Nursing Homes, Hospices, & End-of-Life Resources

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Resources for Those Looking for Nursing Homes, Hospices, In-Home Hospices, Living Wills, Advance Directives, etc.,Or Who Are Facing End-of-Life Challenges

Kenneth S. Pope, Ph.D., ABPP

PLEASE NOTE: I created this site to be fully accessible for people with disabilities; please follow this link to change text size, color, or contrast; please follow this link for other accessibility functions for those with visual, mobility, and other disabilities.

I gathered the following resources -- which include searchable online databases, 24-hour helplines, books, and articles -- to help individuals and families in their search for information, services, and facilities.

I hope these resources will be helpful to those who may need nursing homes, home health care, palliative care, hospices, assisted living, continuing care, geriatric care managers, living wills, advanced directives, hospital visitation authorization for unmarried partners, web connections with other family caregivers, and so on.

I've grouped the resources that follow into 5 sets:

  1. 29 online resources

  2. 59 books

  3. 149 hospice articles & chapters

  4. 192 nursing home articles & chapters

  5. 134 end-of-life articles & chapters

PLEASE NOTE: 12 other pages on this web site provide resources that some may find helpful. They include:

I hope you find these resources helpful.

Online Resources

Alzheimer's Association: Resources include 24-hour helpline, senior housing finder, care-finder, & library services.

Assisted Living INFO: "online guide for selecting an assisted living facility, retirement community, or other personal care facility anywhere in the United States. Our site is designed to assist you throughout the selection process. We offer tools to help you evaluate a senior's needs, facility selection tips, and our highly-acclaimed, map-based search engine to find a facility near family and friends."

Buddhist Hospice Directory: Listing, descriptions, & links to Buddhist organizations offering hospice and palliative care services.

Canadian Hospice Palliative Care Association: Information and services including an "on-line directory...designed to provide you with information on the availability of hospice palliative care services across Canada. Here you will find a listing of programs and services, their contact information, the population they serve, and where they provide care."

Cancer Care: "CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs – including counseling, education, financial assistance and practical help – are provided by trained oncology social workers and are completely free of charge."

Caregiver: information for family & professional caregivers; includes online listings for each state's Support Groups, Non-Profit Resources, Financial Aid. & Rural Caregiver Resources.

Caregiver Resources: web sites, books, chapters, and articles to provide information, support, and other resources for caregivers and their clinicians.

CaringBridge: "Free, personalized web sites that support and connect loved ones during critical illness.... A CaringBridge website helps keep loved ones informed during difficult times. In return, family and friends give patient and caregiver support through guestbook messages. Every free, personalized CaringBridge website includes: patient care journal to update family and friends; guestbook for messages of love; photo gallery; & free online support for using the service."

Caring Connections: online resources include "a state-specific living will or healthcare power of attorney"

Compassion and Choices: resources include forms for living will and advance directive (for each state) and hospital visitation authorization form for unmarried partners.

A Dying Person's Guide to Dying by Roger Bone, M.D.: "By thinking ahead about what could happen - and about how you will deal with problems if they do happen, you can create a better life and a better quality of life for yourself and for the people who love and care about you. What I have to say is for the person who, like myself, is dying. We, too, need to plan - to think ahead in order to fashion, out of the time remaining, the best of what is possible. As I am dying from cancer..."

Family Caregiver Alliance: "information on care strategies, stress relief, community resources, family issues and hands-on care. Be sure to also visit our Fact Sheet section for a comprehensive collection of family-friendly publications filled with practical information. For more personal assistance, click on 'Ask FCA'. And don’t miss our online Discussion Groups, to keep you connected, 24 hours a day, with other caregivers."

Gilbert Guide: Allows online searching for facilities & services including: (a) assisted living, (b) homecare, (c) continuing care (CCRC), (d) nursing homes, (e) home health care, (f) geriatric care managers, (g) adult day services, and (h) hospices.

Homecare Directory: online searchable database for home care, hospice care, & geriatric care managers. "the most comprehensive site on the web for finding Home Care, Home Health Care and Hospice Care providers throughout the United States and Canada. We have simplified your search for Homecare, and Hospice Care providers by only listing the most qualified providers within North America. All Home Health Care providers on TheHomeCareDirectory.com are fully licensed, bonded, and insured."

Hospice Directory: online searchable database of hospices in Canada and the United States.

Mayo Clinic: Anticipating end-of-life needs of people with Alzheimer's disease: "The challenges of Alzheimer's disease multiply as the end of life approaches. Here are some ways to prepare for the tough choices ahead."

National Cancer Institute: End-of-Life Care: questions and answers - "The following information can help answer some of the questions that many patients, their family members, and caregivers have about the end of life."

National Hospice & Palliative Care Organization: Find a Provider: Allows online searches by city, name, specialization, etc.

National Institute for Jewish Hospice: "A 24 hour toll-free number counsels families, patients and care-givers, and provides locations of hospices, hospitals, health professionals and clergy of all faiths."

Nursing Home Directory: "free online guide for finding nursing homes and assisted living facilities nationwide."

Nursing Home INFO: Allows online searching for nursing homes by city, county, state, name, management, or special needs.

Palliative Care Directory of Hospitals: searchable online database "to help you or a loved one locate a hospital in your area that provides a palliative care program. The directory is based upon palliative care programs listed in the 2007 American Hospital Association (AHA) Annual Survey."

Palliative Dementia Care Resources: "We are dedicated to providing access to appropriate online resources for family and professional caregivers. In order to be responsive to the needs of caregivers in managing life's changes, preparing for life's end, and coping with grief and loss, our content is focused on those topics that are often most pressing."

Perinatal hospice/palliative care programs and support: online listing and links to hospitals with perinatal hospice/palliative care programs. "As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, some pioneering hospitals and hospices are starting perinatal hospice or perinatal palliative care programs for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth. A perinatal hospice approach walks with these families on their journey through pregnancy, birth and death, honoring the baby as well as the baby's family. Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of hospice (see our resources pages)."

Take Charge of Your Life: "Improving End-of-Life Experiences for Pennsylvanians"; FAQs on Advance Care Planning, Hospice & Palliative Care, Pain Management, etc.

U.S. Department of Health & Human Services: Centers for Medicare & Medicaid Services: comprehensive government web site for medicare & medicaid coverage.

U.S. Department of Health & Human Services: Eldercare Locator: "links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers."

U.S. Health & Human Services Nursing Home Comparison Site: "The primary purpose of this tool is to provide detailed information about the past performance of every Medicare and Medicaid certified nursing home in the country." The site allows you to search by geography (i.e. all homes within a state or county), proximity (within a certain distance of a town or zip code), or name.

Veterans Aid & Attendance Pension Benefit: Guide to using veterans' pension benefit for home care, assisted living, nursing home, etc.


Books


Ahead of Your Time: A Complete Guide for End-of-Life Planning
. Dick Coffin & Sue Coffin. Ahead Of Your Time Publishers, 2007.

American Medical Association Guide to Home Caregiving. American Medical Association. AMA, 2001.

Baby Boomer's Guide to Nursing Home Care. Eric M. Carlson & Katharine Bau Hsiao. Taylor, 2006.

Being With Dying: Cultivating Compassion And Fearlessness In The Presence Of Death. Joan Halifax. Shambhala Publications, 2008.

Caregiving: Hospice-Proven Techniques for Healing Body and Soul. Douglas C. Smith. Wiley, 1997.

Caring for Your Parents. Hugh Delehanty and Elinor Ginzler. AARP, Sterling Publishing Co., Inc., New York, 2005.

Christian Caregiving: A Way of Life. Kenneth C. Haugk. Augsburg Publishing House. 1984.

Circles of Care: How to Set Up Quality Care for Our Elders in the Comfort of Their Own Homes. Ann Cason & Reeve Lindbergh. Shambhala, 2001.

The Comfort of Home: A Complete Guide for Caregivers. Maria M. Meyer & Paula Derr. CareTrust Publications, 2007.

Complete Eldercare Planner, 2nd Edition. Joy Loverde. Three Rivers Press, 2000.

Communicating at the end of life: Finding magic in the mundane. E. Foster. Lawrence Erlbaum Associates Publishers, 2007.

Decision making near the end-of-life: Issues, developments, and future directions. James L. Werth & Dean Blevins (Eds.) Routledge/Taylor & Francis Group, 2009.

Dying at home: a family guide for caregiving. A. Sankar. Johns Hopkins University Press, 1999.

Eldercare Handbook: Difficult Choices, Compassionate Solutions. Stella Henry & Ann Convery. Collins Living, 2006.

Eldercare 911: The Caregiver's Complete Handbook for Making Decisions. Susan Beerman. Promethius Books, 2002.

Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent. Barry Jacobs. Guilford Press, 2006.

End-of-Life Advisor: Personal, Legal, and Medical Considerations for a Peaceful, Dignified Death. Susan Dolan & Audrey R. Vizzard. Kaplan Publishing, 2008.

End-of-life Care and Addiction: A Family Systems Approach. S. Y. Bushfield & B. DeFord. Springer, 2010.

End-of-Life Care for Children and Adults With Intellectual and Developmental Disabilities. Sandra Friedman & David Helm. American Association on Intellectual and Developmental Disabilities, 2010.

End-of-Life Handbook: A Compassionate Guide to Connecting with and Caring for a Dying Loved One. David B. Feldman, Stephen Andrew Lasher Jr., & Ira Byock. New Harbinger, 2008.

End-of-Life Issues, Grief, and Bereavement: What Clinicians Need to Know. S. H. Qualls & J. E. Kasi-Godley (Eds.). John Wiley, 2011.

Everything You Need to Know About Nursing Homes: The Family's Comprehensive Guide to Either Working with the Institution or Finding Care Alternatives. Charlotte Digregorio. Civetta Press, 2005.

Family Hospice Care: Pre-Planning and Care Guide. Harry van Bommel. Media Futures Institute, 2006.

A Final Farewell: Your Personal Guide to End of Life Issues. Nancy Lawson. Legacy, 2002.

Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying. Maggie Callanan & Patricia Kelley. Bantom, 1997.

Final Journeys: A Practical Guide for Bringing Care and Comfort at the End of Life. Maggie Callanan. Bantam, 2009.

Freedom To Choose: How To Make End-of-Life Decisions on Your Own. George Burnell. Baywood, 2008.

Guide to Caregiving in the Final Months of Life. Betsy Murphy & Linda Roberts. T. M. Brown Publishers, 2007.

