Caregiver Resources

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Resources for Caregiving

Ken Pope, Ph.D., ABPP

The resources on this page are intended to help both caregivers and the clinicians who work with them to find information, support, and other resources.

This site is designed to be fully accessible for people with disabilities; please follow this link to change text size, color, or contrast; please follow this link for other accessibility functions for those with visual, mobility, and other disabilities.

I've organized the caregiving resources into 3 categories:

a) books,

b) articles and chapters, &

c) web sites.

Currently there are 48 books, 303 chapters and articles, and 62 web sites. However, I will update the site several times a year.

PLEASE NOTE: This web site includes 8 other pages of related sets of resources:

Books:

Articles & Chapters:

Agera-Ortiz, L., Frank-Garca, A., Gil, P., & Moreno, A. (2010). Clinical progression of moderate-to-severe Alzheimer s disease and caregiver burden: a 12-month multicenter prospective observational study. International Psychogeriatrics, 22(8), 1265-1279.

Agren, S., Evangelista, L., & Strmberg, A. (2010). Do partners of patients with chronic heart failure experience caregiver burden? European Journal of Cardiovascular Nursing, 9(4), 254-262.

Ahn, S., Hochhalter, A. K., Moudouni, D. K., Smith, M. L., & Ory, M. G. (2012). Self-reported physical and mental health of older adults: The roles of caregiving and resources. Maturitas, 71(1), 62-69. doi: 10.1016/j.maturitas.2011.10.011

Akiyama, A., Numata, K., & Mikami, H. (2010). Importance of end-of-life support to minimize caregiver's regret during bereavement of the elderly for better subsequent adaptation to bereavement. Archives of Gerontology and Geriatrics, 50(2), 175-178. doi: 10.1016/j.archger.2009.03.006

Allen, R. S., Haley, W. E., Roff, L. L., Schmid, B., & Bergman, E. J. (2006). Responding to the Needs of Caregivers Near the End of Life: Enhancing Benefits and Minimizing Burdens. In J. Werth & D. Blevins (Eds.), Psychosocial issues near the end of life: A resource for professional care providers. (pp. 183-201): Washington, DC, US: American Psychological Association.

Alwin, J., nberg, B., & Krevers, B. (2010). Support/services among family caregivers of persons with dementia'AeiPerceived importance and services received. International Journal of Geriatric Psychiatry, 25(3), 240-248. doi: 10.1002/gps.2328

Anderson, J. R., & Turner, W. L. (2010). When caregivers are in need of care: African-American caregivers' preferences for their own later life care. Journal of Aging Studies, 24(1), 65-73. doi: 10.1016/j.jaging.2008.06.002

Andren, S., & Elmstahl, S. (2008). Effective psychosocial intervention for family caregivers lengthens time elapsed before nursing home placement of individuals with dementia: A five year follow-up study. International Psychogeriatrics, 20(6), 1177-1192. doi: 10.1017/s1041610208007503

Andrew, M., Farhall, J., Ong, B., & Waddell, F. (2009). Perceptions of mental health professionals and family caregivers about their collaborative relationships: A factor analytic study. Australian Psychologist, 44(2), 94-104. doi: 10.1080/00050060902733719

Au, A., Lai, M.-K., Lau, K.-M., Pan, P.-C., Lam, L., Thompson, L., et al. (2009). Social support and well-being in dementia family caregivers: The mediating role of self-efficacy. Aging & Mental Health, 13(5), 761-768. doi: 10.1080/13607860902918223

Au, A., Li, S., Lee, K., Leung, P., Pan, P.-C., Thompson, L., et al. (2010). The Coping With Caregiving group program for Chinese caregivers of patients with Alzheimer's disease in Hong Kong. Patient Education and Counseling, 78(2), 256-260. doi: 10.1016/j.pec.2009.06.005

Bachner, Y. G., & Carmel, S. (2009). Open communication between caregivers and terminally ill cancer patients: The role of caregivers' characteristics and situational variables. Health Communication, 24(6), 524-531. doi: 10.1080/10410230903104913

Bachner, Y. G., Karus, D. G., & Raveis, V. H. (2009). Examining the social context in the caregiving experience: Correlates of global self-esteem among adult daughter caregivers to an older parent with cancer. Journal of Aging and Health, 21(7), 1016-1039. doi: 10.1177/0898264309344320

Bacon, E., Milne, D. L., Sheikh, A. I., & Freeston, M. H. (2009). Positive experiences in caregivers: An exploratory case series. Behavioural and Cognitive Psychotherapy, 37(1), 95-114. doi: 10.1017/s1352465808005055

Barnard-Brak, L., & Thomson, D. (2009). How is taking care of caregivers of children with disabilities related to academic achievement? Child & Youth Care Forum, 38(2), 91-102. doi: 10.1007/s10566-009-9070-1

