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Resources for Caregiving:
40 Books, 55 Recent Articles, & 54 Websites
I gathered together on this page to help both caregivers and the clinicians who work with them to find information, support, and other resources.
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I've organized the caregiving resources into 3 categories:
a) books,
b) articles and chapters, &
c) web sites.
Currently there are 40 books (published 2010-2018), 55 recent articles (published in 2018), and 54 web sites. However, I will update the site several times a year.
PLEASE NOTE: This web site includes 10 other pages of related sets of resources:
- New Resources for End-of-Life Challenges: Finding Hospices; Creating an At-Home Hospice; Nursing Homes; Living Wills; Advance Directives; etc.
- Alzheimer's Resources for Patients, Families, & Clinicians: Articles, Books, Websites
- Psychological Aspects of Coronary Heart Disease: Recent Studies
- Psychological Interventions for People With Cancer: Therapy & Self-Help
- 12 Useful Steps if You're Diagnosed with Cancer
- Cancer & Exercise: Prevention & Recovery
- New Resources for Breast Cancer: Treatment Research Articles; Links to Sites; Psychological Aspects; Books
- New Resources for Prostate Cancer: Treatment Research Articles; Links to Sites; Psychological Aspects; Books
- New Resources for Lung Cancer: Treatment Research Articles; Links to Sites; Psychological Aspects; Books
- New Resources for Colon Cancer: Treatment Research Articles; Links to Sites; Psychological Aspects; Books
40 Books (2010-2018):
- Abbit, L. (2017). The Conscious Caregiver: A Mindful Approach to Caring for Your Loved One Without Losing Yourself. New York: Simon & Schuster.
- Bailey, W. A., & Harrist, A. W. (Eds.). (2018). Family caregiving: Fostering resilience across the life course. Cham, Switzerland: Springer International Publishing.
- Bernhard, T. (2010). How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers. Somerville, MA: Wisdom Publications.
- Bruhn, J. G. (2016). After diagnosis: Family caregiving with hospice patients. New York: Springer.
- Burgio, L. D., Gaugler, J. E., & Hilgeman, M. M. (Eds.). (2016). The spectrum of family caregiving for adults and elders with chronic illness. New York: Oxford University Press.
- Cornwall, D. 92016). Things I Wish I'd Known: Cancer Caregivers Speak Out - Third Edition. Sarasota, FL: Bardolf & Company.
- Denholm, D. D. (2012). The Caregiving Wife's Handbook: Compassionate Strategies, Stories of Success. Hunter House.
- Gaugler, J. E., & Kane, R. L. (Eds.). (2015). Family caregiving in the new normal. San Diego, CA: Elsevier Academic Press.
- Greenberg, T. M. (2012). When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Cedar Fort, Inc.
- Hartley, C., & Wong, P. 2015). The Caregiver's Toolbox: Checklists, Forms, Resources, Mobile Apps, and Straight Talk to Help You Provide Compassionate Care. Lanham, MD: Rowan & Littlefield.
- Hayslip, B., Jr., & Smith, G. C. (Eds.). (2013). Resilient grandparent caregivers: A strengths-based perspective. New York: Routledge/Taylor & Francis Group.
- Kane, R., & Quellette, J. (2011). The good caregiver: A one-of-a-kind compassionate resource for anyone caring for an aging loved one. New York, NY: Avery/Penguin Group.
- Keene, N. (2010). Childhood Leukemia: A guide for Families, Friends & Caregivers, 4th Edition. Sebastopol, CA: Patient Centered Guides.
- LeBlanc, G. J. (2011). Staying Afloat in a Sea of Forgetfulness: Common Sense Caregiving Expanded Edition. Xlibris Corporation.
- Lipton, A. M., & Marshall, C. D. (2013). The common sense guide to dementia for clinicians and caregivers. NY: Springer Science.
- Martin, W., & Martin, N. (2011). The Caregiver's Tao Te Ching: Compassionate Caring for Your Loved Ones and Yourself. Novato, CA: New World Library.