Helping Professional's Guide to End-of-Life Care: Practical Tools for Emotional, Social, and Spiritual Support for the Dying. A. Strada. New Harbinger, 2013.

Hospice Care for Children (2nd ed.). A. Armstrong-Dailey & S. Zarbock. Oxford University Press, 2001.

Hospice Care at Home: A Guide to Caring for Your Dying Loved One at Home. Starr Calo-oy & Bob Calo-oy. Orchard Publications, 2006.

The Hospice Choice: In Pursuit of a Peaceful Death. by Marcia Lattanzi-Licht, Galen W. Miller, & John J. Mahoney. Fireside, 1998.

The Hospice Companion, 2nd Edition. P. G. Fine & M. Kestenbaum. Oxford University Press, 2012.

Hospice Handbook: A Complete Guide. Larry Beresford & Elisabeth Kubler-Ross. Little, Brown, 1993.

Hospice and Palliative Care: Concepts and Practice, Second Edition. Denice C. Sheehan. Jones and Bartlett, Publishers, 2003.

Hospice and Palliative Care: The Essential Guide, Second Edition. Stephen R. Connor. Routledge, 2009.

Hospice and Palliative Care Formulary USA, 2nd Edition. Robert Twycross and Andrew Wilcock. Palliativedrugs.Com Ltd, 2008.

How to Find Great Senior Housing: A Roadmap for Elders and Those Who Love Them, 2nd Edition. Phyllis Staff. The Best Is Yet.Net Press, 2004.

Infection Control In Home Care and Hospice, 2nd Edition. Emily Rhinehart & Mary McGoldrick Friedman. Jones & Bartlett, 2005.

Insider's Guide to Better Nursing Home Care: 75 Tips You Should Know. Donna M. Reed. Promethius, 2008.

Journey through the Dying Process: Caring for a Loved one at the End of Life. Fairview Health Services. Fairview Press, 2003.

Let Me Decide: What You Need to Know Now about End-Of-Life Care. William Molloy. Penguin Books Canada, 2005.

Living at the End of Life: A Hospice Nurse Addresses the Most Common Questions. Karen Whitley Bell. Sterling Ethos, 2009.

Living Well in a Nursing Home: Everything You & Your Folks Need to Know. Lynn Dickinson, Xenia Vosen, & Severine Biedermann. Hunter House, 2005.

Longing for Nothingness: Resistance, Denial, and the Place of Death in the Nursing Home. Andrew Stein. Jason Aronson, 2010.

Needs of the Dying: A Guide for Bringing Hope, Comfort, and Love to Life's Final Chapter. David Kessler. Harper, 2007.

Notes from the Waiting Room: Managing a Loved One's End-of-Life-Hospitalization (includes Choosing End-of-Life Care Without Hospitalization). Bart Windrum. Axiom Action, 2008.

Nursing Homes: The Family's Journey. Peter S. Silin. Johns Hopkins University Press, 2001.

Nursing Home Survival Guide: An Insider's Perspective on Everything from Admission to Discharge. L. Green. CreateSpace, 2012.

On Death and Dying: What the Dying Have to Teach their Doctors, Nurses, Clergy, and their Own Families. Elisabeth Kubler-Ross. Scribner, 1969.

Palliative care: Transforming the care of serious illness. (Robert Wood Johnson Foundation series on health policy) Diane Meier, Stephen Isaacs, & Robert Hughes (Eds). Jossey-Bass, 2010.

Peaceful Dying: The Step-by-step Guide To Preserving Your Dignity, Your Choice, And Your Inner Peace At The End Of Life. Daniel R. Tobin, With & Karen Lindsey. Da Capo Press, 1968.

Peaceful Journey: A Hospice Chaplain's Guide to End-of-Life. Matthew P. Binkewicz. Paramount Market Publishing, 2005.

Providing The Best Care Option For Your Elderly Parents: Everything you need to know about elderly care including homecare, assisted living, nursing home options, hospice, and more! CreateSpace, 2009.

Raising Moms. Rhonda H. Kelley. New Hope Publishers, 2006.

The Senior's Guide to End-of-Life Issues: Advance Directives, Wills, Funerals & Cremations. Rebecca Sharp Colmer & Todd M. Thomas. Eklektika Press, 2006.

Staying in Charge: Practical Plans for the End of Your Life. Karen Orloff Kaplan & Christopher Lukas. Wiley, 2004.

Transitions in Dying and Bereavement: A Psychosocial Guide for Hospice and Palliative Care. Moira Cairns, Marney Thompson, Wendy Wainwright, & Victoria Hospice Society. Health Professions Press, 2003.

 When Someone You Love Needs Nursing Home Care: The Complete Guide, 2nd Edition. Robert F. Bornstein, Mary A., Ph.D. Languirand, & Robert Bornstein. Newmarket Press, 2009.       

 

Hospice Articles & Chapters

 

