end-of-life support to minimize caregiver's regret during bereavement of the elderly for better subsequent adaptation to bereavement. Archives of Gerontology and Geriatrics, 50(2), 175-178. doi: 10.1016/j.archger.2009.03.006

Allen, R. S., Haley, W. E., Roff, L. L., Schmid, B., & Bergman, E. J. (2006). Responding to the Needs of Caregivers Near the End of Life: Enhancing Benefits and Minimizing Burdens. In J. Werth & D. Blevins (Eds.), Psychosocial issues near the end of life: A resource for professional care providers. (pp. 183-201): Washington, DC, US: American Psychological Association.

Alwin, J., nberg, B., & Krevers, B. (2010). Support/services among family caregivers of persons with dementia'AeiPerceived importance and services received. International Journal of Geriatric Psychiatry, 25(3), 240-248. doi: 10.1002/gps.2328

Anderson, J. R., & Turner, W. L. (2010). When caregivers are in need of care: African-American caregivers' preferences for their own later life care. Journal of Aging Studies, 24(1), 65-73. doi: 10.1016/j.jaging.2008.06.002

Andren, S., & Elmstahl, S. (2008). Effective psychosocial intervention for family caregivers lengthens time elapsed before nursing home placement of individuals with dementia: A five year follow-up study. International Psychogeriatrics, 20(6), 1177-1192. doi: 10.1017/s1041610208007503

Andrew, M., Farhall, J., Ong, B., & Waddell, F. (2009). Perceptions of mental health professionals and family caregivers about their collaborative relationships: A factor analytic study. Australian Psychologist, 44(2), 94-104. doi: 10.1080/00050060902733719

Au, A., Lai, M.-K., Lau, K.-M., Pan, P.-C., Lam, L., Thompson, L., et al. (2009). Social support and well-being in dementia family caregivers: The mediating role of self-efficacy. Aging & Mental Health, 13(5), 761-768. doi: 10.1080/13607860902918223

Au, A., Li, S., Lee, K., Leung, P., Pan, P.-C., Thompson, L., et al. (2010). The Coping With Caregiving group program for Chinese caregivers of patients with Alzheimer's disease in Hong Kong. Patient Education and Counseling, 78(2), 256-260. doi: 10.1016/j.pec.2009.06.005

Bachner, Y. G., & Carmel, S. (2009). Open communication between caregivers and terminally ill cancer patients: The role of caregivers' characteristics and situational variables. Health Communication, 24(6), 524-531. doi: 10.1080/10410230903104913

Bachner, Y. G., Karus, D. G., & Raveis, V. H. (2009). Examining the social context in the caregiving experience: Correlates of global self-esteem among adult daughter caregivers to an older parent with cancer. Journal of Aging and Health, 21(7), 1016-1039. doi: 10.1177/0898264309344320

Bacon, E., Milne, D. L., Sheikh, A. I., & Freeston, M. H. (2009). Positive experiences in caregivers: An exploratory case series. Behavioural and Cognitive Psychotherapy, 37(1), 95-114. doi: 10.1017/s1352465808005055

Barnard-Brak, L., & Thomson, D. (2009). How is taking care of caregivers of children with disabilities related to academic achievement? Child & Youth Care Forum, 38(2), 91-102. doi: 10.1007/s10566-009-9070-1

Bass, D. M., Judge, K. S., Snow, A. L., Wilson, N. L., Looman, W. J., McCarthy, C., . . . Kunik, M. E. (2012). Negative Caregiving Effects Among Caregivers of Veterans With Dementia. Am J Geriatr Psychiatry. doi: 10.1097/JGP.0b013e31824108ca

Betrabet Gulwadi, G. (2009). Restorative home environments for family caregivers. Journal of Aging Studies, 23(3), 197-204. doi: 10.1016/j.jaging.2007.11.005

Bertrand, R. M., Saczynski, J. S., Mezzacappa, C., Hulse, M., Ensrud, K., & Fredman, L. (2012). Caregiving and cognitive function in older women: evidence for the healthy caregiver hypothesis. J Aging Health, 24(1), 48-66. doi: 10.1177/0898264311421367