- McQuellon, R. P., & Cowan, M. A. (2010). The art of conversation through serious illness: Lessons for caregivers. New York, NY, US: Oxford University Press.
- Mills, H. L., & Casciani,J. M. (2010). Caregiving Tips for Families Managing Dementia. Kindle e-book.
- Nouwen, H. (2011). A Spirituality of Caregiving. Upper Room.
- Percy, K. W. (2010). Working with aging families: Therapeutic solutions for caregivers, spouses, & adult children. New York, NY, US: W W Norton & Co.
- Qualls, S. H., & Williams, A. A. (2013). Caregiver family therapy: Empowering families to meet the challenges of aging. Washington, DC: American Psychological Association.
- Santulli, R. B. (2011). The Alzheimer's family: Helping caregivers cope. New York: W W Norton & Co.
- Sheehy, G. (2011). Passages in Caregiving: Turning Chaos into Confidence. New York: William Morrow.
- Smits, A. (2017). When Reasoning No Longer Works: A Practical Guide for Caregivers Dealing with Dementia & Alzheimer's Care. Colorado Springs, CO: Parker Hayden Media.
- Talley, R. C., & Crews, J. E. (Eds.). (2012). Multiple dimensions of caregiving and disability: Research, practice, policy. NY: Springer Science.
- Talley, R. C., McCorkle, R., & Baile, W. F. (Eds.). (2012). Cancer caregiving in the United States: Research, practice, policy. New York, NY: Springer Science
- Talley, R. C., & Montgomery, R. J. V. (Eds.). (2013). Caregiving across the lifespan: Research, practice, policy. NY: Springer Science.
- Toseland, R. W., Haigler, D. H., & Monohan, D. J. (Eds.). (2011). Education and Support Programs for Caregivers: Research, Practice, Policy. New York: Springer.
- Zarit, S. H., & Talley, R. C. (Eds.). (2013). Caregiving for Alzheimer's disease and related disorders: Research, practice, policy. NY: Springer Science.
55 Recent Articles (published in 2018):
Appleton, Damien, Robertson, Noelle, Mitchell, Laura, & Lesley, Rosie. (2018). Our disease: A qualitative meta-synthesis of the experiences of spousal/partner caregivers of people with multiple sclerosis. Scandinavian Journal of Caring Sciences, No Pagination Specified-No Pagination Specified. doi:10.1111/scs.12601
Band-Winterstein, Tova, Edelstein, Offer E., & Bachner, Yaacov G. (2018). Correlates of depression in caregivers of Ultra-Orthodox frail older adults. American Journal of Orthopsychiatry, No Pagination Specified-No Pagination Specified. doi:10.1037/ort0000337
Baruch, Ella, Pistrang, Nancy, & Barker, Chris. (2018). Psychological interventions for caregivers of people with bipolar disorder: A systematic review and meta-analysis. Journal of Affective Disorders, 236, 187-198. doi:10.1016/j.jad.2018.04.077
Behm, Lina, Björkman, Eva, & Ahlström, Gerd. (2018). Mental health and reactions to caregiving among next of kin of older people (65+) with multi-morbidity discharged home after hospitalization. Scandinavian Journal of Caring Sciences, No Pagination Specified-No Pagination Specified. doi:10.1111/scs.12592
Bhuyan, Rupaleem, Valmadrid, Lorraine, Panlaqui, Esel Laxa, Pendon, Novabella L., & Juan, Pearlita. (2018). Responding to the structural violence of migrant domestic work: Insights from participatory action research with migrant caregivers in canada. Journal of Family Violence, No Pagination Specified-No Pagination Specified. doi:10.1007/s10896-018-9988-x
Bibbo, Jessica, & Proulx, Christine M. (2018). The impact of a care recipient's pet on the instrumental caregiving experience. Journal of Gerontological Social Work, No Pagination Specified-No Pagination Specified. doi:10.1080/01634372.2018.1494659
Brain, Cecilia, Kymes, Steven, DiBenedetti, Dana B., Brevig, Thomas, & Velligan, Dawn I. (2018). Experiences, attitudes, and perceptions of caregivers of individuals with treatment-resistant schizophrenia: A qualitative study. BMC Psychiatry, 18.