  1. Abdel-Karim, I. A., Sammel, R. B., & Prange, M. A. (2007). Causes of death at autopsy in an inpatient hospice program. Journal of Palliative Medicine, 10(4), 894-898.
  2. Ackson, A., Hodson, M., Brady, D., & Pahl, N. (2007). Spreading the word...Hospice Information systems. Omega: Journal of Death and Dying, 56(1), 47-62.
  3. Adamle, K. N., & Ludwick, R. (2005). Humor in hospice care: Who, where, and how much? American Journal of Hospice & Palliative Medicine, 22(4), 287-290.
  4. Adunsky, A., Aminoff, B. Z., Arad, M., & Bercovitch, M. (2008). Mini-Suffering State Examination: Suffering and survival of end-of-life cancer patients in a hospice setting. American Journal of Hospice & Palliative Medicine, 24(6), 493-498.
  5. Andruccioli, J., Montesi, A., Raffaeli, W., Monterubbianesi, M. C., Turci, P., Pittureri, C., et al. (2007). Illness awareness of patients in hospice: Psychological evaluation and perception of family members and medical staff. Journal of Palliative Medicine, 10(3), 741-748.
  6. Arber, A. (2007). "Pain talk" in hospice and palliative care team meetings: An ethnography. International Journal of Nursing Studies, 44(6), 916-926.
  7. Ardelt, M., & Koenig, C. S. (2006). The Role of Religion for Hospice Patients and Relatively Healthy Older Adults. Research on Aging, 28(2), 184-215.
  8. Arnup, K. (2009). Lessons in death and dying. Journal of Palliative Care, 25, 109-110.
  9. Azoulay, D., Hammerman-Rozenberg, R., Cialic, R., Ein Mor, E., Jacobs, J. M., & Stessman, J. (2008). Increasing opioid therapy and survival in a hospice. J Am Geriatr Soc, 56(2), 360-361.
  10. Bain, K. T., & Weschules, D. J. (2007). Medication inappropriateness for older adults receiving hospice care: a pilot survey. Consult Pharm, 22(11), 926-934.
  11. Barclay, J. S., Kuchibhatla, M., Tulsky, J. A., & Johnson, K. S. (2013). Association of hospice patients' income and care level with place of death. JAMA Intern Med, 173(6), 450-456. doi: 10.1001/jamainternmed.2013.2773
  12. Barr, P. (2013). In the preferred setting? Reimbursement's role in hospice vs. skilled nursing. Mod Healthc, 43(3), 30-31.
  13. Bevins, M. (2009). Hospice care for children. Journal of the American Medical Association, 301(10), 1073-1074.
  14. Beyea, A., Fischer, J., Schenck, A., & Hanson, L. C. (2013). Integrating palliative care information and hospice referral in medicaid primary care. J Palliat Med, 16(4), 376-382. doi: 10.1089/jpm.2012.0483
  15. Blaschko, S. (2007). Hospice. Families, Systems, & Health, 25(1), 133.
  16. Broom, A., & Kirby, E. (2013). The end of life and the family: hospice patients' views on dying as relational. Sociol Health Illn, 35(4), 499-513. doi: 10.1111/j.1467-9566.2012.01497.x
  17. Brown, M. V. (2011). How they cope: A qualitative study of the coping skills of hospice volunteers.American Journal of Hospice & Palliative Medicine, 28(6), 398-402.
  18. Brown, W. (2008). Opioid use in dying patients in hospice and hospital, with and without specialist palliative care team involvement. European Journal of Cancer Care, 17(1), 65-71.
  19. Bruce, A., & Davies, B. (2005). Mindfulness in Hospice Care: Practicing Meditation-in-Action. Qualitative Health Research, 15(10), 1329-1344.
  20. Bushfield, S. (2010). Use of spiritual life maps in a hospice setting. Journal of Religion, Spirituality & Aging, 22(4), 254-270.
  21. Cagle, J. G., & Kovacs, P. J. (2011). Informal caregivers of cancer patients: Perceptions about preparedness and support during hospice care. Journal of Gerontological Social Work, 54(1), 92-
  22. Carlson, B., Simopolous, N., Goy, E. R., Jackson, A., & Ganzini, L. (2005). Oregon Hospice Chaplains' Experiences with Patients Requesting Physician-Assisted Suicide. Journal of Palliative Medicine, 8(6), 1160-1166.
  23. Carlson, M. D. A., Morrison, R. S., Holford, T. R., & Bradley, E. H. (2007). Hospice care: What services do patients and their families receive? Health Services Research, 42(4), 1672-1690.
  24. Casarett, D., Crowley, R., Stevenson, C., Xie, S., & Teno, J. (2005). Making Difficult Decisions About Hospice Enrollment: What Do Patients and Families Want to Know? Journal of the American Geriatrics Society, 53(2), 249-254.
  25. Catt, S., Blanchard, M., Addington-Hall, J., Zis, M., Blizard, R., & King, M. (2005). Older adults' attitudes to death, palliative treatment and hospice care. Palliative Medicine, 19(5), 402-410.
  26. Cherney, C. L. (2008). Determining hospice benefit for patients with dementia. JAMA: Journal of the American Medical Association, 299(15), 1774.
  27. Cheung, W. Y., Schaefer, K., May, C. W., Glynn, R. J., Curtis, L. H., Stevenson, L. W., et al. (2013). Enrollment and events of hospice patients with heart failure vs. cancer. J Pain Symptom Manage, 45(3), 552-560. doi: 10.1016/j.jpainsymman.2012.03.006
  28. Chui, Y. Y., Kuan, H. Y., Fu, I. C. Y., Liu, R. K. Y., Sham, M. K., & Lau, K. S. (2009). Factors associated with lower quality of life among patients receiving palliative care. Journal of Advanced Nursing, 65, 1860-1871.
  29. Claxton-Oldfield, S., Gibbon, L., & Schmidt-Chamberlain, K. (2011). When to say "yes" and when to say "no": Boundary issues for hospice palliative care volunteers.American Journal of Hospice & Palliative Medicine, 28(6), 429-434.
  30. Connor, S. R. (2007). Development of hospice and palliative care in the United States. Omega: Journal of Death and Dying, 56(1), 89-99.
  31. Connor, S. R. Development of hospice and palliative care in the United States. Omega (Westport), 56(1), 89-99.
  32. Connor, S. R., Lycan, J., Schumacher, J. D., Werth Jr, J. L., & Blevins, D. (2006). Involvement of Psychologists in Psychosocial Aspects of Hospice and End-of-Life Care. In Psychosocial issues near the end of life: A resource for professional care providers. (pp. 203-217): American Psychological Association: Washington.
  33. Connor, S. R., Pyenson, B., Fitch, K., Spence, C., & Iwasaki, K. (2007). Comparing Hospice and Nonhospice Patient Survival Among Patients Who Die Within a Three-Year Window. Journal of Pain and Symptom Management, 33(3), 238-246.
  34. Corr, C. A. (2007). Hospice: Achievements, legacies, and challenges. Omega: Journal of Death and Dying, 56(1), 111-120.
  35. Csikai, E. L. (2006). Bereaved hospice caregivers' perceptions of the end-of-life care communication process and the involvement of health care professionals. Journal of Palliative Medicine, 9(6), 1300-1309.
  36. Davies, B., Collins, J. B., Steele, R., Cook, K., Brenner, A., & Smith, S. (2005). Children's Perspectives of a Pediatric Hospice Program. Journal of Palliative Care, 21(4), 252-261.
  37. Davies, B., Collins, J., Steele, R., Cook, K., Distler, V., & Brenner, A. (2007). Parents' and children's perspectives of a children's hospice bereavement program. Journal of Palliative Care, 23(1), 14-23.
  38. De Lima, L., & Doyle, D. (2007). The International Association for Hospice and Palliative Care list of essential medicines for palliative care. Journal of Pain & Palliative Care Pharmacotherapy, 21(3), 29-36.
  39. DePalma, J. A. (2005). Evidence-Based Decision Making for Administrators: Hospice Program Example. Home Health Care Management & Practice, 17(6), 483-484.
  40. Department of Veterans, A. (2013). Payment for home health services and hospice care to non-VA providers. Final rule. Fed Regist, 78(87), 26250-26251.
  41. Doberman, D. J., Yasar, S., & Durso, S. C. (2007). Would you refer this patient to hospice? An evaluation of tools for determining life expectancy in end-stage dementia. Journal of Palliative Medicine, 10(6), 1410-1427.
  42. Dobratz, M. C. (2005). A Comparative Study of Life-Closing Spirituality in Home Hospice Patients. Research and Theory for Nursing Practice: An International Journal, 19(3), 243-256.
  43. Elliott, G., & Umeh, K. (2013). Psychological issues in voluntary hospice care. Br J Nurs, 22(7), 377-383.
  44. Fischberg, D., Bull, J., Casarett, D., Hanson, L. C., Klein, S. M., Rotella, J., et al. (2013). Five things physicians and patients should question in hospice and palliative medicine. J Pain Symptom Manage, 45(3), 595-605. doi: 10.1016/j.jpainsymman.2012.12.002
  45. Frahm, K. A., Barnett, S. D., & Brown, L. M. (2011). Trends in hospice utilization across age among the veteran population.American Journal of Hospice & Palliative Medicine, 28(6), 424-428
  46. Frey, R., Gott, M., Raphael, D., Black, S., Teleo-Hope, L., Lee, H., et al. (2013). 'Where do I go from here'? A cultural perspective on challenges to the use of hospice services. Health Soc Care Community. doi: 10.1111/hsc.12038
  47. Germain, M. J., Cohen, L. M., & Moss, A. H. (2007). Strategies for timely and effective hospice discussions: end-stage renal disease. Ann Intern Med, 147(11), 816; author reply 817.
  48. Gingerich, B. S. (2005). Accreditation Commission for Health Care's New Hospice Standards Manual. Home Health Care Management & Practice, 17(6), 489-491.
  49. Gozalo, P. L., & Miller, S. C. (2007). Hospice Enrollment and Evaluation of Its Causal Effect on Hospitalization of Dying Nursing Home Patients. Health Services Research, 42(2), 587-610.
  50. Groen, K. M. (2007). Pain assessment and management in end of of life care: A survey of assessment and treatment practices of hospice music therapy and nursing professionals. Journal of Music Therapy, 44(2), 90-112.
  51. Ha, C., Reddy, A., Tavel, L., & Bruera, E. (2013). Discussing Goals of Care for a Delirious Advanced Cancer Patient in the Hospice Setting. J Palliat Med. doi: 10.1089/jpm.2012.0366
  52. Hallenbeck, J., Hickey, E., Czarnowski, E., Lehner, L., & Periyakoil, V. S. (2007). Quality of Care in a Veterans Affairs' Nursing Home-Based Hospice Unit. Journal of Palliative Medicine, 10(1), 127-135.
