Nursing Homes, Hospices, & End-of-Life Resources

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Resources for Nursing Homes, Hospices, & End-of-Life Issues

Ken Pope

The following resources are intended to help individuals, families, and friends in their search for information, services, and facilities.

The material below includes searchable online databases, 24-hour helplines, books, and articles. They are meant to be of help to those who may need nursing homes, home health care, paliative care, hospices, assisted living, continuing care, geriatric care managers, living wills, advanced directives, hospital visitation authorization for unmarried partners, web connections with other family caregivers, and so on.

There are 5 groups of resources below: (a) online resources, (b) books, (c) hospice articles & chapters, (d) nursing home articles & chapters, and (e) end-of-life articles & chapters.

One of the other pages of this web site that provides relevant resources provides links for searching for free or low-cost medications and for searching for health insurance.

One of my other web sites focuses on disability & accessibily resources for psychology training & practice.

I hope you find these resources helpful.

Online Resources

AARP Guide To Medicare Coverage for Getting Care in a Hospital, Nursing Home, at Home and with Hospice: "Medicare Part A helps pay for inpatient care in hospitals and skilled nursing facilities. It also helps cover hospice care and some home health care. You must meet certain conditions to get these benefits. Medicare does not pay all of these costs. You, or separate insurance, must pay some of these costs, too."

Alzheimer's Association: Resources include 24-hour helpline, senior housing finder, carefinder, & library services.

Assisted Living INFO: "online guide for selecting an assisted living facility, retirement community, or other personal care facility anywhere in the United States. Our site is designed to assist you throughout the selection process. We offer tools to help you evaluate a senior's needs, facility selection tips, and our highly-acclaimed, map-based search engine to find a facility near family and friends."

Buddhist Hospice Directory: Listing, descriptions, & links to Buddhist organizations offering hospice and palliative care services.

Canadian Hospice Palliative Care Association: Information and services including an "on-line directory...designed to provide you with information on the availability of hospice palliative care services across Canada. Here you will find a listing of programs and services, their contact information, the population they serve, and where they provide care."

Cancer Care: "CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs – including counseling, education, financial assistance and practical help – are provided by trained oncology social workers and are completely free of charge."

Caregiver: information for family & professional caregivers; includes online listings for each state's Support Groups, Non-Profit Resources, Financial Aid. & Rural Caregiver Resources.

CaringBridge: "Free, personalized web sites that support and connect loved ones during critical illness.... A CaringBridge website helps keep loved ones informed during difficult times. In return, family and friends give patient and caregiver support through guestbook messages. Every free, personalized CaringBridge website includes: patient care journal to update family and friends; guestbook for messages of love; photo gallery; & free online support for using the service."

Caring Connections: online resources include "a state-specific living will or healthcare power of attorney"

Children's Hospice International: Directory: searchable online "worldwide database of programs caring for children with life-threatening conditions and their families"

Compassion and Choices: resources include forms for living will and advance directive (for each state) and hospital visitation authorization form for unmarried partners.

Consumer Reports: "The Deficient Dozen: Homes Noted for Poor Care on All Five of Our Lists": "The following nursing facilities have appeared on all four of our Nursing Home Watch Lists published between 2000 and 2005 as well as on the list of homes to avoid in the current Consumer Reports Nursing Home Quality Monitor."

Consumer Reports: "Form 2567: How to read this very important document": "When scouting nursing homes for a family member or another person, one of the best things you can do is get and read each home's Form 2567. It's the state inspection report for the facility, frequently called the state survey, and by law it must be 'readily accessible' to residents and visitors... Regular surveys are conducted every 12 to 15 months by state inspectors on behalf of the federal Centers for Medicare & Medicaid Services."

Consumer Reports: Nursing homes: Business as usual": "Two decades after the passage of a federal law to clean up the nation’s nursing homes, bad care persists and good homes are still hard to find. Two decades after the passage of a federal law to clean up the nation’s nursing homes, bad care persists and good homes are still hard to find."

A Dying Person's Guide to Dying by Roger Bone, M.D.: "By thinking ahead about what could happen - and about how you will deal with problems if they do happen, you can create a better life and a better quality of life for yourself and for the people who love and care about you. What I have to say is for the person who, like myself, is dying. We, too, need to plan - to think ahead in order to fashion, out of the time remaining, the best of what is possible. As I am dying from cancer..."