Bass, D. M., Judge, K. S., Snow, A. L., Wilson, N. L., Looman, W. J., McCarthy, C., . . . Kunik, M. E. (2012). Negative Caregiving Effects Among Caregivers of Veterans With Dementia. Am J Geriatr Psychiatry. doi: 10.1097/JGP.0b013e31824108ca

Betrabet Gulwadi, G. (2009). Restorative home environments for family caregivers. Journal of Aging Studies, 23(3), 197-204. doi: 10.1016/j.jaging.2007.11.005

Bertrand, R. M., Saczynski, J. S., Mezzacappa, C., Hulse, M., Ensrud, K., & Fredman, L. (2012). Caregiving and cognitive function in older women: evidence for the healthy caregiver hypothesis. J Aging Health, 24(1), 48-66. doi: 10.1177/0898264311421367

Bevans, M., & Sternberg, E. M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA, 307(4), 398-403. doi: 10.1001/jama.2012.29

Black, S. E., Gauthier, S., Dalziel, W., Keren, R., Correia, J., Hew, H., et al. (2010). Canadian Alzheimer's Disease Caregiver Survey: Baby-boomer caregivers and burden of care. International Journal of Geriatric Psychiatry, 25(8), 807-813. doi: 10.1002/gps.2421

Bobinac, A., van Exel, N. J., Rutten, F. F., & Brouwer, W. B. (2010). Caring for and caring about: disentangling the caregiver effect and the family effect. Journal of Health Economics, 29(4), 549-556.

Bolden, L., & Wicks, M. N. (2010). Predictors of mental health, subjective burden, and rewards in family caregivers of patients with chronic liver disease. Archives of Psychiatric Nursing, 24(2), 89-103. doi: 10.1016/j.apnu.2009.04.010

Bormann, J., Warren, K. A., Regalbuto, L., Glaser, D., Kelly, A., Schnack, J., et al. (2009). A spiritually based caregiver intervention with telephone delivery for family caregivers of veterans with dementia. Family & Community Health: The Journal of Health Promotion & Maintenance, 32(4), 345-353.

Bouldin, E. D., & Andresen, E. (2010). Caregiving and health Aging in America, Vol 2: Physical and mental health. (pp. 81-99): Santa Barbara, CA, US: Praeger/ABC-CLIO.

Braun, M., Mura, K., Peter-Wight, M., Hornung, R., & Scholz, U. (2010). Toward a better understanding of psychological well-being in dementia caregivers: The link between marital communication and depression. Family Process, 49(2), 185-203. doi: 10.1111/j.1545-5300.2010.01317.x

Brazil, K., Bainbridge, D., & Rodriguez, C. (2010). The stress process in palliative cancer care: A qualitative study on informal caregiving and its implication for the delivery of care. American Journal of Hospice & Palliative Medicine, 27(2), 111-116. doi: 10.1177/1049909109350176

Breitborde, N. J. K., Lpez, S. R., Chang, C., Kopelowicz, A., & Zarate, R. (2009). Emotional over-involvement can be deleterious for caregivers'Aeo health: Mexican Americans caring for a relative with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 44(9), 716-723. doi: 10.1007/s00127-008-0492-0

Breitborde, N. J. K., Lpez, S. R., & Kopelowicz, A. (2010). Expressed emotion and health outcomes among Mexican-Americans with schizophrenia and their caregiving relatives. Journal of Nervous and Mental Disease, 198(2), 105-109. doi: 10.1097/NMD.0b013e3181cc532d

Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behrman, R., Compas, B. E., et al. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatric Psychology, 33(4), 408-421. doi: 10.1093/jpepsy/jsm079

Brown, S. L., Smith, D. M., Schulz, R., Kabeto, M. U., Ubel, P. A., Poulin, M., et al. (2009). Caregiving behavior is associated with decreased mortality risk. Psychological Science, 20(4), 488-494. doi: 10.1111/j.1467-9280.2009.02323.x

Buffum, M. D. (2009). The role of family caregivers in pain management in patients with dementia. Journal of Pain Management, 1(4), 339-343.

Buscemi, V. r., Font, A., & Viladricht, C. (2010). Focus on relationship between the caregivers unmet needs and other caregiving outcomes in cancer palliative care. Psicooncologia, 7(1), 109-125.

Byrne, M. B., Hurley, D. A., Daly, L., & Cunningham, C. G. (2010). Health status of caregivers of children with cerebral palsy. Child Care, Health & Development, 36(5), 696-702.