  53. Hanson, L. C., Scheunemann, L. P., Zimmerman, S., Rokoske, F. S., & Schenck, A. P. (2010). The PEACE project review of clinical instruments for hospice and palliative care. Journal of Palliative Medicine, 13(10), 1253-1260.
  54. Hanson, L. C., Sengupta, S., & Slubicki, M. (2005). Access to Nursing Home Hospice: Perspectives of Nursing Home and Hospice Administrators. Journal of Palliative Medicine, 8(6), 1207-1213.
  55. Harris, P., Wong, E., Farrington, S., Craig, T. R., Harrold, J. K., Oldanie, B., et al. (2013). Patterns of functional decline in hospice: what can individuals and their families expect? J Am Geriatr Soc, 61(3), 413-417. doi: 10.1111/jgs.12144
  56. Harrison, J. P., & Ford, D. (2007). A comprehensive community-based model for hospice care. \American Journal of Hospice & Palliative Medicine, 24(2), 119-125.
  57. Harrold, J., Harris, P., Green, D., Craig, T., & Casarett, D. J. (2013). Effect of the Medicare face-to-face visit requirement on hospice utilization. J Palliat Med, 16(2), 163-166. doi: 10.1089/jpm.2012.0349
  58. Haxton, J. E., & Boelk, A. Z. (2010). Serving families on the frontline: Challenges and creative solutions in rural hospice social work. Social Work in Health Care, 49(6), 526-550
  59. Hiatt, K., Stelle, C., Mulsow, M., & Scott, J. P. (2007). The importance of perspective: Evaluation of hospice care from multiple stakeholders. American Journal of Hospice & Palliative Medicine, 24(5), 376-382.
  60. Holohan, B. (2007). Private home care and hospice: The call for collaboration. Home Health Care Management & Practice, 19(5), 364-368.
  61. Huynh, B. C., Rovner, A., & Rich, M. W. (2008). Identification of older patients with heart failure who may be candidates for hospice care: development of a simple four-item risk score. J Am Geriatr Soc, 56(6), 1111-1115.
  62. Irwin, S. A., Rao, S., Bower, K. A., Palica, J., Rao, S. S., Maglione, J. E., et al. (2008). Psychiatric issues in palliative care: Recognition of delirium in patients enrolled in hospice care. Palliat Support Care, 6(2), 159-164.
  63. Irwin, S. A., Rao, S., Bower, K., Palica, J., Rao, S. S., Maglione, J. E., et al. (2008). Psychiatric issues in palliative care: recognition of depression in patients enrolled in hospice care. J Palliat Med, 11(2), 158-163.
  64. Jack, B. A., Baldry, C. R., Groves, K. E., Whelan, A., Sephton, J., & Gaunt, K. (2013). Supporting home care for the dying: an evaluation of healthcare professionals' perspectives of an individually tailored hospice at home service. J Clin Nurs. doi: 10.1111/j.1365-2702.2012.04301.x
  65. Jasper, J. W., & A. (2007). Kenosis in hospice patients and the effect of educating their caregivers. ProQuest Information & Learning: US.
  66. Johnson, C., & Arrington, D. B. (2007). Art therapy in the hospice setting. In Art, angst, and trauma: Right brain interventions with developmental issues. (pp. 208-229): Charles C. Thomas Publisher: Springfield.
  67. Jones, B. W. (2013). Evidence-based practice in hospice: is qualitative more appropriate than quantitative? Home Healthc Nurse, 31(4), 184-188. doi: 10.1097/NHH.0b013e3182885ec4
  68. Joyce, B. T., & Lau, D. T. (2013). Hospice experiences and approaches to support and assess family caregivers in managing medications for home hospice patients: a providers survey. Palliat Med, 27(4), 329-338. doi: 10.1177/0269216312465650
  69. Kabel, A. (2013). The Snog and Grog Club: social personhood in hospice care. Qual Health Res, 23(2), 147-155. doi: 10.1177/1049732312467707
  70. Kapo, J., Harrold, J., Carroll, J. T., Rickerson, E., & Casarett, D. (2005). Are We Referring Patients to Hospice Too Late? Patients' and Families' Opinions. Journal of Palliative Medicine, 8(3), 521-527.
  71. Kapp, S. A., & Nelson-Becker, H. B. (2007). Evaluating hospice services for improvement: A manageable approach. Journal of Pain & Palliative Care Pharmacotherapy, 21(2), 17-26.
  72. Kayser-Jones, J. S., Kris, A. E., Miaskowski, C. A., Lyons, W. L., & Paul, S. M. (2006). Hospice Care in Nursing Homes: Does It Contribute to Higher Quality Pain Management? The Gerontologist, 46(3), 325-333.
  73. Keating, N. L., Landrum, M. B., Guadagnoli, E., Winer, E. P., & Ayanian, J. Z. (2008). Care in the months before death and hospice enrollment among older women with advanced breast cancer. J Gen Intern Med, 23(1), 11-18.
  74. Kelley, M., Demiris, G., Nguyen, H., Oliver, D. P., & Wittenberg-Lyles, E. (2013). Informal hospice caregiver pain management concerns: A qualitative study. Palliat Med. doi: 10.1177/0269216313483660
  75. Kinsella, A. (2005). Telehealth in Hospice Care, or Telehospice: A New Frontier of Telehealth Service Delivery. Journal of Palliative Medicine, 8(4), 711-712.
  76. Klein, R. E., & Burns, G. W. (2007). The metaphor that sang its own sad song: Therapeutic storytelling in pediatric hospice care. In Healing with stories: Your casebook collection for using therapeutic metaphors. (pp. 199-209): John Wiley & Sons Inc: Hoboken.
  77. Lawson, R. (2007). Home and hospital; hospice and palliative care: How the environment impacts the social work role. Journal of Social Work in End-of-Life & Palliative Care, 3(2), 3-17.
  78. Leigh, A. E., Burgio, K. L., Williams, B. R., Kvale, E., & Bailey, F. A. (2013). Hospice emergency kit for veterans: a pilot study. J Palliat Med, 16(4), 356-361. doi: 10.1089/jpm.2012.0304
  79. Lindley, L. C., Mark, B. A., Daniel Lee, S. Y., Domino, M., Song, M. K., & Jacobson Vann, J. (2013). Factors associated with the provision of hospice care for children. J Pain Symptom Manage, 45(4), 701-711. doi: 10.1016/j.jpainsymman.2012.03.010
  80. Locher, J. L., Kilgore, M. L., Morrisey, M. A., & Ritchie, C. S. (2006). Patterns and Predictors of Home Health and Hospice Use by Older Adults with Cancer. Journal of the American Geriatrics Society, 54(8), 1206-1211.
  81. Lynch, S. (2013). Hospice and palliative care access issues in rural areas. Am J Hosp Palliat Care, 30(2), 172-177. doi: 10.1177/1049909112444592
  82. Martin, D. (2006). Review of Dying Declarations: Notes From a Hospice Volunteer. Psychiatric Services, 57(5), 746.
  83. McKee, M., Kelley, M. L., & Guirguis-Younger, M. (2007). So no one dies alone: a study of hospice volunteering with rural seniors. J Palliat Care, 23(3), 163-172.
  84. McMillan, S. C., & Small, B. J. (2007). Using the COPE intervention for family caregivers to improve symptoms of hospice homecare patients: A clinical trial. Oncology Nursing Forum, 34(2), 313-321.
  85. Mee, C. L. (2007). Hospice care. Nursing, 37(11), 43.
  86. Metzger, M., Norton, S. A., Quinn, J. R., & Gramling, R. (2013). "That Don't Work for Me": Patients' and Family Members' Perspectives on Palliative Care and Hospice in Late-Stage Heart Failure. J Hosp Palliat Nurs, 15(3), 177-182. doi: 10.1097/NJH.0b013e3182798390
  87. Miller, S. C., Lima, J. C., & Mitchell, S. L. (2010). Hospice care for persons with dementia: The growth of access in US nursing homes. American Journal of Alzheimer's Disease and Other Dementias, 25(8), 666-673.
  88. Mitchell, S. L., Kiely, D. K., Miller, S. C., Connor, S. R., Spence, C., & Teno, J. M. (2007). Hospice care for patients with dementia. Journal of Pain and Symptom Management, 34(1), 7-16.
  89. Modi, S., & Moore, C. (2005). Which late-stage Alzheimer's patients should be referred for hospice care? The Journal of Family Practice, 54(11), 984-986.
  90. Moffatt, P. (2007). Hospice: the heart of end-of-life-care. Int J Palliat Nurs, 13(10), 508-509.
  91. Monroe, T. B., Carter, M. A., Feldt, K. S., Dietrich, M. S., & Cowan, R. L. (2013). Pain and hospice care in nursing home residents with dementia and terminal cancer. Geriatr Gerontol Int. doi: 10.1111/ggi.12049
  92. Moon, P. J. (2010). Troubling everyday hospice: Some thoughts. American Journal of Hospice & Palliative Medicine, 27(5), 303-305.
  93. Moore, A., Carter, B., Hunt, A., & Sheikh, K. (2013). 'I am closer to this place'--space, place and notions of home in lived experiences of hospice day care. Health Place, 19, 151-158. doi: 10.1016/j.healthplace.2012.11.002
  94. Munn, J. C., Hanson, L. C., Zimmerman, S., Sloane, P. D., & Mitchell, C. M. (2006). Is Hospice Associated with Improved End-of-Life Care in Nursing Homes and Assisted Living Facilities? Journal of the American Geriatrics Society, 54(3), 490-495.
  95. Neigh, J. E. (2007). Additional data necessary for hospice claims effective January 2008: "V" code principle diagnosis claims no longer acceptable. Caring, 26(9), 60-61.
  96. Neigh, J. E. (2008). Hospice 2007 regulatory issues. Caring, 27(2), 10-11.
  97. Newman, A., Thompson, J., & Chandler, E. M. (2013). Continuous care: a home hospice benefit. Clin J Oncol Nurs, 17(1), 19-20. doi: 10.1188/13.CJON.19-20
  98. Oliver, D. P., & Demiris, G. (2010). Comparing face-to-face and telehealth-mediated delivery of a psychoeducational intervention: A case comparison study in hospice. Telemedicine and e-Health, 16(6), 751-753.
  99. Oliver, D. P., Wittenberg-Lyles, E., Demiris, G., Washington, K., Porock, D., & Day, M. (2008). Barriers to Pain Management: Caregiver Perceptions and Pain Talk by Hospice Interdisciplinary Teams. J Pain Symptom Manage.
  100. Online resources for culturally and linguistically appropriate services for home healthcare and hospice, part 5: resources for african patients. (2013). Home Healthc Nurse, 31(5), 277-279. doi: 10.1097/NHH.0b013e3182965beb
  101. Peck, C. A. (2006). Review of Transitions in Dying and Bereavement: A Psychosocial Guide for Hospice and Palliative Care. Educational Gerontology, 32(9), 803-804