Family Caregiver Alliance: "information on care strategies, stress relief, community resources, family issues and hands-on care. Be sure to also visit our Fact Sheet section for a comprehensive collection of family-friendly publications filled with practical information. For more personal assistance, click on 'Ask FCA'. And don’t miss our online Discussion Groups, to keep you connected, 24 hours a day, with other caregivers."

Gilbert Guide: Allows online searching for facilities & services including: (a) assisted living, (b) homecare, (c) continuing care (CCRC), (d) nursing homes, (e) home health care, (f) geriatric care managers, (g) adult day services, and (h) hospices.

Homecare Directory: online searchable database for home care, hospice care, & geriatric care managers. "the most comprehensive site on the web for finding Home Care, Home Health Care and Hospice Care providers throughout the United States and Canada. We have simplified your search for Homecare, and Hospice Care providers by only listing the most qualified providers within North America. All Home Health Care providers on TheHomeCareDirectory.com are fully licensed, bonded, and insured."

Hospice Directory: online searchable database of hospices in Canada and the United States.

International Association for Hospice & Palliative Care: Directory: provides online searching of worldwide directory of hospices & sources of palliative care.

Mayo Clinic: Anticipating end-of-life needs of people with Alzheimer's disease: "The challenges of Alzheimer's disease multiply as the end of life approaches. Here are some ways to prepare for the tough choices ahead."

National Cancer Institute: End-of-Life Care: questions and answers - "The following information can help answer some of the questions that many patients, their family members, and caregivers have about the end of life."

National Hospice & Palliative Care Organization: Find a Provider: Allows online searches by city, name, specialization, etc.

National Institute for Jewish Hospice: "A 24 hour toll-free number counsels families, patients and care-givers, and provides locations of hospices, hospitals, health professionals and clergy of all faiths."

Nursing Home Directory: "free online guide for finding nursing homes and assisted living facilities nationwide."

Nursing Home INFO: Allows online searching for nursing homes by city, county, state, name, management, or special needs.

Palliative Care Directory of Hospitals: searchable online database "to help you or a loved one locate a hospital in your area that provides a palliative care program. The directory is based upon palliative care programs listed in the 2007 American Hospital Association (AHA) Annual Survey."

Palliative Dementia Care Resources: "We are dedicated to providing access to appropriate online resources for family and professional caregivers. In order to be responsive to the needs of caregivers in managing life's changes, preparing for life's end, and coping with grief and loss, our content is focused on those topics that are often most pressing."

Perinatal hospice/palliative care programs and support: online listing and links to hospitals with perinatal hospice/palliative care programs. "As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, some pioneering hospitals and hospices are starting perinatal hospice or perinatal palliative care programs for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth. A perinatal hospice approach walks with these families on their journey through pregnancy, birth and death, honoring the baby as well as the baby's family. Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of hospice (see our resources pages)."

U.S. Department of Health & Human Services: Centers for Medicare & Medicaid Services: comprehensive government web site for medicare & medicaid coverage.

U.S. Department of Health & Human Services: Eldercare Locator: "links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers."

U.S. Health & Human Services Nursing Home Comparison Site: "The primary purpose of this tool is to provide detailed information about the past performance of every Medicare and Medicaid certified nursing home in the country." The site allows you to search by geography (i.e. all homes within a state or county), proximity (within a certain distance of a town or zip code), or name.

Veterans Aid & Attendance Pension Benefit: Guide to using veterans' pension benefit for home care, assisted living, nursing home, etc.

Veterans Coalition Senior Veterans Initiative: provides support to veterans and their families in regard to understanding and applying for disability, long-term care, assisted living, skilled nursing, and homebound care.

 

Books


Ahead of Your Time: A Complete Guide for End-of-Life Planning. Dick Coffin & Sue Coffin. Ahead Of Your Time Publishers, 2007.

American Medical Association Guide to Home Caregiving. American Medical Association. AMA, 2001.

Baby Boomer's Guide to Nursing Home Care. Eric M. Carlson & Katharine Bau Hsiao. Taylor, 2006.

Caregiving: Hospice-Proven Techniques for Healing Body and Soul. Douglas C. Smith. Wiley, 1997.