Carbonneau, H. l. n., Caron, C., & Desrosiers, J. (2010). Development of a conceptual framework of positive aspects of caregiving in dementia. Dementia: The International Journal of Social Research and Practice, 9(3), 327-353. doi: 10.1177/1471301210375316

Carek, V., Norman, P., & Barton, J. (2010). Cognitive appraisals and posttraumatic stress disorder symptoms in informal caregivers of stroke survivors. Rehabilitation Psychology, 55(1), 91-96. doi: 10.1037/a0018417

Carter, J. H., Lyons, K. S., Stewart, B. J., Archbold, P. G., & Scobee, R. (2010). Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson s disease. Movement Disorders, 25(6), 716-722.

Cassie, K. M., & Sanders, S. (2009). Familial caregivers of older adults. In S. M. Cummings & N. P. Kropf (Eds.), Handbook of psychosocial interventions with older adults: Evidence-based approaches. (pp. 280-307): New York, NY, US: Routledge/Taylor & Francis Group.

Chan, B. (2010). Negative caregiving experience: A predictor of high expressed emotion among caregivers of relatives with schizophrenia. Social Work in Mental Health, 8(4), 375-397. doi: 10.1080/15332980903539971

Chappell, N. L., & Dujela, C. (2009). Caregivers--Who copes how? The International Journal of Aging & Human Development, 69(3), 221-244. doi: 10.2190/AG.69.3.d

Chessick, C. A., Perlick, D. A., Miklowitz, D. J., Dickinson, L. M., Allen, M. H., Morris, C. D., et al. (2009). Suicidal ideation and depressive symptoms among bipolar patients as predictors of the health and well-being of caregivers. Bipolar Disorders, 11(8), 876-884. doi: 10.1111/j.1399-5618.2009.00765.x

Chiambretto, P., Moroni, L., Guarnerio, C., Bertolotti, G., & Prigerson, H. G. (2010). Prolonged grief and depression in caregivers of patients in vegetative state. Brain Injury, 24(4), 581-588. doi: 10.3109/02699051003610490

Chien, W.-T. (2010). An overview of mutual support groups for family caregivers of people with mental health problems: Evidence on process and outcomes. In L. D. Brown & S. Wituk (Eds.), Mental health self-help: Consumer and family initiatives. (pp. 107-152). New York, NY, US: Springer Science + Business Media.

Chien, W.-T., & Norman, I. (2009). The effectiveness and active ingredients of mutual support groups for family caregivers of people with psychotic disorders: A literature review. International Journal of Nursing Studies, 46(12), 1604-1623. doi: 10.1016/j.ijnurstu.2009.04.003

Chio, A., Vignola, A., Mastro, E., Dei Giudici, A., Iazzolino, B., Calvo, A., et al. (2010). Neurobehavioral symptoms in ALS are negatively related to caregivers' burden and quality of life. European Journal of Neurology, 17(10), 1298-1303. doi: 10.1111/j.1468-1331.2010.03016.x

Chow, J. C.-C., Auh, E. Y., Scharlach, A. E., Lehning, A. J., & Goldstein, C. (2010). Types and sources of support received by family caregivers of older adults from diverse racial and ethnic groups. Journal of Ethnic & Cultural Diversity in Social Work: Innovation in Theory, Research & Practice, 19(3), 175-194. doi: 10.1080/15313204.2010.499318

Chwalisz, K., & Dollinger, S. C. (2010). Evidence-based practice with family caregivers: Decision-making strategies based on research and clinical data. In R. G. Frank, M. Rosenthall & B. Caplan (Eds.), Handbook of rehabilitation psychology, 2nd ed. (pp. 301-311): Washington, DC, US: American Psychological Association.

Clay, O. J., Roth, D. L., Wadley, V. G., & Haley, W. E. (2008). Changes in social support and their impact on psychosocial outcome over a 5-year period for African American and White dementia caregivers. International Journal of Geriatric Psychiatry, 23(8), 857-862. doi: 10.1002/gps.1996

Connell, C. M., & Janevic, M. R. (2009). Effects of a telephone-based exercise intervention for dementia caregiving wives: A randomized controlled trial. Journal of Applied Gerontology, 28(2), 171-194. doi: 10.1177/0733464808326951

Conway, P., Boeckel, J., Shuster, L., & Wages, J. (2010). Grandparent caregivers' use of resources and services, level of burden, and factors that mediate their relationships. Journal of Intergenerational Relationships, 8(2), 128-144. doi: 10.1080/15350771003741931

Coon, D. W. (2005). Exploring interventions for LGBT caregivers: Issues and examples. Journal of Gay & Lesbian Social Services: Issues in Practice, Policy & Research, 18(3-4), 109-128. doi: 10.1300/J041v18n03_07

Coon, D. W., Rubert, M., Solano, N., Mausbach, B., Kraemer, H., Argulles, T., et al. (2004). Well-being, appraisal, and coping in Latina and Caucasian female dementia caregivers: Findings from the REACH study. Aging & Mental Health, 8(4), 330-345. doi: 10.1080/13607860410001709683

Coon, D. W., Thompson, L., Steffen, A., Sorocco, K., & Gallagher-Thompson, D. (2003). Anger and Depression Management: Psychoeducational Skill Training Interventions for Women Caregivers of a Relative With Dementia. The Gerontologist, 43(5), 678-689.