Branger, Camille, Enright, Joe, O'Connell, Megan E., & Morgan, Debra G. (2018). Variance in caregiver burden predicted by patient behaviors versus neuropsychological profile. Applied Neuropsychology: Adult, 25(5), 441-447. doi:10.1080/23279095.2017.1323754
Brickell, Tracey A., French, Louis M., Lippa, Sara M., & Lange, Rael T. (2018). Burden among caregivers of service members and veterans following traumatic brain injury. Brain Injury, No Pagination Specified-No Pagination Specified. doi:10.1080/02699052.2018.1503328
Brickell, Tracey A., Lippa, Sara M., French, Louis M., Gartner, Rachel L., Driscoll, Angela E., Wright, Megan M., & Lange, Rael T. (2018). Service needs and health outcomes among caregivers of service members and veterans following TBI. Rehabilitation Psychology, No Pagination Specified-No Pagination Specified. doi:10.1037/rep0000249
Bui, Eric, Blackburn, Allyson M., Brenner, Lauren H., Laifer, Lauren M., Park, Elyse R., Fricchione, Gregory L., & Sylvia, Louisa G. (2018). Military and veteran caregivers' perspectives of stressors and a mind-body program. Issues in Mental Health Nursing, No Pagination Specified-No Pagination Specified. doi:10.1080/01612840.2018.1485796
Candrian, Carey, Tsantes, Alexandra, Matlock, Dan D., Tate, Channing, & Kutner, Jean S. (2018). "i just need to know they are going to do what they say they're going to do with my mom." understanding hospice expectations from the patient, caregiver and admission nurse perspective. Patient Education and Counseling, No Pagination Specified-No Pagination Specified. doi:10.1016/j.pec.2018.08.005
Champine, Robey B., Rozas, Lisa Werkmeister, Schreier, Alayna, & Kaufman, Joy S. (2018). Examining the service-related experiences and outcomes of caregivers involved in a system of care who experienced everyday discrimination. Journal of Community Psychology, No Pagination Specified-No Pagination Specified. doi:10.1002/jcop.22137
Chen, Chuqian, Chow, Amy Y. M., & Tang, Suqin. (2018). Professional caregivers' bereavement after patients' deaths: A scoping review of quantitative studies. Death Studies, No Pagination Specified-No Pagination Specified. doi:10.1080/07481187.2018.1488775
Chen, Peijun, Guarino, Peter D., Dysken, Maurice W., Pallaki, Muralidhar, Asthana, Sanjay, Llorente, Maria D., . . . Sano, Mary. (2018). Neuropsychiatric symptoms and caregiver burden in individuals with Alzheimer's disease: The TEAM-AD VA Cooperative Study. Journal of Geriatric Psychiatry and Neurology, 31(4), 177-185. doi:10.1177/0891988718783897
Corrêa, Márcio Silveira, de Lima, Daiane Borba, Giacobbo, Bruno Lima, Vedovelli, Kelem, Argimon, Irani Iracema de Lima, & Bromberg, Elke. (2018). Mental health in familial caregivers of alzheimer's disease patients: Are the effects of chronic stress on cognition inevitable? Stress: The International Journal on the Biology of Stress, No Pagination Specified-No Pagination Specified. doi:10.1080/10253890.2018.1510485
Cross, Ainslea J., Garip, Gulcan, & Sheffield, David. (2018). The psychosocial impact of caregiving in dementia and quality of life: A systematic review and meta-synthesis of qualitative research. Psychology & Health, No Pagination Specified-No Pagination Specified. doi:10.1080/08870446.2018.1496250
Fields, Beth, Rodakowski, Juleen, James, A. Everette, & Beach, Scott. (2018). Caregiver health literacy predicting healthcare communication and system navigation difficulty. Families, Systems, & Health, No Pagination Specified-No Pagination Specified. doi:10.1037/fsh0000368