Caring for Your Parents by Hugh Delehanty and Elinor Ginzler. AARP, Sterling Publishing Co., Inc., New York, 2005.

Christian Caregiving: A Way of Life. Kenneth C. Haugk. Augsburg Publishing House. 1984.

The Comfort of Home: A Complete Guide for Caregivers. Maria M. Meyer & Paula Derr. CareTrust Publications, 2007.

Complete Eldercare Planner, 2nd Edition. Joy Loverde. Three Rivers Press, 2000.

Communicating at the end of life: Finding magic in the mundane. E. Foster. Lawrence Erlbaum Associates Publishers, 2007.

Dying at home: a family guide for caregiving. A. Sankar. Johns Hopkins University Press, 1999.

Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent. Barry Jacobs. Guilford Press, 2006.

End-of-Life Advisor: Personal, Legal, and Medical Considerations for a Peaceful, Dignified Death. Susan Dolan & Audrey R. Vizzard. Kaplan Publishing, 2008.

End-of-Life Handbook: A Compassionate Guide to Connecting with and Caring for a Dying Loved One. David B. Feldman, Stephen Andrew Lasher Jr., & Ira Byock. New Harbinger, 2008.

Everything You Need to Know About Nursing Homes: The Family's Comprehensive Guide to Either Working with the Institution or Finding Care Alternatives. Charlotte Digregorio. Civetta Press, 2005.

Family Hospice Care: Pre-Planning and Care Guide. Harry van Bommel. Media Futures Institute, 2006.

A Final Farewell: Your Personal Guide to End of Life Issues. Nancy Lawson. Legacy, 2002.

Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying. Maggie Callanan & Patricia Kelley. Bantom, 1997.

Guide to Caregiving in the Final Months of Life. Betsy Murphy & Linda Roberts. T. M. Brown Publishers, 2007.

Hospice Care for Children (2nd ed.). A. Armstrong-Dailey & S. Zarbock. Oxford University Press, 2001.

Hospice Care at Home: A Guide to Caring for Your Dying Loved One at Home. Starr Calo-oy & Bob Calo-oy. Orchard Publications, 2006.

The Hospice Choice: In Pursuit of a Peaceful Death. by Marcia Lattanzi-Licht, Galen W. Miller, & John J. Mahoney. Fireside, 1998.

Hospice Handbook: A Complete Guide. Larry Beresford & Elisabeth Kubler-Ross. Little, Brown, 1993.

Hospice and Palliative Care: Concepts and Practice, Second Edition. Denice C. Sheehan. Jones and Bartlett, Publishers, 2003.

How to Find Great Senior Housing: A Roadmap for Elders and Those Who Love Them, 2nd Edition. Phyllis Staff. The Best Is Yet.Net Press, 2004.

Infection Control In Home Care and Hospice, 2nd Edition. Emily Rhinehart & Mary McGoldrick Friedman. Jones & Bartlett, 2005.

Insider's Guide to Better Nursing Home Care: 75 Tips You Should Know. Donna M. Reed. Promethius, 2008.

Journey through the Dying Process: Caring for a Loved one at the End of Life. Fairview Health Services. Fairview Press, 2003.

Let Me Decide: What You Need to Know Now about End-Of-Life Care. William Molloy. Penguin Books Canada, 2005.

Living Well in a Nursing Home: Everything You & Your Folks Need to Know. Lynn Dickinson, Xenia Vosen, & Severine Biedermann. Hunter House, 2005.

Needs of the Dying: A Guide for Bringing Hope, Comfort, and Love to Life's Final Chapter. David Kessler. Harper, 2007.

Notes from the Waiting Room: Managing a Loved One's End-of-Life-Hospitalization (includes Choosing End-of-Life Care Without Hospitalization). Bart Windrum. Axiom Action, 2008.

Nursing Homes: The Family's Journey. Peter S. Silin. Johns Hopkins University Press, 2001.

On Death and Dying: What the Dying Have to Teach their Doctors, Nurses, Clergy, and their Own Families. Elisabeth Kubler-Ross. Scribner, 1969.

Peaceful Dying: The Step-by-step Guide To Preserving Your Dignity, Your Choice, And Your Inner Peace At The End Of Life. Daniel R. Tobin, With & Karen Lindsey. Da Capo Press, 1968.