Bevans, M., & Sternberg, E. M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA, 307(4), 398-403. doi: 10.1001/jama.2012.29

Black, S. E., Gauthier, S., Dalziel, W., Keren, R., Correia, J., Hew, H., et al. (2010). Canadian Alzheimer's Disease Caregiver Survey: Baby-boomer caregivers and burden of care. International Journal of Geriatric Psychiatry, 25(8), 807-813. doi: 10.1002/gps.2421

Bobinac, A., van Exel, N. J., Rutten, F. F., & Brouwer, W. B. (2010). Caring for and caring about: disentangling the caregiver effect and the family effect. Journal of Health Economics, 29(4), 549-556.

Bolden, L., & Wicks, M. N. (2010). Predictors of mental health, subjective burden, and rewards in family caregivers of patients with chronic liver disease. Archives of Psychiatric Nursing, 24(2), 89-103. doi: 10.1016/j.apnu.2009.04.010

Bormann, J., Warren, K. A., Regalbuto, L., Glaser, D., Kelly, A., Schnack, J., et al. (2009). A spiritually based caregiver intervention with telephone delivery for family caregivers of veterans with dementia. Family & Community Health: The Journal of Health Promotion & Maintenance, 32(4), 345-353.

Bouldin, E. D., & Andresen, E. (2010). Caregiving and health Aging in America, Vol 2: Physical and mental health. (pp. 81-99): Santa Barbara, CA, US: Praeger/ABC-CLIO.

Braun, M., Mura, K., Peter-Wight, M., Hornung, R., & Scholz, U. (2010). Toward a better understanding of psychological well-being in dementia caregivers: The link between marital communication and depression. Family Process, 49(2), 185-203. doi: 10.1111/j.1545-5300.2010.01317.x

Brazil, K., Bainbridge, D., & Rodriguez, C. (2010). The stress process in palliative cancer care: A qualitative study on informal caregiving and its implication for the delivery of care. American Journal of Hospice & Palliative Medicine, 27(2), 111-116. doi: 10.1177/1049909109350176

Breitborde, N. J. K., Lpez, S. R., Chang, C., Kopelowicz, A., & Zarate, R. (2009). Emotional over-involvement can be deleterious for caregivers'Aeo health: Mexican Americans caring for a relative with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 44(9), 716-723. doi: 10.1007/s00127-008-0492-0

Breitborde, N. J. K., Lpez, S. R., & Kopelowicz, A. (2010). Expressed emotion and health outcomes among Mexican-Americans with schizophrenia and their caregiving relatives. Journal of Nervous and Mental Disease, 198(2), 105-109. doi: 10.1097/NMD.0b013e3181cc532d

Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behrman, R., Compas, B. E., et al. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatric Psychology, 33(4), 408-421. doi: 10.1093/jpepsy/jsm079

Brown, S. L., Smith, D. M., Schulz, R., Kabeto, M. U., Ubel, P. A., Poulin, M., et al. (2009). Caregiving behavior is associated with decreased mortality risk. Psychological Science, 20(4), 488-494. doi: 10.1111/j.1467-9280.2009.02323.x

Buffum, M. D. (2009). The role of family caregivers in pain management in patients with dementia. Journal of Pain Management, 1(4), 339-343.

Buscemi, V. r., Font, A., & Viladricht, C. (2010). Focus on relationship between the caregivers unmet needs and other caregiving outcomes in cancer palliative care. Psicooncologia, 7(1), 109-125.

Byrne, M. B., Hurley, D. A., Daly, L., & Cunningham, C. G. (2010). Health status of caregivers of children with cerebral palsy. Child Care, Health & Development, 36(5), 696-702.