Greenfield, Jennifer C., Hasche, Leslie, Bell, Lauren M., & Johnson, Heidi. (2018). Exploring how workplace and social policies relate to caregivers' financial strain. Journal of Gerontological Social Work, No Pagination Specified-No Pagination Specified. doi:10.1080/01634372.2018.1487895
Hansen, Barbara, Szaflarski, Magdalena, Bebin, E. Martina, & Szaflarski, Jerzy P. (2018). Affiliate stigma and caregiver burden in intractable epilepsy. Epilepsy & Behavior, 85, 1-6. doi:10.1016/j.yebeh.2018.05.028
Harvey-Knowles, Jacquelyn, Sanders, Elizabeth, Ko, Linda, Manusov, Valerie, & Yi, Jean. (2018). The impact of written emotional disclosure on cancer caregivers' perceptions of burden, stress, and depression: A randomized controlled trial. Health Communication, 33(7), 824-832. doi:10.1080/10410236.2017.1315677
Heng, Juit Lin, Fan, Emilia, & Chan, Ee-Yuee. (2018). Caregiving experiences, coping strategies and needs of foreign domestic workers caring for older people. Journal of Clinical Nursing, No Pagination Specified-No Pagination Specified. doi:10.1111/jocn.14619
Katz, Lynn Fainsilber, Fladeboe, Kaitlyn, King, Kevin, Gurtovenko, Kyrill, Kawamura, Joy, Friedman, Debra, . . . Stettler, Nicole. (2018). Trajectories of child and caregiver psychological adjustment in families of children with cancer. Health Psychology, 37(8), 725-735. doi:10.1037/hea0000619
Kind, Nina, Eckert, Anne, Steinlin, Célia, Fegert, Jörg M., & Schmid, Marc. (2018). Verbal and physical client aggression—A longitudinal analysis of professional caregivers' psychophysiological stress response and burnout. Psychoneuroendocrinology, 94, 11-16. doi:10.1016/j.psyneuen.2018.05.001
Kua, Zhong Jie, Pachana, Nancy A., Byrne, Gerard J., O'Sullivan, John D., Marsh, Rodney, Torbey, Elizabeth, . . . Dissanayaka, Nadeeka N. W. (2018). How well do caregivers detect depression and anxiety in patients with Parkinson disease? Journal of Geriatric Psychiatry and Neurology, 31(5), 227-236. doi:10.1177/0891988718788641
Landfeldt, Erik, Edström, Josefin, Buccella, Filippo, Kirschner, Janbernd, & Lochmüller, Hanns. (2018). Duchenne muscular dystrophy and caregiver burden: A systematic review. Developmental Medicine & Child Neurology, 60(10), 987-996. doi:10.1111/dmcn.13934
Lau, Bobo Hi-Po, Wong, Daniel F. K., Fung, Y. L., Zhou, Jillian, Chan, Cecilia L. W., & Chow, Amy Y. M. (2018). Facing death alone or together? Investigating the interdependence of death anxiety, dysfunctional attitudes, and quality of life in patient-caregiver dyads confronting lung cancer. Psycho-Oncology, No Pagination Specified-No Pagination Specified. doi:10.1002/pon.4773
Lin, Mei-Chen. (2018). Elder abuse and neglect: Examining caregiver characteristics and perceptions of their elderly care receiver's under-accommodative behavior. Journal of Family Communication, No Pagination Specified-No Pagination Specified. doi:10.1080/15267431.2018.1489810
Mori, Yuka, Downs, Jenny, Wong, Kingsley, & Leonard, Helen. (2018). Longitudinal effects of caregiving on parental well-being: The example of rett syndrome, a severe neurological disorder. European Child & Adolescent Psychiatry, No Pagination Specified-No Pagination Specified. doi:10.1007/s00787-018-1214-0
Oliveira, Alexandra Martini, Radanovic, Marcia, Homem de Mello, Patricia Cotting, Buchain, Patricia Cardoso, Dias Vizzotto, Adriana, Harder, Janaína, . . . Forlenza, Orestes Vicente. (2018). An intervention to reduce neuropsychiatric symptoms and caregiver burden in dementia: Preliminary results from a randomized trial of the tailored activity program–outpatient version. International Journal of Geriatric Psychiatry, No Pagination Specified-No Pagination Specified. doi:10.1002/gps.4958