Peaceful Journey: A Hospice Chaplain's Guide to End-of-Life. Matthew P. Binkewicz. Paramount Market Publishing, 2005.

Raising Moms. Rhonda H. Kelley. New Hope Publishers, 2006.

The Senior's Guide to End-of-Life Issues: Advance Directives, Wills, Funerals & Cremations. Rebecca Sharp Colmer & Todd M. Thomas. Eklektika Press, 2006.

Staying in Charge: Practical Plans for the End of Your Life. Karen Orloff Kaplan & Christopher Lukas. Wiley, 2004.

Transitions in Dying and Bereavement: A Psychosocial Guide for Hospice and Palliative Care. Moira Cairns, Marney Thompson, Wendy Wainwright, & Victoria Hospice Society. Health Professions Press, 2003.

 When Someone You Love Needs Nursing Home Care: The Complete Guide. Robert F. Bornstein, Mary A., Ph.D. Languirand, & Robert Bornstein. Newmarket Press, 2001.       

 

Hospice Articles & Chapters

  1. Abdel-Karim, I. A., Sammel, R. B., & Prange, M. A. (2007). Causes of death at autopsy in an inpatient hospice program. Journal of Palliative Medicine, 10(4), 894-898.
  2. Ackson, A., Hodson, M., Brady, D., & Pahl, N. (2007). Spreading the word...Hospice Information systems. Omega: Journal of Death and Dying, 56(1), 47-62.
  3. Adamle, K. N., & Ludwick, R. (2005). Humor in hospice care: Who, where, and how much? American Journal of Hospice & Palliative Medicine, 22(4), 287-290.
  4. Adunsky, A., Aminoff, B. Z., Arad, M., & Bercovitch, M. (2008). Mini-Suffering State Examination: Suffering and survival of end-of-life cancer patients in a hospice setting. American Journal of Hospice & Palliative Medicine, 24(6), 493-498.
  5. Andruccioli, J., Montesi, A., Raffaeli, W., Monterubbianesi, M. C., Turci, P., Pittureri, C., et al. (2007). Illness awareness of patients in hospice: Psychological evaluation and perception of family members and medical staff. Journal of Palliative Medicine, 10(3), 741-748.
  6. Arber, A. (2007). "Pain talk" in hospice and palliative care team meetings: An ethnography. International Journal of Nursing Studies, 44(6), 916-926.
  7. Ardelt, M., & Koenig, C. S. (2006). The Role of Religion for Hospice Patients and Relatively Healthy Older Adults. Research on Aging, 28(2), 184-215.
  8. Armstrong-Dailey, A., & Zarbock, S. (2001). Hospice care for children (2nd ed.): Oxford University Press: New York.
  9. Azoulay, D., Hammerman-Rozenberg, R., Cialic, R., Ein Mor, E., Jacobs, J. M., & Stessman, J. (2008). Increasing opioid therapy and survival in a hospice. J Am Geriatr Soc, 56(2), 360-361.
  10. Bain, K. T., & Weschules, D. J. (2007). Medication inappropriateness for older adults receiving hospice care: a pilot survey. Consult Pharm, 22(11), 926-934.
  11. Blaschko, S. (2007). Hospice. Families, Systems, & Health, 25(1), 133.
  12. Brown, W. (2008). Opioid use in dying patients in hospice and hospital, with and without specialist palliative care team involvement. European Journal of Cancer Care, 17(1), 65-71.
  13. Bruce, A., & Davies, B. (2005). Mindfulness in Hospice Care: Practicing Meditation-in-Action. Qualitative Health Research, 15(10), 1329-1344.
  14. Carlson, B., Simopolous, N., Goy, E. R., Jackson, A., & Ganzini, L. (2005). Oregon Hospice Chaplains' Experiences with Patients Requesting Physician-Assisted Suicide. Journal of Palliative Medicine, 8(6), 1160-1166.
  15. Carlson, M. D. A., Morrison, R. S., Holford, T. R., & Bradley, E. H. (2007). Hospice care: What services do patients and their families receive? Health Services Research, 42(4), 1672-1690.
  16. Casarett, D., Crowley, R., Stevenson, C., Xie, S., & Teno, J. (2005). Making Difficult Decisions About Hospice Enrollment: What Do Patients and Families Want to Know? Journal of the American Geriatrics Society, 53(2), 249-254.