  102. Planalp, S., Trost, M. R., & Berry, P. H. (2011). Spiritual feasts: Meaningful conversations between hospice volunteers and patients.American Journal of Hospice & Palliative Medicine, 28(7), 483-486.
  103. Portenoy, J., & Teno, J. M. (2007). Hispanic language version of the family evaluation of hospice care. J Pain Symptom Manage, 34(5), 459-461.
  104. Portenoy, R. K., Sibirceva, U., Smout, R., Horn, S., Connor, S., Blum, R. H., et al. (2006). Opioid Use and Survival at the End of Life: A Survey of a Hospice Population. Journal of Pain and Symptom Management, 32(6), 532-540.
  105. Prince-Paul, M. (2008). Relationships among communicative acts, social well-being, and spiritual well-being on the quality of life at the end of life in patients with cancer enrolled in hospice. Journal of Palliative Medicine, 11(1), 20-25.
  106. Prince-Paul, M. Relationships among communicative acts, social well-being, and spiritual well-being on the quality of life at the end of life in patients with cancer enrolled in hospice. J Palliat Med, 11(1), 20-25.
  107. Rabbetts, L. (2013). The challenges patients experience in speaking about death: a guide for home healthcare and hospice clinicians. Home Healthc Nurse, 31(2), 58-64. doi: 10.1097/NHH.0b013e31827f42b0
  108. Renzenbrink, I. (2007). The shadow side of hospice care. Illness, Crisis, & Loss, 15(3), 245-259.
  109. Resnick, H. E., Hickman, S. E., & Foster, G. L. (2011). Advance directives in home health and hospice agencies: United States, 2007.American Journal of Hospice & Palliative Medicine, 28(7), 467-474. 
  110. Rhodes, R. L., Mitchell, S. L., Miller, S. C., Connor, S. R., & Teno, J. M. (2008). Bereaved family members evaluation of hospice care: what factors influence overall satisfaction with services? J Pain Symptom Manage, 35(4), 365-371.
  111. Rhodes, R. L., Teno, J. M., & Welch, L. C. (2006). Access to Hospice for African Americans: Are They Informed about the Option of Hospice? Journal of Palliative Medicine, 9(2), 268-272.
  112. Rickerson, E., Harrold, J., Kapo, J., Carroll, J. T., & Casarett, D. (2005). Timing of Hospice Referral and Families' Perceptions of Services: Are Earlier Hospice Referrals Better? Journal of the American Geriatrics Society, 53(5), 819-823.
  113. Riker, G. I., & Setter, S. M. (2013). Polypharmacy in older adults at home: what it is and what to do about it-implications for home healthcare and hospice, part 2. Home Healthc Nurse, 31(2), 65-77; quiz 78-69. doi: 10.1097/NHH.0b013e31827f43b2
  114. Roscoe, L. A., & Hyer, K. (2008). Quality of life at the end of life for nursing home residents: Perceptions of hospice and nursing home staff members. Journal of Pain and Symptom Management, 35(1), 1-9.
  115. Roscoe, L. A., & Schonwetter, R. S. (2006). Improving access to hospice and palliative care for patients near the end of life: Present status and future direction. Journal of Palliative Care, 22(1), 46-50.
  116. Salloch, S., & Breitsameter, C. (2010). Morality and moral conflicts in hospice care: Results of a qualitative interview study. Journal of Medical Ethics: Journal of the Insitute of Medical Ethics, 36(10), 588-592.
  117. Sanders, S., Mackin, M. L., Reyes, J., Herr, K., Titler, M., Fine, P., & Forcucci, C. (2010). Implementing evidence-based practices: Considerations for the hospice setting. American Journal of Hospice & Palliative Medicine, 27(6), 369-376.
  118. Santos, D. (2010). Motivations of hospice volunteers. American Journal of Hospice & Palliative Medicine, 27(5), 357.
  119. Schenck, A. P., Rokoske, F. S., Durham, D. D., Cagle, J. G., & Hanson, L. C. (2010). The PEACE Project: Identification of quality measures for hospice and palliative care. Journal of Palliative Medicine, 13(12), 1451-1459.
  120. Schim, S. M., Doorenbos, A. Z., & Borse, N. N. (2006). Enhancing Cultural Competence Among Hospice Staff. American Journal of Hospice & Palliative Medicine, 23(5), 404-411.
  121. Schonwetter, R. (2006). Hospice and palliative medicine goes mainstream. Journal of Palliative Medicine, 9(6), 1240-1242.
  122. Schonwetter, R. (2006). Hospice and Palliative Medicine: Ten Years Has Made a Difference. Journal of Palliative Medicine, 9(2), 236-238.
  123. Schonwetter, R. S., Roscoe, L. A., Nwosu, M., Zilka, B., & Kim, S. (2006). Quality of Life and Symptom Control in Hospice Patients with Cancer Receiving Chemotherapy. Journal of Palliative Medicine, 9(3), 638-645.
  124. Sera, L., McPherson, M. L., & Holmes, H. M. (2013). Commonly Prescribed Medications in a Population of Hospice Patients. Am J Hosp Palliat Care. doi: 10.1177/1049909113476132
  125. Shapiro, J. (2007). "Hospice" and "Catching Comprehension". Families, Systems, & Health, 25(1), 130-131.
  126. Shega, J. W., Hougham, G. W., Stocking, C. B., Cox-Hayley, D., & Sachs, G. A. (2008). Patients dying with dementia: experience at the end of life and impact of hospice care. J Pain Symptom Manage, 35(5), 499-507.
  127. Slocum-Gori, S., Hemsworth, D., Chan, W. W., Carson, A., & Kazanjian, A. (2013). Understanding Compassion Satisfaction, Compassion Fatigue and Burnout: a survey of the hospice palliative care workforce. Palliat Med, 27(2), 172-178. doi: 10.1177/0269216311431311
  128. Smith, M. A., Seplaki, C., Biagtan, M., DuPreez, A., & Cleary, J. (2008). Characterizing hospice services in the United States. Gerontologist, 48(1), 25-31.
  129. Steele, L. L., Mills, B., Hardin, S. R., & Hussey, L. C. (2005). The quality of life of hospice patients: Patient and provider perceptions. American Journal of Hospice & Palliative Medicine, 22(2), 95-110.
  130. Steele, R., Davies, B., Collins, J. B., & Cook, K. (2005). End-of-Life Care in a Children's Hospice Program. Journal of Palliative Care, 21(1), 5-11.
  131. Stevenson, D. G., Huskamp, H. A., Grabowski, D. C., & Keating, N. L. (2007). Differences in hospice care between home and institutional settings. Journal of Palliative Medicine, 10(5), 1040-1047.
  132. Strassels, S. A., Blough, D. K., Hazlet, T. K., Veenstra, D. L., & Sullivan, S. D. (2006). Pain, Demographics, and Clinical Characteristics in Persons Who Received Hospice Care in the United States. Journal of Pain and Symptom Management, 32(6), 519-531.
  133. Stuart, B. (2007). Palliative Care and Hospice in Advanced Heart Failure. Journal of Palliative Medicine, 10(1), 210-228.
  134. Teno, J. M., Shu, J. E., Casarett, D., Spence, C., Rhodes, R., & Connor, S. (2007). Timing of referral to hospice and quality of care: Length of stay and bereaved family members' perceptions of the timing of hospice referral. Journal of Pain and Symptom Management, 34(2), 120-125.
  135. Thomas, S. A. (2013). Effective pain management of older adult hospice patients with cancer. Home Healthc Nurse, 31(5), 242-247. doi: 10.1097/NHH.0b013e31828eb4ce
  136. Tyrera, F., & Exley, C. (2005). Receiving care at home at end of life: Characteristics of patients receiving Hospice at Home care. Family Practice, 22(6), 644-646.
  137. Victoroff, M. S. (2000). HMOs best stay mum regarding hospice care. Manag Care, 9(7), 65-66.
  138. Vogt, K. (2006). Productivity Versus Case Management in Hospice. Home Health Care Management & Practice, 18(6), 467-478.
  139. Walworth, D. D. (2007). Review of Hospice and palliative care music therapy: A guide to program development and clinical care. Journal of Music Therapy, 44(1), 85-88.
  140. Washington, K. T., Demiris, G., Oliver, D. P., & Day, M. (2007). Home Internet use among hospice service recipients: recommendations for Web-based interventions. J Med Syst, 31(5), 385-389.
  141. Washington, K. T., Wittenberg-Lyles, E., Parker Oliver, D., Demiris, G., Shaunfield, S., & Crumb, E. (2013). Application of the VALUE communication principles in ACTIVE hospice team meetings. J Palliat Med, 16(1), 60-66. doi: 10.1089/jpm.2012.0229
  142. Weisenfluh, S. M., & Csikai, E. L. (2013). Professional and educational needs of hospice and palliative care social workers. J Soc Work End Life Palliat Care, 9(1), 58-73. doi: 10.1080/15524256.2012.758604
  143. Weschules, D. J., Bain, K. T., Reifsnyder, J., McMath, J. A., Kupperman, D. E., Gallagher, R. M., et al. (2006). Toward Evidence-Based Prescribing at End of Life: A Comparative Analysis of Sustained-Release Morphine, Oxycodone, and Transdermal Fentanyl, with Pain, Constipation, and Caregiver Interaction Outcomes in Hospice Patients. Pain Medicine, 7(4), 320-329.
  144. Wilkinson, S., Croy, P., King, M., & Barnes, J. (2007). Are we getting it right? Parents' perceptions of hospice child bereavement support services. Palliative Medicine, 21(5), 401-407.
  145. Wittenberg-Lyles, E., Oliver, D. P., Kruse, R. L., Demiris, G., Gage, L. A., & Wagner, K. (2013). Family caregiver participation in hospice interdisciplinary team meetings: how does it affect the nature and content of communication? Health Commun, 28(2), 110-118. doi: 10.1080/10410236.2011.652935
  146. Young, J. S. (2013). Online resources for culturally and linguistically appropriate services for home healthcare and hospice, part 5: resources for african patients. Home Healthc Nurse, 31(5), 270-277. doi: 10.1097/NHH.0b013e31828eb573
  147. Young, J. S. (2013). Online resources for culturally and linguistically appropriate services in home healthcare and hospice: part 4: resources for European patients. Home Healthc Nurse, 31(3), 158-166. doi: 10.1097/NHH.0b013e318283880b
  148. Young, J. S. (2013). Resources for Middle Eastern patients: online resources for culturally and linguistically appropriate services in home healthcare and hospice, part 3. Home Healthc Nurse, 31(1), 18-26; quiz 27-18. doi: 10.1097/NHH.0b013e31825c3a9f
  149. Zalenski, R. J., & Raspa, R. (2006). Maslow's Hierarchy of Needs: A Framework for Achieving Human Potential in Hospice. Journal of Palliative Medicine, 9(5), 1120-1127.