Coon, D. W., & Thompson, L. W. (2002). Family caregiving for older adults: Ongoing and emergent themes for the behavior therapist. The Behavior Therapist, 25(1), 17-20.

Corman, M. K. (2009). The positives of caregiving: Mothers'Aeo experiences caregiving for a child with autism. Families in Society, 90(4), 439-445.

Courtenay, K., Jokinen, N. S., & Strydom, A. (2010). Caregiving and adults with intellectual disabilities affected by dementia. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 26-33. doi: 10.1111/j.1741-1130.2010.00244.x

Creedle, C., Leak, A., Deal, A. M., Walton, A. M., Talbert, G., Riff, B., & Hornback, A. (2012). The Impact of Education on Caregiver Burden on Two Inpatient Oncology Units. J Cancer Educ. doi: 10.1007/s13187-011-0302-3

Crowther, M., & Austin, A. (2009). The cultural context of clinical work with aging caregivers Aging families and caregiving. (pp. 45-60): Hoboken, NJ, US: John Wiley & Sons Inc.

Cucciare, M. A., Gray, H., Azar, A., Jimenez, D., & Gallagher-Thompson, D. (2010). Exploring the relationship between physical health, depressive symptoms, and depression diagnoses in Hispanic dementia caregivers. Aging & Mental Health, 14(3), 274-282. doi: 10.1080/13607860903483128

D'Amelio, M., Terruso, V., Palmeri, B., Di Benedetto, N., Famoso, G., Cottone, P., et al. (2009). Predictors of caregiver burden in partners of patients with Parkinson'Aeos disease. Neurological Sciences, 30(2), 171-174. doi: 10.1007/s10072-009-0024-z

Daly, B. J., Douglas, S., Lipson, A., & Foley, H. (2009). Needs of older caregivers of patients with advanced cancer. Journal of the American Geriatrics Society, 57(Suppl 2), S293-S295. doi: 10.1111/j.1532-5415.2009.02516.x

Davis, L. C., Sander, A. M., Struchen, M. A., Sherer, M., Nakase-Richardson, R., & Malec, J. F. (2009). Medical and psychosocial predictors of caregiver distress and perceived burden following traumatic brain injury. The Journal of Head Trauma Rehabilitation, 24(3), 145-154. doi: 10.1097/HTR.0b013e3181a0b291

de la Cuesta-Benjumea, C. (2010). The legitimacy of rest: Conditions for the relief of burden in advanced dementia care-giving. Journal of Advanced Nursing, 66(5), 988-998. doi: 10.1111/j.1365-2648.2010.05261.x

Demirtepe-Saygili, D., & Bozo, O. (2010). Predicting depressive symptoms among the mothers of children with leukaemia: A caregiver stress model perspective. Psycholical Health, 1-15.

DeMond, D. (2010). Caring for the family caregiver: A spiritual journey. Journal of Religion, Spirituality & Aging, 22(1-2), 120-135. doi: 10.1080/15528030903313920

Denby, R. W. (2010). Kinship liaisons: A peer-to-peer approach to supporting kinship caregivers. Children and Youth Services Review, No Pagination Specified. doi: 10.1016/j.childyouth.2010.09.004

DeSanto-Madeya, S., Nilsson, M., Loggers, E. T., Paulk, E., Stieglitz, H., Kupersztoch, Y. M., et al. (2009). Associations between United States acculturation and the end-of-life experience of caregivers of patients with advanced cancer. Journal of Palliative Medicine, 12(12), 1143-1149. doi: 10.1089/jpm.2009.0063

Diwan, S., Hougham, G. W., & Sachs, G. A. (2009). Chronological patterns and issues precipitating grieving over the course of caregiving among family caregivers of persons with dementia. Clinical Gerontologist: The Journal of Aging and Mental Health, 32(4), 358-370. doi: 10.1080/07317110903110179

Doan, Q. V., Brashear, A., Gillard, P. J., Varon, S. F., Vandenburgh, A. M., Turkel, C. C., & Elovic, E. P. (2012). Relationship between disability and health-related quality of life and caregiver burden in patients with upper limb poststroke spasticity. PM R, 4(1), 4-10. doi: 10.1016/j.pmrj.2011.10.001