Carbonneau, H. l. n., Caron, C., & Desrosiers, J. (2010). Development of a conceptual framework of positive aspects of caregiving in dementia. Dementia: The International Journal of Social Research and Practice, 9(3), 327-353. doi: 10.1177/1471301210375316

Carek, V., Norman, P., & Barton, J. (2010). Cognitive appraisals and posttraumatic stress disorder symptoms in informal caregivers of stroke survivors. Rehabilitation Psychology, 55(1), 91-96. doi: 10.1037/a0018417

Carter, J. H., Lyons, K. S., Stewart, B. J., Archbold, P. G., & Scobee, R. (2010). Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson s disease. Movement Disorders, 25(6), 716-722.

Cassie, K. M., & Sanders, S. (2009). Familial caregivers of older adults. In S. M. Cummings & N. P. Kropf (Eds.), Handbook of psychosocial interventions with older adults: Evidence-based approaches. (pp. 280-307): New York, NY, US: Routledge/Taylor & Francis Group.

Chan, B. (2010). Negative caregiving experience: A predictor of high expressed emotion among caregivers of relatives with schizophrenia. Social Work in Mental Health, 8(4), 375-397. doi: 10.1080/15332980903539971

Chappell, N. L., & Dujela, C. (2009). Caregivers--Who copes how? The International Journal of Aging & Human Development, 69(3), 221-244. doi: 10.2190/AG.69.3.d

Chessick, C. A., Perlick, D. A., Miklowitz, D. J., Dickinson, L. M., Allen, M. H., Morris, C. D., et al. (2009). Suicidal ideation and depressive symptoms among bipolar patients as predictors of the health and well-being of caregivers. Bipolar Disorders, 11(8), 876-884. doi: 10.1111/j.1399-5618.2009.00765.x

Chiambretto, P., Moroni, L., Guarnerio, C., Bertolotti, G., & Prigerson, H. G. (2010). Prolonged grief and depression in caregivers of patients in vegetative state. Brain Injury, 24(4), 581-588. doi: 10.3109/02699051003610490

Chien, W.-T. (2010). An overview of mutual support groups for family caregivers of people with mental health problems: Evidence on process and outcomes. In L. D. Brown & S. Wituk (Eds.), Mental health self-help: Consumer and family initiatives. (pp. 107-152). New York, NY, US: Springer Science + Business Media.

Chien, W.-T., & Norman, I. (2009). The effectiveness and active ingredients of mutual support groups for family caregivers of people with psychotic disorders: A literature review. International Journal of Nursing Studies, 46(12), 1604-1623. doi: 10.1016/j.ijnurstu.2009.04.003

Chio, A., Vignola, A., Mastro, E., Dei Giudici, A., Iazzolino, B., Calvo, A., et al. (2010). Neurobehavioral symptoms in ALS are negatively related to caregivers' burden and quality of life. European Journal of Neurology, 17(10), 1298-1303. doi: 10.1111/j.1468-1331.2010.03016.x

Chow, J. C.-C., Auh, E. Y., Scharlach, A. E., Lehning, A. J., & Goldstein, C. (2010). Types and sources of support received by family caregivers of older adults from diverse racial and ethnic groups. Journal of Ethnic & Cultural Diversity in Social Work: Innovation in Theory, Research & Practice, 19(3), 175-194. doi: 10.1080/15313204.2010.499318

Chwalisz, K., & Dollinger, S. C. (2010). Evidence-based practice with family caregivers: Decision-making strategies based on research and clinical data. In R. G. Frank, M. Rosenthall & B. Caplan (Eds.), Handbook of rehabilitation psychology, 2nd ed. (pp. 301-311): Washington, DC, US: American Psychological Association.

Clay, O. J., Roth, D. L., Wadley, V. G., & Haley, W. E. (2008). Changes in social support and their impact on psychosocial outcome over a 5-year period for African American and White dementia caregivers. International Journal of Geriatric Psychiatry, 23(8), 857-862. doi: 10.1002/gps.1996

Connell, C. M., & Janevic, M. R. (2009). Effects of a telephone-based exercise intervention for dementia caregiving wives: A randomized controlled trial. Journal of Applied Gerontology, 28(2), 171-194. doi: 10.1177/0733464808326951

Conway, P., Boeckel, J., Shuster, L., & Wages, J. (2010). Grandparent caregivers' use of resources and services, level of burden, and factors that mediate their relationships. Journal of Intergenerational Relationships, 8(2), 128-144. doi: 10.1080/15350771003741931