 

Nursing Homes Articles & Chapters

  1. Achterberg, W. P., Pot, A. M., Scherder, E. J., & Ribbe, M. W. (2007). Pain in the nursing home: Assessment and treatment on different types of care wards. Journal of Pain and Symptom Management, 34(5), 480-487.
  2. Achterberg, W., Pot, A. M., Kerkstra, A., & Ribbe, M. (2006). Depressive symptoms in newly admitted nursing home residents. International Journal of Geriatric Psychiatry, 21(12), 1156-1162.
  3. Ahn, H., & Horgas, A. (2013). The relationship between pain and disruptive behaviors in nursing home resident with dementia. BMC Geriatr, 13, 14. doi: 10.1186/1471-2318-13-14
  4. Allen, P. D., Nelson, H. W., & Netting, F. E. (2007). Current practice and policy realities revisited: Undertrained nursing home social workers in the U.S. Social Work in Health Care, 45(4), 1-22.
  5. Alrawi, Y. A., Parker, R. A., Harvey, R. C., Sultanzadeh, S. J., Patel, J., Mallinson, R., et al. (2013). Predictors of early mortality among hospitalized nursing home residents. QJM, 106(1), 51-57. doi: 10.1093/qjmed/hcs188
  6. Andel, R., Hyer, K., & Slack, A. (2007). Risk factors for nursing home placement in older adults with and without dementia. Journal of Aging and Health, 19(2), 213-228.
  7. Arling, G., Kane, R. L., Mueller, C., Bershadsky, J., & Degenholtz, H. B. (2007). Nursing effort and quality of care for nursing home residents. The Gerontologist, 47(5), 672-682.
  8. Avitzur, O. (2013). Nursing-home rights & wrongs. Consum Rep, 78(6), 14.
  9. Bakker, T. J., Duivenvoorden, H. J., van der Lee, J., Olde Rikkert, M. G., Beekman, A. T., & Ribbe, M. W. (2013). Benefit of an integrative psychotherapeutic nursing home program to reduce multiple psychiatric symptoms of psychogeriatric patients and caregiver burden after six months of follow-up: a re-analysis of a randomized controlled trial. Int Psychogeriatr, 25(1), 34-46. doi: 10.1017/S1041610212001305
  10. Bauer, M. (2007). Staff-family relationships in nursing home care: A typology of challenging behaviours. International Journal of Older People Nursing, 2(3), 213-218.
  11. Bergdahl, E., Benzein, E., Ternestedt, B. M., Elmberger, E., & Andershed, B. (2013). Co-creating possibilities for patients in palliative care to reach vital goals - a multiple case study of home-care nursing encounters. Nurs Inq. doi: 10.1111/nin.12022
  12. Bern-Klug, M. (2008). The emotional context facing nursing home residents families: a call for role reinforcement strategies from nursing homes and the community. J Am Med Dir Assoc, 9(1), 36-44.
  13. Bern-Klug, M., & Forbes-Thompson, S. (2008). Family members responsibilities to nursing home residents: "she is the only mother I got". J Gerontol Nurs, 34(2), 43-52.
  14. Berry, S. D., Lee, Y., Cai, S., & Dore, D. D. (2013). Nonbenzodiazepine Sleep Medication Use and Hip Fractures in Nursing Home Residents. JAMA Intern Med, 1-8. doi: 10.1001/jamainternmed.2013.3795
  15. Billmeier, S. E., Ayanian, J. Z., He, Y., Jaklitsch, M. T., & Rogers, S. O. (2013). Predictors of nursing home admission, severe functional impairment, or death one year after surgery for non-small cell lung cancer. Ann Surg, 257(3), 555-563. doi: 10.1097/SLA.0b013e31828353af
  16. Black, B. S., Finucane, T., Baker, A., Loreck, D., Blass, D., Fogarty, L., et al. (2006). Health Problems and Correlates of Pain in Nursing Home Residents With Advanced Dementia. Alzheimer Disease & Associated Disorders, 20(4), 283-290.
  17. Blass, D. M., Black, B. S., Phillips, H., Finucane, T., Baker, A., Loreck, D., et al. (2008). Medication use in nursing home residents with advanced dementia. International Journal of Geriatric Psychiatry, 23(5), 490-496.
  18. Borowiak, E., & Kostka, T. (2013). Comparative characteristics of the home care nursing services used by community-dwelling older people from urban and rural environments. J Adv Nurs, 69(6), 1259-1268. doi: 10.1111/j.1365-2648.2012.06113.x
  19. Branco, K. J. (2007). Religious activities, strength from faith, and social functioning among African American and White nursing home residents. Journal of Religion, Spirituality & Aging, 19(4), 3-20.
  20. Brandburg, G. L., Symes, L., Mastel-Smith, B., Hersch, G., & Walsh, T. (2013). Resident strategies for making a life in a nursing home: a qualitative study. J Adv Nurs, 69(4), 862-874. doi: 10.1111/j.1365-2648.2012.06075.x
  21. Briesacher, B. A., Tjia, J., Field, T., Peterson, D., & Gurwitz, J. H. (2013). Antipsychotic use among nursing home residents. JAMA, 309(5), 440-442. doi: 10.1001/jama.2012.211266
  22. Burge, E., von Gunten, A., & Berchtold, A. (2013). Factors favoring a degradation or an improvement in activities of daily living (ADL) performance among nursing home (NH) residents: a survival analysis. Arch Gerontol Geriatr, 56(1), 250-257. doi: 10.1016/j.archger.2012.09.001
  23. Burgio, L. D., Park, N. S., Hardin, J. M., & Sun, F. (2007). A longitudinal examination of agitation and resident characteristics in the nursing home. The Gerontologist, 47(5), 642-649.
  24. Burland, E., Martens, P., Brownell, M., Doupe, M., & Fuchs, D. (2013). The Evaluation of a Fall Management Program in a Nursing Home Population. Gerontologist. doi: 10.1093/geront/gns197
  25. Carlson, W. L., & Snowden, M. (2007). Improving treatment for depression in the nursing home population: Integrating the model of depression care manager. Harvard Review of Psychiatry, 15(3), 128-132.
  26. Castle, N. (2011). Nursing home deficiency citations for abuse.Journal of Applied Gerontology, 30(6), 719-743. 
  27. Castle, N. G. (2013). Nursing home policies. J Aging Soc Policy, 25(1), 1-9. doi: 10.1080/08959420.2012.711665
  28. Castle, N. G., & Engberg, J. B. (2007). Nursing home deficiency citations for medication use. Journal of Applied Gerontology, 26(2), 208-232.
  29. Chan, H. Y. L., & Pang, S. M. C. (2010). Let me talk—An advance care planning programme for frail nursing home residents. Journal of Clinical Nursing, 19(21-22), 3073-3084.
  30. Chang, C. H., Lu, M. S., Lin, T. E., & Chen, C. H. (2013). The Effectiveness of Visual Art on Environment in Nursing Home. J Nurs Scholarsh. doi: 10.1111/jnu.12011
  31. Chang, Y. P., Li, J., & Porock, D. (2013). The effect on nursing home resident outcomes of creating a household within a traditional structure. J Am Med Dir Assoc, 14(4), 293-299. doi: 10.1016/j.jamda.2013.01.013
  32. Chung, G. (2013). Understanding nursing home worker conceptualizations about good care. Gerontologist, 53(2), 246-254. doi: 10.1093/geront/gns117
  33. Cohen-Mansfield, J., & Jensen, B. (2007). Changes in habits related to self-care in dementia: The nursing home versus adult day care. American Journal of Alzheimer's Disease and Other Dementias, 22(3), 184-189.
  34. Cohen-Mansfield, J., & Lipson, S. (2006). To Hospitalize or Not to Hospitalize? That Is the Question: An Analysis of Decision Making in the Nursing Home. Behavioral Medicine, 32(2), 64-70.
  35. Cohen-Mansfield, J., & Wirtz, P. W. (2007). Characteristics of adult day care participants who enter a nursing home. Psychology and Aging, 22(2), 354-360.
  36. Cohen-Mansfield, J., Jensen, B., Resnick, B., & Norris, M. (2012). Assessment and treatment of behavior problems in dementia in nursing home residents: A comparison of the approaches of physicians, psychologists, and nurse practitioners.International Journal of Geriatric Psychiatry, 27(2), 135-145.
  37. Cornali, C., Bianchetti, A., & Trabucchi, M. (2008). End-stage nursing home residents with dementia: recognizing the need for palliative care. J Am Med Dir Assoc, 9(4), 281-283.
  38. Crogan, N. L., Dupler, A. E., Short, R., & Heaton, G. (2013). Food choice can improve nursing home resident meal service satisfaction and nutritional status. J Gerontol Nurs, 39(5), 38-45. doi: 10.3928/00989134-20130313-02
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  155. Stathi, A., & Simey, P. (2007). Quality of life in the fourth age: Exercise experiences of nursing home residents. Journal of Aging and Physical Activity, 15(3), 272-286.
  156. Sterke, C. S., Verhagen, A. P., van Beeck, E. F., & van der Cammen, T. J. (2008). The influence of drug use on fall incidents among nursing home residents: a systematic review. Int Psychogeriatr, 1-21.