Donnelly, M., Anderson, L. A., Johnston, B. T., Watson, R. G. P., Murphy, S. J., Comber, H., et al. (2008). Oesophageal cancer: Caregiver mental health and strain. Psycho-Oncology, 17(12), 1196-1201. doi: 10.1002/pon.1337

Donorfio, L. K. M., Vetter, R., & Vracevic, M. (2010). Effects of three caregiver interventions: Support, educational literature, and creative movement. Journal of Women & Aging, 22(1), 61-75. doi: 10.1080/08952840903489094

Driscoll, K. A., Johnson, S. B., Barker, D., Quittner, A. L., Deeb, L. C., Geller, D. E., et al. (2010). Risk factors associated with depressive symptoms in caregivers of children with type 1 diabetes or cystic fibrosis. Journal of Pediatric Psychology, 35(8), 814-822. doi: 10.1093/jpepsy/jsp138

Drossel, C., Fisher, J. E., & Mercer, V. (2010). A dbt skills training group for family caregivers of persons with dementia. Behavior Therapy, No Pagination Specified. doi: 10.1016/j.beth.2010.06.001

Ducharme, F., Beaudet, L., Legault, A., Kergoat, M.-J., L(c)vesque, L., & Caron, C. (2009). Development of an intervention program for Alzheimer'Aeos family caregivers following diagnostic disclosure. Clinical Nursing Research, 18(1), 44-67. doi: 10.1177/1054773808330093

Duggleby, W., Williams, A., Wright, K., & Bollinger, S. (2009). Renewing everyday hope: The hope experience of family caregivers of persons with dementia. Issues in Mental Health Nursing, 30(8), 514-521. doi: 10.1080/01612840802641727

Dyck, C. (2009). Who cares for the caregiver? Parkinsonism & Related Disorders, 15(Suppl 3), S118-S121. doi: 10.1016/s1353-8020(09)70796-5

Elliott, A. F., Burgio, L. D., & Decoster, J. (2010). Enhancing caregiver health: findings from the resources for enhancing Alzheimer s caregiver health II intervention. Journal of the American Geriatric Society, 58(1), 30-37.

Elliott, T. R., & Berry, J. W. (2009). Brief problem-solving training for family caregivers of persons with recent-onset spinal cord injuries: A randomized controlled trial. Journal of Clinical Psychology, 65(4), 406-422. doi: 10.1002/jclp.20527

Elliott, T. R., Berry, J. W., & Grant, J. S. (2009). Problem-solving training for family caregivers of women with disabilities: A randomized clinical trial. Behaviour Research and Therapy, 47(7), 548-558. doi: 10.1016/j.brat.2009.03.006

Elmore, D. L., & Talley, R. C. (2009). Family caregiving and U.S. federal policy. In S. H. Qualls (Ed.), Aging families and caregiving (pp. 209-231): Hoboken, NJ, US: John Wiley & Sons Inc.

Evans, B. C., Crogan, N., Belyea, M., & Coon, D. (2009). Utility of the life course perspective in research with Mexican American caregivers of older adults. Journal of Transcultural Nursing, 20(1), 5-14. doi: 10.1177/1043659608325847

Evans, S. W., Sibley, M., & Serpell, Z. N. (2009). Changes in caregiver strain over time in young adolescents with ADHD: The role of oppositional and delinquent behavior. Journal of Attention Disorders, 12(6), 516-524. doi: 10.1177/1087054708322987

Fischer, A. L., Butz, C., Nicholson, L., Blankenship, A., Dyke, P., & Cua, C. L. (2012). Caregiver Anxiety upon Discharge for Neonates with Congenital Heart Disease. Congenit Heart Dis, 7(1), 41-45. doi: 10.1111/j.1747-0803.2011.00600.x

Fitzpatrick, K. E., & Vacha-Haase, T. (2010). Marital satisfaction and resilience in caregivers of spouses with dementia. Clinical Gerontologist: The Journal of Aging and Mental Health, 33(3), 165-180. doi: 10.1080/07317111003776547

Foster, R. H., Kozachek, S., Stern, M., & Elsea, S. H. (2010). Caring for the caregivers: An investigation of factors related to well-being among parents caring for a child with Smith-Magenis syndrome. Journal of Genetic Counseling, 19(2), 187-198. doi: 10.1007/s10897-009-9273-5

Foster, S. M., Layton, H. S., Qualls, S. H., & Klebe, K. J. (2009). Tailored caregiver therapy: Consumer response to intervention. Clinical Gerontologist: The Journal of Aging and Mental Health, 32(2), 177-197. doi: 10.1080/07317110802677237

Frank, J. B. (2008). Evidence for grief as the major barrier faced by Alzheimer caregivers: A qualitative analysis. American Journal of Alzheimer's Disease and Other Dementias, 22(6), 516-527. doi: 10.1177/1533317507307787

Fredman, L., Cauley, J. A., Hochberg, M., Ensrud, K. E., & Doros, G. (2010). Mortality associated with caregiving, general stress, and caregiving-related stress in elderly women: results of caregiver-study of osteoporotic fractures. Journal of the American Geriatric Society, 58(5), 937-943.