Coon, D. W. (2005). Exploring interventions for LGBT caregivers: Issues and examples. Journal of Gay & Lesbian Social Services: Issues in Practice, Policy & Research, 18(3-4), 109-128. doi: 10.1300/J041v18n03_07

Coon, D. W., Rubert, M., Solano, N., Mausbach, B., Kraemer, H., Argulles, T., et al. (2004). Well-being, appraisal, and coping in Latina and Caucasian female dementia caregivers: Findings from the REACH study. Aging & Mental Health, 8(4), 330-345. doi: 10.1080/13607860410001709683

Coon, D. W., Thompson, L., Steffen, A., Sorocco, K., & Gallagher-Thompson, D. (2003). Anger and Depression Management: Psychoeducational Skill Training Interventions for Women Caregivers of a Relative With Dementia. The Gerontologist, 43(5), 678-689.

Coon, D. W., & Thompson, L. W. (2002). Family caregiving for older adults: Ongoing and emergent themes for the behavior therapist. The Behavior Therapist, 25(1), 17-20.

Corman, M. K. (2009). The positives of caregiving: Mothers'Aeo experiences caregiving for a child with autism. Families in Society, 90(4), 439-445.

Courtenay, K., Jokinen, N. S., & Strydom, A. (2010). Caregiving and adults with intellectual disabilities affected by dementia. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 26-33. doi: 10.1111/j.1741-1130.2010.00244.x

Creedle, C., Leak, A., Deal, A. M., Walton, A. M., Talbert, G., Riff, B., & Hornback, A. (2012). The Impact of Education on Caregiver Burden on Two Inpatient Oncology Units. J Cancer Educ. doi: 10.1007/s13187-011-0302-3

Crowther, M., & Austin, A. (2009). The cultural context of clinical work with aging caregivers Aging families and caregiving. (pp. 45-60): Hoboken, NJ, US: John Wiley & Sons Inc.

Cucciare, M. A., Gray, H., Azar, A., Jimenez, D., & Gallagher-Thompson, D. (2010). Exploring the relationship between physical health, depressive symptoms, and depression diagnoses in Hispanic dementia caregivers. Aging & Mental Health, 14(3), 274-282. doi: 10.1080/13607860903483128

D'Amelio, M., Terruso, V., Palmeri, B., Di Benedetto, N., Famoso, G., Cottone, P., et al. (2009). Predictors of caregiver burden in partners of patients with Parkinson'Aeos disease. Neurological Sciences, 30(2), 171-174. doi: 10.1007/s10072-009-0024-z

Daly, B. J., Douglas, S., Lipson, A., & Foley, H. (2009). Needs of older caregivers of patients with advanced cancer. Journal of the American Geriatrics Society, 57(Suppl 2), S293-S295. doi: 10.1111/j.1532-5415.2009.02516.x

Davis, L. C., Sander, A. M., Struchen, M. A., Sherer, M., Nakase-Richardson, R., & Malec, J. F. (2009). Medical and psychosocial predictors of caregiver distress and perceived burden following traumatic brain injury. The Journal of Head Trauma Rehabilitation, 24(3), 145-154. doi: 10.1097/HTR.0b013e3181a0b291

de la Cuesta-Benjumea, C. (2010). The legitimacy of rest: Conditions for the relief of burden in advanced dementia care-giving. Journal of Advanced Nursing, 66(5), 988-998. doi: 10.1111/j.1365-2648.2010.05261.x

Demirtepe-Saygili, D., & Bozo, O. (2010). Predicting depressive symptoms among the mothers of children with leukaemia: A caregiver stress model perspective. Psycholical Health, 1-15.