Opsal, Tara, & Eman, Rebecca. (2018). Invisible vulnerability: Participant perceptions of a campus-based program for students without caregivers. Children and Youth Services Review, No Pagination Specified-No Pagination Specified. doi:10.1016/j.childyouth.2018.09.002
Panicker, Anuja S., & Ramesh, Sonali. (2018). Psychological status and coping styles of caregivers of individuals with intellectual disability and psychiatric illness. Journal of Applied Research in Intellectual Disabilities, No Pagination Specified-No Pagination Specified. doi:10.1111/jar.12496
Park, Juyoung, Tolea, Magdalena I., Arcay, Victoria, Lopes, Yve, & Galvin, James E. (2018). Self-efficacy and social support for psychological well-being of family caregivers of care recipients with dementia with lewy bodies, parkinson's disease dementia, or alzheimer's disease. Social Work in Mental Health, No Pagination Specified-No Pagination Specified. doi:10.1080/15332985.2018.1526756
Paúl, Constança, Teixeira, Laetitia, Duarte, Natália, Pires, Cátia L., & Ribeiro, Oscar. (2018). Effects of a community intervention program for dementia on mental health: The importance of secondary caregivers in promoting positive aspects and reducing strain. Community Mental Health Journal, No Pagination Specified-No Pagination Specified. doi:10.1007/s10597-018-0345-6
Peng, Hsi-Ling, Lorenz, Rebecca A., & Chang, Yu-Ping. (2018). Factors associated with sleep in family caregivers of individuals with dementia. Perspectives in Psychiatric Care, No Pagination Specified-No Pagination Specified. doi:10.1111/ppc.12307
Penning, Margaret J., & Wu, Zheng. (2018). Caregiving and union instability in middle and later life. Journal of Marriage and Family, No Pagination Specified-No Pagination Specified. doi:10.1111/jomf.12534
Prather, Aric A., Epel, Elissa S., Portela Parra, Eduardo, Coccia, Michael, Puterman, Eli, Aiello, Allison E., & Dhabhar, Firdaus S. (2018). Associations between chronic caregiving stress and T cell markers implicated in immunosenescence. Brain, Behavior, and Immunity, 73, 546-549. doi:10.1016/j.bbi.2018.06.019
Pudelewicz, Anna, Talarska, Dorota, & B?czyk, Gra?yna. (2018). Burden of caregivers of patients with alzheimer's disease. Scandinavian Journal of Caring Sciences, No Pagination Specified-No Pagination Specified. doi:10.1111/scs.12626
Puterman, Eli, Weiss, Jordan, Lin, Jue, Schilf, Samantha, Slusher, Aaron L., Johansen, Kirsten L., & Epel, Elissa S. (2018). Aerobic exercise lengthens telomeres and reduces stress in family caregivers: A randomized controlled trial - curt richter award paper 2018. Psychoneuroendocrinology, No Pagination Specified-No Pagination Specified. doi:10.1016/j.psyneuen.2018.08.002
Ruiz Fernández, María Dolores, & Ortega Galán, Ángela María. (2018). Evaluation of the perceived health of caregivers of patients in mild-to-moderate stage alzheimer's disease. Perspectives in Psychiatric Care, No Pagination Specified-No Pagination Specified. doi:10.1111/ppc.12306
Samadi, Sayyed Ali, Abdollahi-Boghrabadi, Ghasem, & McConkey, Roy. (2018). Parental satisfaction with caregiving among parents of children with autism spectrum disorders, attention deficit and hyperactivity, intellectual disabilities and typically developing. Early Child Development and Care, No Pagination Specified-No Pagination Specified. doi:10.1080/03004430.2018.1518903