Fredriksen-Goldsen, K. I., Kim, H.-J., Muraco, A., & Mincer, S. (2009). Chronically ill midlife and older lesbians, gay men, and bisexuals and their Informal caregivers: The impact of the social context. Sexuality Research & Social Policy: A Journal of the NSRC, 6(4), 52-64. doi: 10.1525/srsp.2009.6.4.52

Gallagher, S., Phillips, A. C., Drayson, M. T., & Carroll, D. (2009). Caregiving for children with developmental disabilities is associated with a poor antibody response to influenza vaccination. Psychosomatic Medicine, 71(3), 341-344. doi: 10.1097/PSY.0b013e31819d1910

Gallagher-Thompson, D., Arean, P., Coon, D., Menendez, A., Takagi, K., Haley, W. E., et al. (2000). Development and implementation of intervention strategies for culturally diverse caregiving populations. In R. Schulz (Ed.), Handbook on dementia caregiving: Evidence-based interventions for family caregivers. (pp. 151-185): New York, NY, US: Springer Publishing Co.

Gallagher-Thompson, D., & Coon, D. W. (2007). Evidence-based psychological treatments for distress in family caregivers of older adults. Psychology and Aging, 22(1), 37-51. doi: 10.1037/0882-7974.22.1.37

Gallagher-Thompson, D., Coon, D. W., Solano, N., Ambler, C., Rabinowitz, Y., & Thompson, L. W. (2003). Change in Indices of Distress Among Latino and Anglo Female Caregivers of Elderly Relatives With Dementia: Site-Specific Results From the REACH National Collaborative Study. The Gerontologist, 43(4), 580-591.

Gallagher-Thompson, D., Gray, H. L., Dupart, T., Jimenez, D., & Thompson, L. W. (2008). Effectiveness of cognitive/behavioral small group intervention for reduction of depression and stress in non-Hispanic White and Hispanic/Latino women dementia family caregivers: Outcomes and mediators of change. Journal of Rational-Emotive & Cognitive Behavior Therapy, 26(4), 286-303. doi: 10.1007/s10942-008-0087-4

Gallagher-Thompson, D., Lonergan, K. H., Holland, J., China, D., & Ashford, W. (2009). Supporting family caregivers The American Psychiatric Publishing textbook of Alzheimer disease and other dementias. (pp. 353-366): Arlington, VA, US: American Psychiatric Publishing, Inc.

Gallagher-Thompson, D., Lovett, S., Rose, J., McKibbin, C., Coon, D., Futterman, A., et al. (2000). Impact of psychoeducational interventions on distressed family caregivers. Journal of Clinical Geropsychology, 6(2), 91-110. doi: 10.1023/a:1009584427018

Gallagher-Thompson, D., Wang, P.-C., Liu, W., Cheung, V., Peng, R., China, D., et al. (2010). Effectiveness of a psychoeducational skill training DVD program to reduce stress in Chinese American dementia caregivers: Results of a preliminary study. Aging & Mental Health, 14(3), 263-273. doi: 10.1080/13607860903420989

Galvin, J. E., Duda, J. E., Kaufer, D. I., Lippa, C. F., Taylor, A., & Zarit, S. H. (2010). Lewy body dementia: Caregiver burden and unmet needs. Alzheimer Disease and Associated Disorders, 24(2), 177-181. doi: 10.1097/WAD.0b013e3181c72b5d

Ganguly, K. K., Chadda, R. K., & Singh, T. B. (2010). Caregiver burden and coping in schizophrenia and bipolar disorder: A qualitative study. American Journal of Psychiatric Rehabilitation, 13(2), 126-142. doi: 10.1080/15487761003757009

Garcia, J. I. R., Herndez, B., & Dorian, M. (2009). Mexican American caregivers' coping efficacy: Associations with caregivers' distress and positivity to their relatives with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 44(2), 162-170. doi: 10.1007/s00127-008-0420-3

Gaugler, J. E. (2010). The longitudinal ramifications of stroke caregiving: A systematic review. Rehabilitation Psychology, 55(2), 108-125. doi: 10.1037/a0019023

Gaugler, J. E., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2008). Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer's disease during the transition to institutionalization? Results from the New York University Caregiver Intervention Study. Journal of the American Geriatrics Society, 56(3), 421-428. doi: 10.1111/j.1532-5415.2007.01593.x

Gelmini, G., Morabito, B., & Braidi, G. (2009). Educational and formative training reduce stress in the caregivers of demented patients. Archives of Gerontology and Geriatrics, 49(Suppl), 119-124. doi: 10.1016/j.archger.2009.09.020

Ghosh, S., & Greenberg, J. (2009). Aging fathers of adult children with schizophrenia: The toll of caregiving on their mental and physical health. Psychiatric Services, 60(7), 982-984. doi: 10.1176/appi.ps.60.7.982

Gitlin, L. N., Hodgson, N., Jutkowitz, E., & Pizzi, L. (2010). The cost-effectiveness of a nonpharmacologic intervention for individuals with dementia and family caregivers: The Tailored Activity Program. The American Journal of Geriatric Psychiatry, 18(6), 510-519.