DeMond, D. (2010). Caring for the family caregiver: A spiritual journey. Journal of Religion, Spirituality & Aging, 22(1-2), 120-135. doi: 10.1080/15528030903313920

Denby, R. W. (2010). Kinship liaisons: A peer-to-peer approach to supporting kinship caregivers. Children and Youth Services Review, No Pagination Specified. doi: 10.1016/j.childyouth.2010.09.004

DeSanto-Madeya, S., Nilsson, M., Loggers, E. T., Paulk, E., Stieglitz, H., Kupersztoch, Y. M., et al. (2009). Associations between United States acculturation and the end-of-life experience of caregivers of patients with advanced cancer. Journal of Palliative Medicine, 12(12), 1143-1149. doi: 10.1089/jpm.2009.0063

Diwan, S., Hougham, G. W., & Sachs, G. A. (2009). Chronological patterns and issues precipitating grieving over the course of caregiving among family caregivers of persons with dementia. Clinical Gerontologist: The Journal of Aging and Mental Health, 32(4), 358-370. doi: 10.1080/07317110903110179

Doan, Q. V., Brashear, A., Gillard, P. J., Varon, S. F., Vandenburgh, A. M., Turkel, C. C., & Elovic, E. P. (2012). Relationship between disability and health-related quality of life and caregiver burden in patients with upper limb poststroke spasticity. PM R, 4(1), 4-10. doi: 10.1016/j.pmrj.2011.10.001

Donnelly, M., Anderson, L. A., Johnston, B. T., Watson, R. G. P., Murphy, S. J., Comber, H., et al. (2008). Oesophageal cancer: Caregiver mental health and strain. Psycho-Oncology, 17(12), 1196-1201. doi: 10.1002/pon.1337

Donorfio, L. K. M., Vetter, R., & Vracevic, M. (2010). Effects of three caregiver interventions: Support, educational literature, and creative movement. Journal of Women & Aging, 22(1), 61-75. doi: 10.1080/08952840903489094

Driscoll, K. A., Johnson, S. B., Barker, D., Quittner, A. L., Deeb, L. C., Geller, D. E., et al. (2010). Risk factors associated with depressive symptoms in caregivers of children with type 1 diabetes or cystic fibrosis. Journal of Pediatric Psychology, 35(8), 814-822. doi: 10.1093/jpepsy/jsp138

Drossel, C., Fisher, J. E., & Mercer, V. (2010). A dbt skills training group for family caregivers of persons with dementia. Behavior Therapy, No Pagination Specified. doi: 10.1016/j.beth.2010.06.001

Ducharme, F., Beaudet, L., Legault, A., Kergoat, M.-J., L(c)vesque, L., & Caron, C. (2009). Development of an intervention program for Alzheimer'Aeos family caregivers following diagnostic disclosure. Clinical Nursing Research, 18(1), 44-67. doi: 10.1177/1054773808330093

Duggleby, W., Williams, A., Wright, K., & Bollinger, S. (2009). Renewing everyday hope: The hope experience of family caregivers of persons with dementia. Issues in Mental Health Nursing, 30(8), 514-521. doi: 10.1080/01612840802641727

Dyck, C. (2009). Who cares for the caregiver? Parkinsonism & Related Disorders, 15(Suppl 3), S118-S121. doi: 10.1016/s1353-8020(09)70796-5

Elliott, A. F., Burgio, L. D., & Decoster, J. (2010). Enhancing caregiver health: findings from the resources for enhancing Alzheimer s caregiver health II intervention. Journal of the American Geriatric Society, 58(1), 30-37.

Elliott, T. R., & Berry, J. W. (2009). Brief problem-solving training for family caregivers of persons with recent-onset spinal cord injuries: A randomized controlled trial. Journal of Clinical Psychology, 65(4), 406-422. doi: 10.1002/jclp.20527

Elliott, T. R., Berry, J. W., & Grant, J. S. (2009). Problem-solving training for family caregivers of women with disabilities: A randomized clinical trial. Behaviour Research and Therapy, 47(7), 548-558. doi: 10.1016/j.brat.2009.03.006

Elmore, D. L., & Talley, R. C. (2009). Family caregiving and U.S. federal policy. In S. H. Qualls (Ed.), Aging families and caregiving (pp. 209-231): Hoboken, NJ, US: John Wiley & Sons Inc.