Sambasivam, Rajeswari, Liu, Jianlin, Vaingankar, Janhavi A., Ong, Hui L., Tan, Min-En, Fauziana, Restria, . . . Subramaniam, Mythily. (2018). The hidden patient: Chronic physical morbidity, psychological distress, and quality of life in caregivers of older adults. Psychogeriatrics, No Pagination Specified-No Pagination Specified. doi:10.1111/psyg.12365
Sandstedt, Petter, Littorin, Susanne, Cröde Widsell, Gunilla, Johansson, Sverker, Gottberg, Kristina, Ytterberg, Charlotte, . . . Kierkegaard, Marie. (2018). Caregiver experience, health-related quality of life and life satisfaction among informal caregivers to patients with amyotrophic lateral sclerosis: A cross-sectional study. Journal of Clinical Nursing, No Pagination Specified-No Pagination Specified. doi:10.1111/jocn.14593
Sheng, Nan, Ma, Jiali, Ding, Wenwen, & Zhang, Ying. (2018). Effects of caregiver-involved interventions on the quality of life of children and adolescents with chronic conditions and their caregivers: A systematic review and meta-analysis. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, No Pagination Specified-No Pagination Specified. doi:10.1007/s11136-018-1976-3
Shiraishi, Nao, & Reilly, Jacqueline. (2018). Positive and negative impacts of schizophrenia on family caregivers: A systematic review and qualitative meta-summary. Social Psychiatry and Psychiatric Epidemiology, No Pagination Specified-No Pagination Specified. doi:10.1007/s00127-018-1617-8
Song, Yeonsu, Washington, Donna L., Yano, Elizabeth M., McCurry, Susan M., Fung, Constance H., Dzierzewski, Joseph M., . . . Martin, Jennifer L. (2018). Caregiving-related sleep problems and their relationship to mental health and daytime function in female veterans. Behavioral Sleep Medicine, 16(4), 371-379. doi:10.1080/15402002.2016.1228640
Stamatopoulos, Vivian. (2018). The young carer penalty: Exploring the costs of caregiving among a sample of canadian youth. Child & Youth Services, No Pagination Specified-No Pagination Specified. doi:10.1080/0145935X.2018.1491303
Teague, Samantha J., Newman, Louise K., Tonge, Bruce J., & Gray, Kylie M. (2018). Caregiver mental health, parenting practices, and perceptions of child attachment in children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(8), 2642-2652. doi:10.1007/s10803-018-3517-x
Teahan, Áine, Lafferty, Attracta, McAuliffe, Eilish, Phelan, Amanda, O'Sullivan, Liam, O'Shea, Diarmuid, & Fealy, Gerard. (2018). Resilience in family caregiving for people with dementia: A systematic review. International Journal of Geriatric Psychiatry, No Pagination Specified-No Pagination Specified. doi:10.1002/gps.4972
Terayama, Hideyuki, Sakurai, Hirofumi, Namioka, Nayuta, Jaime, Rieko, Otakeguchi, Koko, Fukasawa, Raita, . . . Hanyu, Haruo. (2018). Caregivers' education decreases depression symptoms and burden in caregivers of patients with dementia. Psychogeriatrics, No Pagination Specified-No Pagination Specified. doi:10.1111/psyg.12337
Tramonti, Francesco, Bonfiglio, Luca, Bongioanni, Paolo, Belviso, Cristina, Fanciullacci, Chiara, Rossi, Bruno, . . . Carboncini, Maria Chiara. (2018). Caregiver burden and family functioning in different neurological diseases. Psychology, Health & Medicine, No Pagination Specified-No Pagination Specified. doi:10.1080/13548506.2018.1510131
van der Lee, Jacqueline, Bakker, Ton J. E. M., & Dröes, Rose-Marie. (2018). Recovery from burden: Informal caregiver profiles that predict treatment success. International Psychogeriatrics, No Pagination Specified-No Pagination Specified. doi:10.1017/S1041610218000613
Wang, Xiao-Rong, Liu, Sheng-Xin, Robinson, Karen M., Shawler, Celeste, & Zhou, Lei. (2018). The impact of dementia caregiving on self-care management of caregivers and facilitators: A qualitative study. Psychogeriatrics, No Pagination Specified-No Pagination Specified. doi:10.1111/psyg.12354