Gitlin, L. N., Winter, L., Dennis, M. P., Hodgson, N., & Hauck, W. W. (2010). A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: The COPE randomized trial. JAMA: Journal of the American Medical Association, 304(9), 983-991. doi: 10.1001/jama.2010.1253

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Giunta, N. (2010). The National Family Caregiver Support Program: a multivariate examination of state-level implementation. Journal of Aging & Social Policy, 22(3), 249-266.

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Godfrey, J. R., & Warshaw, G. A. (2009). Toward optimal health: Considering the enhanced healthcare needs of women caregivers. Journal of Women's Health, 18(11), 1739-1742. doi: 10.1089/jwh.2009.1720

Golden, M. A., & Lund, D. A. (2009). Identifying themes regarding the benefits and limitations of caregiver support group conversations. Journal of Gerontological Social Work, 52(2), 154-170. doi: 10.1080/01634370802561968

Gray, H. L., Jimenez, D. E., Cucciare, M. A., Tong, H.-Q., & Gallagher-Thompson, D. (2009). Ethnic differences in beliefs regarding Alzheimer disease among dementia family caregivers. The American Journal of Geriatric Psychiatry, 17(11), 925-933. doi: 10.1097/JGP.0b013e3181ad4f3c

Green, T. L., Newcommon, N., & Demchuk, A. (2010). Quality of life and caregiver outcomes following decompressive hemicraniectomy for severe stroke: a narrative literature review. Canadian Journal of Neuroscience Nursing, 32(2), 24-33.

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Haggstrom, E., Mamhidir, A.-G., & Kihlgren, A. (2010). Caregivers' strong commitment to their relationship with older people. International Journal of Nursing Practice, 16(2), 99-105. doi: 10.1111/j.1440-172X.2010.01818.x

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Hernandez, A. M., & Bigatti, S. M. (2010). Depression among older Mexican American caregivers. Cultural Diversity and Ethnic Minority Psychology, 16(1), 50-58. doi: 10.1037/a0015867

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Holley, C. K., & Mast, B. T. (2009). The impact of anticipatory grief on caregiver burden in dementia caregivers. The Gerontologist, 49(3), 388-396. doi: 10.1093/geront/gnp061

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Hughes, T., Tyler, K., Danner, D., & Carter, A. (2009). African American caregivers: An exploration of pathways and barriers to a diagnosis of Alzheimer's disease for a family member with dementia. Dementia: The International Journal of Social Research and Practice, 8(1), 95-116. doi: 10.1177/1471301208099048

Hutchinson, K. C., Willard, V. W., Hardy, K. K., & Bonner, M. J. (2009). Adjustment of caregivers of pediatric patients with brain tumors: A cross-sectional analysis. Psycho-Oncology, 18(5), 515-523. doi: 10.1002/pon.1421

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Jacinto, G. A. (2010). The self-forgiveness process of caregivers after the death of care-receivers diagnosed with Alzheimer's disease. Journal of Social Service Research, 36(1), 24-36. doi: 10.1080/01488370903333538

Javadpour, A., Ahmadzadeh, L., & Bahredar, M. J. (2009). An educative support group for female family caregivers: Impact on caregivers psychological distress and patient's neuropsychiatry symptoms. International Journal of Geriatric Psychiatry, 24(5), 469-471. doi: 10.1002/gps.2138

Johns Hopkins Medical School. (2010). Healing the caregiver. Six steps to help you stay healthy while caring for a loved one. Johns Hopkins Medical Letter: Health After 50, 22(4), 3.

Kang, J., Shin, D. W., Choi, J. E., Sanjo, M., Yoon, S. J., Kim, H. K., . . . Yoon, W. H. (2012). Factors associated with positive consequences of serving as a family caregiver for a terminal cancer patient. Psychooncology. doi: 10.1002/pon.3033

Karch, D., & Nunn, K. C. (2010). Characteristics of Elderly and Other Vulnerable Adult Victims of Homicide by a Caregiver: National Violent Death Reporting System--17 U.S. States, 2003-2007. Journal of Interpersonal Violence.