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Wogrin, C. (2009). Interventions for caregivers suffering from compassion fatigue or burnout. In D. E. Balk & C. A. Corr (Eds.), Adolescent encounters with death, bereavement, and coping. (pp. 363-380): New York, NY, US: Springer Publishing Co.

Wolfe-Christensen, C., Mullins, L. L., Fedele, D. A., Rambo, P. L., Eddington, A., & Carpentier, M. Y. (2010). The relation of caregiver demand to adjustment outcomes in children with cancer: The moderating role of parenting stress. Children's Health Care, 39(2), 108-124. doi: 10.1080/02739611003679881

Wolff, J. L., Rand-Giovannetti, E., Palmer, S., Wegener, S., Reider, L., Frey, K., et al. (2009). Caregiving and chronic care: The guided care program for families and friends. The Journals of Gerontology: Series A: Biological Sciences and Medical Sciences, 64A(7), 785-791. doi: 10.1093/gerona/glp030

Wolpe, G. I. (2009). Ethical issues in caregiving The Penn Center guide to bioethics. (pp. 203-210): New York, NY, US: Springer Publishing Co.

Wright, M. J., Battista, M. A., Pate, D. S., Hierholzer, R., Mogelof, J., & Howsepian, A. A. (2010). Domain-specific associations between burden and mood state in dementia caregivers. Clinical Gerontologist: The Journal of Aging and Mental Health, 33(3), 237-247. doi: 10.1080/07317111003773601

Yamaki, K., Hsieh, K., & Heller, T. (2009). Health profile of aging family caregivers supporting adults with intellectual and developmental disabilities at home. Intellectual and Developmental Disabilities, 47(6), 425-435. doi: 10.1352/1934-9556-47.6.425

Yamamoto, Y., Hayashino, Y., Higashi, T., Matsui, M., Yamazaki, S., Takegami, M., et al. (2010). Keeping vulnerable elderly patients free from pressure ulcer is associated with high caregiver burden in informal caregivers. Journal of Evaluation in Clinical Practice, 16(3), 585-589.

Yeager, C. A., Hyer, L. A., Hobbs, B., & Coyne, A. C. (2010). Alzheimer's disease and vascular dementia: The complex relationship between diagnosis and caregiver burden. Issues in Mental Health Nursing, 31(6), 376-384. doi: 10.3109/01612840903434589

Zabala, M. J., Macdonald, P., & Treasure, J. (2009). Appraisal of caregiving burden, expressed emotion and psychological distress in families of people with eating disorders: A systematic review. European Eating Disorders Review, 17(5), 338-349. doi: 10.1002/erv.925

Zarit, J. (2009). Assessment and intervention with family caregivers Aging families and caregiving. (pp. 113-131): Hoboken, NJ, US: John Wiley & Sons Inc.

Zarit, S. H. (2009). Empirically supported treatment for family caregivers Aging families and caregiving. (pp. 131-153): Hoboken, NJ, US: John Wiley & Sons Inc.

Zarit, S. H. (2009). Epilogue: Future directions in family caregiving: Clinical, policy, and research initiatives Aging families and caregiving. (pp. 311-317): Hoboken, NJ, US: John Wiley & Sons Inc.

Zarit, S. H., Femia, E. E., Kim, K., & Whitlatch, C. J. (2010). The structure of risk factors and outcomes for family caregivers: Implications for assessment and treatment. Aging & Mental Health, 14(2), 220-231. doi: 10.1080/13607860903167861

Zauszniewski, J. A., Bekhet, A. K., & Suresky, M. J. (2009). Effects on resilience of women family caregivers of adults with serious mental illness: The role of positive cognitions. Archives of Psychiatric Nursing, 23(6), 412-422. doi: 10.1016/j.apnu.2008.12.004

Zhang, A. Y., Zyzanski, S. J., & Siminoff, L. A. (2010). Differential patient'Aeicaregiver opinions of treatment and care for advanced lung cancer patients. Social Science & Medicine, 70(8), 1155-1158. doi: 10.1016/j.socscimed.2009.12.023

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