  157. Stevenson, D. G. (2006). Nursing Home Consumer Complaints and Quality of Care: A National View. Medical Care Research and Review, 63(3), 347-368.
  158. Stevenson, D. G., Decker, S. L., Dwyer, L. L., Huskamp, H. A., Grabowski, D. C., Metzger, E. D., & Mitchell, S. L. (2010). Antipsychotic and benzodiazepine use among nursing home residents: Findings from the 2004 National Nursing Home Survey. American Journal of Geriatric Psychiatry, 18(12), 1078-1092. doi
  159. Streim, J. E., Katz, I. R., Blazer, D. G., Steffens, D. C., & Busse, E. W. (2007). Clinical psychiatry in the nursing home. In Essentials of geriatric psychiatry. (pp. 375-402): American Psychiatric Publishing.
  160. Sury, L., Burns, K., & Brodaty, H. (2013). Moving in: adjustment of people living with dementia going into a nursing home and their families. Int Psychogeriatr, 25(6), 867-876. doi: 10.1017/S1041610213000057
  161. Tabali, M., Ostermann, T., Jeschke, E., Dassen, T., & Heinze, C. (2013). Does the care dependency of nursing home residents influence their health-related quality of life?-A cross-sectional study. Health Qual Life Outcomes, 11, 41. doi: 10.1186/1477-7525-11-41
  162. Te Boekhorst, S., Depla, M. F., Francke, A. L., Twisk, J. W., Zwijsen, S. A., & Hertogh, C. M. (2013). Quality of life of nursing-home residents with dementia subject to surveillance technology versus physical restraints: an explorative study. Int J Geriatr Psychiatry, 28(4), 356-363. doi: 10.1002/gps.3831
  163. Temkin-Greener, H., Zheng, N. T., Xing, J., & Mukamel, D. B. (2013). Site of Death Among Nursing Home Residents in the United States: Changing Patterns, 2003-2007. J Am Med Dir Assoc. doi: 10.1016/j.jamda.2013.03.009
  164. Tiong, W. W., Yap, P., Huat Koh, G. C., Phoon Fong, N., & Luo, N. (2013). Prevalence and risk factors of depression in the elderly nursing home residents in Singapore. Aging Ment Health. doi: 10.1080/13607863.2013.775638
  165. Trotta, R. L. (2007). Quality of death: A dimensional analysis of palliative care in the nursing home. Journal of Palliative Medicine, 10(5), 1116-1127.
  166. Troyer, J. L., & McAuley, W. J. (2006). Environmental Contexts of Ultimate Decisions: Why White Nursing Home Residents Are Twice as Likely as African American Residents to Have an Advance Directive. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 61(4), S194-S202.
  167. Tsai, H.-H., Tsai, Y.-F., Wang, H.-H., Chang, Y.-C., & Chu, H. H. (2010). Videoconference program enhances social support, loneliness, and depressive status of elderly nursing home residents. Aging & Mental Health, 14(8), 947-954.
  168. Tsan, L., Davis, C., Langberg, R., Hojlo, C., Pierce, J., Miller, M., et al. (2008). Prevalence of nursing home-associated infections in the Department of Veterans Affairs nursing home care units. Am J Infect Control, 36(3), 173-179.
  169. Tse, M. M. Y. (2007). Nursing home placement: Perspectives of community-dwelling older persons. Journal of Clinical Nursing, 16(5), 911-917.
  170. Tse, W., Libow, L. S., Neufeld, R., Lesser, G., Frank, J., Dolan, S., et al. (2008). Prevalence of movement disorders in an elderly nursing home population. Archives of Gerontology and Geriatrics, 46(3), 359-366.
  171. Tuya, A., & Teno, J. (2008). Feeding tubes for nursing home residents with advanced dementia: how to approach feeding tube decisions. Med Health R I, 91(1), 33-34.
  172. Unroe, K. T., Sachs, G. A., Hickman, S. E., Stump, T. E., Tu, W., & Callahan, C. M. (2013). Hospice use among nursing home patients. J Am Med Dir Assoc, 14(4), 254-259. doi: 10.1016/j.jamda.2012.10.006
  173. Unruh, M. A., Grabowski, D. C., Trivedi, A. N., & Mor, V. (2013). Medicaid Bed-Hold Policies and Hospitalization of Long-Stay Nursing Home Residents. Health Serv Res. doi: 10.1111/1475-6773.12054
  174. van Asch, I. F., Nuyen, J., Veerbeek, M. A., Frijters, D. H., Achterberg, W. P., & Pot, A. M. (2013). The diagnosis of depression and use of antidepressants in nursing home residents with and without dementia. Int J Geriatr Psychiatry, 28(3), 312-318. doi: 10.1002/gps.3830
  175. van der Ploeg, E. S., Eppingstall, B., Camp, C. J., Runci, S. J., Taffe, J., & O'Connor, D. W. (2013). A randomized crossover trial to study the effect of personalized, one-to-one interaction using Montessori-based activities on agitation, affect, and engagement in nursing home residents with Dementia. Int Psychogeriatr, 25(4), 565-575. doi: 10.1017/S1041610212002128
  176. Van Houtven, C. H., Taylor Jr., D. H., Steinhauser, K., & Tulsky, J. A. (2009). Is a home-care network necessary to access the Medicare hospice benefit?. Journal of Palliative Medicine, 12, 687-694.
  177. Veronese, N., De Rui, M., Toffanello, E. D., De Ronch, I., Perissinotto, E., Bolzetta, F., et al. (2013). Body mass index as a predictor of all-cause mortality in nursing home residents during a 5-year follow-up. J Am Med Dir Assoc, 14(1), 53-57. doi: 10.1016/j.jamda.2012.09.014
  178. Volicer, L., Frijters, D. H., & van der Steen, J. T. (2013). Apathy and Weight Loss in Nursing Home Residents: Longitudinal Study. J Am Med Dir Assoc. doi: 10.1016/j.jamda.2012.12.004
  179. Vossius, C. E., Ydstebo, A. E., Testad, I., & Luras, H. (2013). Referrals from nursing home to hospital: Reasons, appropriateness and costs. Scand J Public Health, 41(4), 366-373. doi: 10.1177/1403494813484398
  180. Wagner, L. M., McDonald, S. M., & Castle, N. G. (2013). Nursing home deficiency citations for physical restraints and restrictive side rails. West J Nurs Res, 35(5), 546-565. doi: 10.1177/0193945912437382
  181. Washburn, A. M., & Sands, L. P. (2006). Social cognition in nursing home residents with and without cognitive impairment. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 61(3), P174-P179.
  182. Watt, A., & Konnert, C. (2007). Quality of life in the nursing home: perspectives of younger and older residents. Can J Aging, 26(4), 403-410.
  183. Weinick, R. M., Wilcox, S. R., Park, E. R., Griffey, R. T., & Weissman, J. S. (2008). Use of Advance Directives for Nursing Home Residents in the Emergency Department. Am J Hosp Palliat Care.
  184. Williams, C. L., & Tappen, R. M. (2007). Effect of exercise on mood in nursing home residents with Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementias, 22(5), 389-397.
  185. Wilson, R. S., McCann, J. J., Li, Y., Aggarwal, N. T., Gilley, D. W., & Evans, D. A. (2007). Nursing home placement, day care use, and cognitive decline in Alzheimer's disease. American Journal of Psychiatry, 164(6), 910-915.
  186. Woods, D. L., Kim, H., & Yefimova, M. (2013). To nap or not to nap: excessive daytime napping is associated with elevated evening cortisol in nursing home residents with dementia. Biol Res Nurs, 15(2), 185-190. doi: 10.1177/1099800411420861
  187. Xu, D., Kane, R. L., & Shamliyan, T. A. (2013). Effect of nursing home characteristics on residents' quality of life: A systematic review. Arch Gerontol Geriatr. doi: 10.1016/j.archger.2013.03.015
  188. Yeung, D. Y., Kwok, S. Y., & Chung, A. (2013). Institutional peer support mediates the impact of physical declines on depressive symptoms of nursing home residents. J Adv Nurs, 69(4), 875-885. doi: 10.1111/j.1365-2648.2012.06076.x
  189. Yoo, J. W., Nakagawa, S., & Kim, S. (2013). Delirium and transition to a nursing home of hospitalized older adults: a controlled trial of assessing the interdisciplinary team-based "geriatric" care and care coordination by non-geriatrics specialist physicians. Geriatr Gerontol Int, 13(2), 342-350. doi: 10.1111/j.1447-0594.2012.00905.x
  190. Zhuang, J. P., Fang, R., Feng, X., Xu, X. H., Liu, L. H., Bai, Q. K., et al. (2013). The Impact of Human-Computer Interaction-Based Comprehensive Training on the Cognitive Functions of Cognitive Impairment Elderly Individuals in a Nursing Home. J Alzheimers Dis. doi: 10.3233/JAD-130158
  191. Zuidema, S., Koopmans, R., & Verhey, F. (2007). Prevalence and Predictors of Neuropsychiatric Symptoms in Cognitively Impaired Nursing Home Patients. Journal of Geriatric Psychiatry and Neurology, 20(1), 41-49.
  192. Zwakhalen, S. M. G., Hamers, J. P. H., Peijnenburg, R. H. A., & Berger, M. P. F. (2007). Nursing staff knowledge and beliefs about pain in elderly nursing home residents with dementia. Pain Research & Management, 12(3), 177-184.