Woodford, Joanne, Farrand, Paul, Watkins, Edward R., & Llewellyn, David J. (2018). "I don't believe in leading a life of my own, I lead his life": A qualitative investigation of difficulties experienced by informal caregivers of stroke survivors experiencing depressive and anxious symptoms. Clinical Gerontologist: The Journal of Aging and Mental Health, 41(4), 293-307. doi:10.1080/07317115.2017.1363104
Young, Lisa, Murata, Lisa, McPherson, Christine, Jacob, Jean Daniel, & Vandyk, Amanda Digel. (2018). Exploring the experiences of parent caregivers of adult children with schizophrenia: A systematic review. Archives of Psychiatric Nursing, No Pagination Specified-No Pagination Specified. doi:10.1016/j.apnu.2018.08.005
54 Websites:
- Aging Life Care Association (formerly National Association of Professional Geriatric Care Managers)
- Aging Parents and Elder Care: Helping People Overcome the Challenges of Elder Care
- AIDS/HIV Caregiving
- Alzheimers Association
- Alzheimer's Resources for Patients, Families, & Clinicians: Articles, Books, Websites
- American Association of Caregiving Youth
- American Cancer Society
- American Childhood Cancer Organization
- American Stroke Association
- Blood & Bone Marrow Transplant Information Network
- Brain Injury Association of America
- Breast Cancer: Treatment Research Articles; Links to Sites; Psychological Aspects; Books
- Canadian Caregiver Coalition
- Canadian Virtual Hospice
- Cancer Care
- Cancer & Exercise: Prevention & Recovery
- Cancer Hope Network
- CareGiver: For, About, & By Caregivers
- CareGiver's Home Companion
- Caregiving Resources from AARP
- Care Giving Help
- CarePages
- CareSearch: Palliative Care Knowledge Network
- CaringBridge
- Caring.com
- Caring From a Distance: Dedicated to the Needs of Long-Distance Caregivers
- Children of Aging Parents: A National Organization for Caregivers
- ChildServe: Services for Children with Special Health Care Needs
- ElderCare Locator: Connecting You to Community Services
- ElderCare Online: Internet Community of ElderCareGivers
- End-of-Life Challenges: Finding Hospices; Creating an At-Home Hospice; Nursing Homes; Living Wills; Advance Directives; etc.
- Faith's Lodge
- Family Caregiver Alliance: National Center on Caregiving
- Family Caregivers Network Society
- Finding Affordable Medications
- Future Care Planning for People with Developmental Disabilities: A Roadmap for Family Caregivers
- Graham's Foundation: Supporting Parents of Micro-Premie Babies
- Hydrocephalus Association
- Links for Searching for Free or Low-Cost Medications & for Searching for Health Insurance
- Lung Cancer: Treatment Research Articles; Links to Sites; Psychological Aspects; Books
- Medicare Basics Every Caregiver Should Know
- Medicare Rights Center: a National, Nonprofit Consumer Service Organization
- National Aliance for Caregiving
- National Guardianship Association
- National Multiple Sclerosis Society
- Next Step in Care: Family Caregivers
- Partnership for Parents: Support Network for Parents of Children with Serious Illnesses
- Prostate Cancer: Treatment Research Articles; Links to Sites; Psychological Aspects; Books
- Psychological Interventions for People With Cancer: Therapy & Self-Help
- Resources for Those Looking for Nursing Homes or Hospices, Or Who Are Facing End-of-Life Challenges
- Spinal Cord Injury Caregivers Support Forum
- United Cerebral Palsy
- Well Spouse Association: Support for Spousal Caregivers
- Young Carers