Keith, P. M., Wacker, R., & Collins, S. M. (2009). Family influence on caregiver resistance, efficacy, and use of services in family elder care. Journal of Gerontological Social Work, 52(4), 377-400. doi: 10.1080/01634370802609304

Kim, Y., Kashy, D. A., Spillers, R. L., & Evans, T. V. (2010). Needs assessment of family caregivers of cancer survivors: Three cohorts comparison. Psycho-Oncology, 19(6), 573-582. doi: 10.1002/pon.1597

Kim, Y., & Spillers, R. L. (2010). Quality of life of family caregivers at 2 years after a relative's cancer diagnosis. Psycho-Oncology, 19(4), 431-440. doi: 10.1002/pon.1576

Klaric, M., Franciskovic, T., Pernar, M., Nembic Moro, I., Milicevic, R., Cerni Obrdalj, E., et al. (2010). Caregiver burden and burnout in partners of war veterans with post-traumatic stress disorder. Collegium Antropologicum, 34 Suppl 1, 15-21.

Koerner, S. S., Kenyon, D. B., & Shirai, Y. (2009). Caregiving for elder relatives: Which caregivers experience personal benefits/gains? Archives of Gerontology and Geriatrics, 48(2), 238-245. doi: 10.1016/j.archger.2008.01.015

Kuhlthau, K., Kahn, R., Hill, K. S., Gnanasekaran, S., & Ettner, S. L. (2010). The well-being of parental caregivers of children with activity limitations. Maternal and Child Health Journal, 14(2), 155-163. doi: 10.1007/s10995-008-0434-1

Kuipers, E., Onwumere, J., & Bebbington, P. (2010). Cognitive model of caregiving in psychosis. British Journal of Psychiatry, 196(4), 259-265. doi: 10.1192/bjp.bp.109.070466

Kyriacou, C. (2010). Family therapy for adult children caregivers and their families. In J. D. Atwood & C. Gallo (Eds.), Family therapy and chronic illness. (pp. 159-178): New Brunswick, NJ, US: AldineTransaction.

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Larson, E. (2010). Identifying indicators of well-being for caregivers of children with disabilities. Occupational Therapy International, 17(1), 29-39. doi: 10.1002/oti.284

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Lavela, S. L., & Ather, N. (2010). Psychological health in older adult spousal caregivers of older adults. Chronic Illness, 6(1), 67-80. doi: 10.1177/1742395309356943

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Lippa, C. F. (2009). Primary progressive aphasia and caregiver issues. American Journal of Alzheimer's Disease and Other Dementias, 24(5), 371-372. doi: 10.1177/1533317509347288

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MacHale, R., McEvoy, J., & Tierney, E. (2009). Caregiver perceptions of the understanding of death and need for bereavement support in adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 22(6), 574-581. doi: 10.1111/j.1468-3148.2009.00513.x

MacNeil, G., Kosberg, J. I., Durkin, D. W., Dooley, W. K., DeCoster, J., & Williamson, G. M. (2010). Caregiver mental health and potentially harmful caregiving behavior: The central role of caregiver anger. The Gerontologist, 50(1), 76-86. doi: 10.1093/geront/gnp099

Makizako, H., Abe, T., Shimada, H., Ohnuma, T., Furuna, T., & Nakamura, Y. (2009). Combined effect of factors associated with burdens on primary caregiver. Geriatrics & Gerontology International, 9(2), 183-189. doi: 10.1111/j.1447-0594.2009.00523.x

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Marzano, M. (2009). Lies and pain: Patients and caregivers in the "conspiracy of silence.". Journal of Loss and Trauma, 14(1), 57-81. doi: 10.1080/15325020802173546

Mausbach, B. T., Coon, D. W., Cardenas, V., & Thompson, L. W. (2003). Religious coping among Caucasian and Latina dementia caregivers. Journal of Mental Health and Aging, 9(2), 97-110.

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McCabe, M. P., Firth, L., & O'AeoConnor, E. (2009). A comparison of mood and quality of life among people with progressive neurological Illnesses and their caregivers. Journal of Clinical Psychology in Medical Settings, 16(4), 355-362. doi: 10.1007/s10880-009-9168-5

McCallum, T. J., Longmire, C. F., & Knight, B. G. (2007). African American and White female caregivers and the sociocultural stress and coping model. Clinical Gerontologist: The Journal of Aging and Mental Health, 30(4), 25-37. doi: 10.1300/J018v30n04_02

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Mitchell, M. M., & Knowlton, A. (2009). Stigma, disclosure, and depressive symptoms among informal caregivers of people living with HIV/AIDS. AIDS Patient Care and STDs, 23(8), 611-617. doi: 10.1089/apc.2008.0279

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