End-of-Life Articles & Chapters

  1. Ayalon, L., Bachner, Y. G., Dwolatzky, T., & Heinik, J. (2012). Preferences for end-of-life treatment: Concordance between older adults with dementia or mild cognitive impairment and their spouses. International Psychogeriatrics, 24(11), 1798-1804. doi: 10.1017/S1041610212000877
  2. Barnes, S., Gardiner, C., Gott, M., Payne, S., Chady, B., Small, N., et al. (2012). Enhancing patient-professional communication about end-of-life issues in life-limiting conditions: A critical review of the literature. Journal of Pain and Symptom Management, 44(6), 866-879. doi: 10.1016/j.jpainsymman.2011.11.009
  3. Carrion, I. V., & Nedjat-Haiem, F. R. (2013). Caregiving for older latinos at end of life: Perspectives from paid and family (unpaid) caregivers. American Journal of Hospice & Palliative Medicine, 30(2), 183-191. doi: 10.1177/1049909112448227
  4. Chang, B.-H., Stein, N. R., Trevino, K., Stewart, M., Hendricks, A., & Skarf, L. M. (2012). Spiritual needs and spiritual care for veterans at end of life and their families. American Journal of Hospice & Palliative Medicine, 29(8), 610-617. doi: 10.1177/1049909111434139
  5. Gilmer, M. J., Foster, T. L., Bell, C. J., Mulder, J., & Carter, B. S. (2013). Parental perceptions of care of children at end of life. American Journal of Hospice & Palliative Medicine, 30(1), 53-58. doi: 10.1177/1049909112440836
  6. Goddard, C., Stewart, F., Thompson, G., & Hall, S. (2013). Providing end-of-life care in care homes for older people: A qualitative study of the views of care home staff and community nurses. Journal of Applied Gerontology, 32(1), 76-95. doi: 10.1177/0733464811405047
  7. Kwon, S. H., Im, S. H., Cho, K. W., Cho, E., Yoon, S.-J., & Oh, S. Y. (2012). Most advance directives written by patients with advanced cancer or their proxies request only minimally invasive treatments during end-of-life care. American Journal of Hospice & Palliative Medicine, 29(8), 622-626. doi: 10.1177/1049909111435811
  8. Lind, R., Nortvedt, P., Lorem, G., & Hevrøy, O. (2013). Family involvement in the end-of-life decisions of competent intensive care patients. Nursing Ethics, 20(1), 61-71. doi: 10.1177/0969733012448969
  9. Miller, S. C., Lima, J. C., & Mitchell, S. L. (2012). Influence of hospice on nursing home residents with advanced dementia who received Medicare-skilled nursing facility care near the end of life. Journal of the American Geriatrics Society, 60(11), 2035-2041.
  10. Moorman, S. M., & Inoue, M. (2013). Persistent problems in end-of-life planning among young- and middle-aged American couples. The Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 68B(1), 97-106. doi: 10.1093/geronb/gbs103
  11. Rosenberg, T., & Speice, J. (2013). Integrating care when the end is near: Ethical dilemmas in end-of-life care. Families, Systems, & Health, 31(1), 75-83. doi: 10.1037/a0031850
  12. Scott, A. M., & Caughlin, J. P. (2012). Managing multiple goals in family discourse about end-of-life health decisions. Research on Aging, 34(6), 670-691. doi: 10.1177/0164027512446942
  13. Vogel, N., Schilling, O. K., Wahl, H.-W., Beekman, A. T. F., & Penninx, B. W. J. H. (2013). Time-to-death-related change in positive and negative affect among older adults approaching the end of life. Psychology and Aging, 28(1), 128-141. doi: 10.1037/a0030471
  14. Walker, R. W. (2013). Palliative care and end-of-life planning in Parkinson's disease. Journal of Neural Transmission, 120(4), 635-638. doi: 10.1007/s00702-013-0967-3
  15. Wilson, F., Gott, M., & Ingleton, C. (2013). Perceived risks around choice and decision making at end-of-life: A literature review. Palliative Medicine, 27(1), 38-53. doi: 10.1177/0269216311424632
  16. Yao, Y., Keenan, G., Al-Masalha, F., Lopez, K. D., Khokar, A., Johnson, A., et al. (2013). Current state of pain care for hospitalized patients at end of life. American Journal of Hospice & Palliative Medicine, 30(2), 128-136. doi: 10.1177/1049909112444458
  17. Ahern, S. P., Doyle, T. K., Marquis, F., Lesk, C., & Skrobik, Y. (2012). Critically ill patients and end-of-life decision-making: The senior medical resident experience.Advances in Health Sciences Education, 17(1), 121-136.
  18. Akpinar, A., Senses, M. O., Er, R. A. (2009). Attitudes to end-of-life decisions in pediatric intensive care. Nursing Ethics, 16(1), 83-92.
  19. April, C., & Parker, M. (2007). End of life decision-making in neonatal care. Journal of Medical Ethics, 33(3), 126-127.
  20. Babrow, A. S. (2009). Review of Final conversations: Helping the living and the dying talk to each other. Health Communication, 24, 377-378
  21. Becker, G., Sarhatlic, R., Olschewski, M., Xander, C., Momm, F., & Blum, H. E. (2007). End-of-life care in hospital: Current practice and potentials for improvement. Journal of Pain and Symptom Management, 33(6), 711-719.
  22. Bernal, E. W., Marco, C. A., Parkins, S., Buderer, N., & Thum, S. D. (2007). End-of-life decisions: Family views on advance directives. American Journal of Hospice & Palliative Medicine, 24(4), 300-307.
  23. Berzoff, J. (2008). Working at the end of life: Providing clinically based psychosocial care. Clinical Social Work Journal, 36(2), 177-184.
  24. Bickel-Swenson, D. (2007). End-of-Life Training in U.S. Medical Schools: A Systematic Literature Review. Journal of Palliative Medicine, 10(1), 229-235.
  25. Biola, H., Sloane, P. D., Williams, C. S., Daaleman, T. P., Williams, S. W., & Zimmerman, S. (2007). Physician communication with family caregivers of long-term care residents at the end of life. Journal of the American Geriatrics Society, 55(6), 846-856.
  26. Bolmsjo, I. A. (2008). End-of-Life Care for Old People: A Review of the Literature. Am J Hosp Palliat Care.
  27. Boss, R. D. (2008). End-of-life decision-making for infants abandoned in the neonatal intensive care unit. Journal of Palliative Medicine, 11(1), 109-111.
  28. Braun, U. K., Kunik, M. E., & Pham, C. (2008). Treating depression in terminally ill patients can optimize their physical comfort at the end of life and provide them the opportunity to confront and prepare for death. Geriatrics, 63(6), 25-27.
  29. Bryon, E., Gastmans, C., & de Casterl, B. D. (2008). Decision-making about artificial feeding in end-of-life care: literature review. J Adv Nurs.
  30. Burnell, G. M. (2008). Freedom to choose: How to make end-of-life decisions on your own terms: Baywood Publishing Co: Amityville.
  31. Burns, C. M., LeBlanc, T. W., Abernethy, A., & Currow, D. (2010). Young caregivers in the end-of-life setting: A population-based profile of an emerging group. Journal of Palliative Medicine, 13(10), 1225-1235.
  32. Cahana, A., Arigoni, F., & Robert, L. (2007). Attitudes and beliefs regarding the role of interventional pain management at the end-of-life among caregivers: A 4-year perspective. Pain Practice, 7(2), 103-109.
  33. Childress, S. B., & Christensen, A. R. (2007). Improving symptom management at the end of life in the home care environment. Home Health Care Management & Practice, 19(5), 360-363.
  34. Cicirelli, V. G., Tomer, A., Eliason, G. T., & Wong, P. T. P. (2008). End-of-life decisions: Research findings and implications. In Existential and spiritual issues in death attitudes. (pp. 115-138): Lawrence Erlbaum Associates Publishers: Mahwah.
  35. Coggon, J. (2007). Review of Death's dominion--Ethics at the end of life. Journal of Medical Ethics, 33(12), 742.
  36. Cohen, J., van Delden, J., Mortier, F., Norup, M., Cartwright, C., et al. (2008). Influence of physicians' life stances on attitudes to end-of-life decisions and actual end-of-life decision-making in six countries. Journal of Medical Ethics, 34(4), 247-253.
  37. Cohen-Mansfield, J., & Lipson, S. (2008). Which advance directive matters?: An analysis of end-of-life decisions made in nursing homes. Research on Aging, 30(1), 74-92.
  38. Coleman, A. M. E. (2012). End-of-life issues in caring for patients with dementia: The case for palliative care in management of terminal dementia.American Journal of Hospice & Palliative Medicine, 29(1), 9-12.
  39. Curtis, J. R., & Vincent, J.-L. (2010). Ethics and end-of-life care for adults in the intensive care unit. Lancet, 376(9749), 1347-1353.
  40. Daaleman, T. P., Williams, C. S., Hamilton, V. L., & Zimmerman, S. (2008). Spiritual care at the end of life in long-term care. Medical Care, 46(1), 85-91.
  41. DeFanti, T. R. (2010). Changing the cultural view and coverage of end-of-life care. American Journal of Hospice & Palliative Medicine, 27(6), 365-368.
  42. DesHarnais, S., Carter, R. E., Hennessy, W., Kurent, J. E., & Carter, C. (2007). Lack of concordance between physician and patient: Reports on end-of-life care discussions. Journal of Palliative Medicine, 10(3), 728-740.
  43. Devictor, D., Latour, J. M., & Tissires, P. (2008). Forgoing life-sustaining or death-prolonging therapy in the pediatric ICU. Pediatr Clin North Am, 55(3), 791-804.
  44. Dy, S. M., Shugarman, L. R., Lorenz, K. A., Mularski, R. A., & Lynn, J. (2008). A systematic review of satisfaction with care at the end of life. Journal of the American Geriatrics Society, 56(1), 124-129.
  45. Edwards, A., Pang, N., Shiu, V., & Chan, C. (2010). The understanding of spirituality and the potential role of spiritual care in end-of-life and palliative care: A meta-study of qualitative research. Palliative Medicine, 24(8), 753-770.
  46. Eliott, J. A., & Olver, I. N. (2008). Dying cancer patients talk about euthanasia. Soc Sci Med.
  47. Elvidge, K. (2008). Improving pain & symptom management for advanced cancer patients with a clinical decision support system. Stud Health Technol Inform, 136, 169-174.
  48. Formiga, F., Lpez-Soto, A., Navarro, M., Riera-Mestre, A., Bosch, X., & Pujol, R. (2008). Hospital deaths of people aged 90 and over: end-of-life palliative care management. Gerontology, 54(3), 148-152.
  49. Fridh, I., Forsberg, A., & Bergbom, I. (2007). End-of-life care in intensive care units - Family routines and environmental factors. Scandinavian Journal of Caring Sciences, 21(1), 25-31.
  50. Funnell, N. (2007). Review of Patient-centered ethics and communication at the end of life. International Psychogeriatrics, 19(4), 800-801.
  51. Garrett, D. D., Tuokko, H., Stajduhar, K. I., Lindsay, J., & Buehler, S. (2008). Planning for End-of-Life Care: Findings from the Canadian Study of Health and Aging. Can J Aging, 27(1), 11-21.
  52. Gilbert, R. B., Balk, D., Wogrin, C., Thornton, G., & Meagher, D. (2007). Religion, spirituality, and end-of-life decision making. In Handbook of thanatology: The essential body of knowledge for the study of death, dying, and bereavement. (pp. 65-74): Routledge/Taylor & Francis Group: New York.
  53. Gingerich, B. S. (2007). Quality and competence in end of life/palliative care. Home Health Care Management & Practice, 19(5), 402-403.
  54. Goold, S. D., Williams, B. C., Arnold, R., Singer, P. A., & Viens, A. M. (2008). Conflict in the healthcare setting at the end of life. In The Cambridge textbook of bioethics. (pp. 78-84): Cambridge University Press: New York.
  55. GrEgoire, M.-C., & Frager, G. (2006). Ensuring pain relief for children at the end of life. Pain Research & Management, 11(3), 163-171.
  56. Groen, K. M. (2007). Pain assessment and management in end of of life care: A survey of assessment and treatment practices of hospice music therapy and nursing professionals. Journal of Music Therapy, 44(2), 90-112.
  57. Hales, S., Zimmermann, C., & Rodin, G. (2008). The quality of dying and death. Arch Intern Med, 168(9), 912-918.
  58. Hallarman, L., & Kearns, C. (2008). The military history as a vehicle for exploring end-of-life care with veterans #152. Journal of Palliative Medicine, 11(1), 104-105.
  59. Hallenbeck, J. (2008). Access to End-of-Life Care Venues. Am J Hosp Palliat Care.
  60. Haller, I. V., & Gessert, C. E. (2007). Utilization of medical services at the end of life in older adults with cognitive impairment: Focus on outliers. Journal of Palliative Medicine, 10(2), 400-407.
  61. Halpin, D. M., Seamark, C. J., & Seamark, D. A. (2008). End-of-life care for patients with COPD in the community setting. Br J Gen Pract, 58(551), 390-392.
  62. Hancock, K., Clayton, J. M., Parker, S. M., Walder, S., Butow, P. N., Carrick, S., et al. (2007). Discrepant perceptions about end-of-life communication: A systematic review. Journal of Pain and Symptom Management, 34(2), 190-200.
  63. Harrington, S. E., & Smith, T. J. (2008). The role of chemotherapy at the end of life: "when is enough, enough?". JAMA, 299(22), 2667-2678.
  64. Hasson, F., Kernohan, W. G., McLaughlin, M., Waldron, M., McLaughlin, D., Chambers, H., & Cochrane, B. (2010). An exploration into the palliative and end-of-life experiences of carers of people with Parkinson's disease. Palliative Medicine, 24(7), 731-736.
  65. Heismann, S. (2007). A Catholic view on end-of-life care: Review of Medical care at the end of life: A Catholic perspective. Ethics & Behavior, 17(4), 403-406.
  66. Hermann, C. P. (2007). The degree to which spiritual needs of patients near the end of life are met. Oncology Nursing Forum, 34(1), 70-78.
  67. Hooke, M. C., Grund, E., Quammen, H., Miller, B., McCormick, P., & Bostrom, B. (2007). Propofol Use in Pediatric Patients With Severe Cancer Pain at the End of Life. Journal of Pediatric Oncology Nursing, 24(1), 29-34.
  68. Husain, A. F., Stewart, K., Arseneault, R., Moineddin, R., Cellarius, V., Librach, S. L., et al. (2007). Women experience higher levels of fatigue than men at the end of life: A longitudinal home palliative care study. Journal of Pain and Symptom Management, 33(4), 389-397.
  69. Ingalls, L. (2007). Bring your love: Therapeutic and effective end-of-life discussions. Home Health Care Management & Practice, 19(5), 369-381.
  70. Jakobsson, E., Bergh, I., hlEn, J., OdEn, A., & Gaston-Johansson, F. (2007). Utilization of health-care services at the end-of-life. Health Policy, 82(3), 276-287.
  71. Kees, N. L., Aberle, J. T., Fruhauf, C. A., Linville, D., & Hertlein, K. M. (2007). Aging parents and end-of-life decisions: Helping families negotiate difficult conversations. In The therapist's notebook for family health care: Homework, handouts, and activities for individuals, couples, and families coping with illness, loss, and disability. (pp. 211-216): Haworth Press: New York.
  72. Klugman, C. M. (2008). Dual roles of the care provider at the end of life: An autoethnography. Illness, Crisis, & Loss, 16(1), 53-63.
  73. Knight, S. J., & Emanuel, L. (2007). Processes of adjustment to end-of-life losses: A reintegration model. Journal of Palliative Medicine, 10(5), 1190-1198.
  74. Kreeger, L. (2008). Continuous deep sedation: Good care at the end of life, not hastening death. BMJ, 336(7653), 1085.
  75. Kressel, L. M., & Chapman, G. B. (2007). The default effect in end-of-life medical treatment preferences. Medical Decision Making, 27(3), 299-310.
  76. Kuehn, B. M. (2008). Guideline for end-of-life care released. JAMA: Journal of the American Medical Association, 299(8), 888.
  77. Lewis, M. M. (2011). End-of-life care in long-term care settings. In S. H. Qualls & J. E. Kasl-Godley (Eds.), Wiley series in clinical geropsychology. End-of-life issues, grief, and bereavement: What clinicians need to know (pp. 229-251). Hoboken, NJ: John Wiley.
  78. Lloyd-Williams, M., Kennedy, V., Sixsmith, A., & Sixsmith, J. (2007). The end of life: A qualitative study of the perceptions of people over the age of 80 on issues surrounding death and dying. Journal of Pain and Symptom Management, 34(1), 60-66.
  79. Longden, J. V., & Mayer, A.-P. T. (2007). Family involvement in end-of-life care in a paediatric intensive care unit. Nursing in Critical Care, 12(4), 181-187.
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