  17. Catt, S., Blanchard, M., Addington-Hall, J., Zis, M., Blizard, R., & King, M. (2005). Older adults' attitudes to death, palliative treatment and hospice care. Palliative Medicine, 19(5), 402-410.
  18. Cherney, C. L. (2008). Determining hospice benefit for patients with dementia. JAMA: Journal of the American Medical Association, 299(15), 1774.
  19. Connor, S. R. Development of hospice and palliative care in the United States. Omega (Westport), 56(1), 89-99.
  20. Connor, S. R. (2007). Development of hospice and palliative care in the United States. Omega: Journal of Death and Dying, 56(1), 89-99.
  21. Connor, S. R., Lycan, J., Schumacher, J. D., Werth Jr, J. L., & Blevins, D. (2006). Involvement of Psychologists in Psychosocial Aspects of Hospice and End-of-Life Care. In Psychosocial issues near the end of life: A resource for professional care providers. (pp. 203-217): American Psychological Association: Washington.
  22. Connor, S. R., Pyenson, B., Fitch, K., Spence, C., & Iwasaki, K. (2007). Comparing Hospice and Nonhospice Patient Survival Among Patients Who Die Within a Three-Year Window. Journal of Pain and Symptom Management, 33(3), 238-246.
  23. Corr, C. A. (2007). Hospice: Achievements, legacies, and challenges. Omega: Journal of Death and Dying, 56(1), 111-120.
  24. Csikai, E. L. (2006). Bereaved hospice caregivers' perceptions of the end-of-life care communication process and the involvement of health care professionals. Journal of Palliative Medicine, 9(6), 1300-1309.
  25. Davies, B., Collins, J., Steele, R., Cook, K., Distler, V., & Brenner, A. (2007). Parents' and children's perspectives of a children's hospice bereavement program. Journal of Palliative Care, 23(1), 14-23.
  26. Davies, B., Collins, J. B., Steele, R., Cook, K., Brenner, A., & Smith, S. (2005). Children's Perspectives of a Pediatric Hospice Program. Journal of Palliative Care, 21(4), 252-261
  27. De Lima, L., & Doyle, D. (2007). The International Association for Hospice and Palliative Care list of essential medicines for palliative care. Journal of Pain & Palliative Care Pharmacotherapy, 21(3), 29-36.
  28. DePalma, J. A. (2005). Evidence-Based Decision Making for Administrators: Hospice Program Example. Home Health Care Management & Practice, 17(6), 483-484.
  29. Doberman, D. J., Yasar, S., & Durso, S. C. (2007). Would you refer this patient to hospice? An evaluation of tools for determining life expectancy in end-stage dementia. Journal of Palliative Medicine, 10(6), 1410-1427.
  30. Dobratz, M. C. (2005). A Comparative Study of Life-Closing Spirituality in Home Hospice Patients. Research and Theory for Nursing Practice: An International Journal, 19(3), 243-256.
  31. Droney, J., & Hall, E. (2008). Status Epilepticus in a Hospice Inpatient Setting. J Pain Symptom Manage.
  32. Germain, M. J., Cohen, L. M., & Moss, A. H. (2007). Strategies for timely and effective hospice discussions: end-stage renal disease. Ann Intern Med, 147(11), 816; author reply 817.
  33. Gingerich, B. S. (2005). Accreditation Commission for Health Care's New Hospice Standards Manual. Home Health Care Management & Practice, 17(6), 489-491.
  34. Gozalo, P. L., & Miller, S. C. (2007). Hospice Enrollment and Evaluation of Its Causal Effect on Hospitalization of Dying Nursing Home Patients. Health Services Research, 42(2), 587-610.
  35. Groen, K. M. (2007). Pain assessment and management in end of of life care: A survey of assessment and treatment practices of hospice music therapy and nursing professionals. Journal of Music Therapy, 44(2), 90-112.
  36. Hallenbeck, J., Hickey, E., Czarnowski, E., Lehner, L., & Periyakoil, V. S. (2007). Quality of Care in a Veterans Affairs' Nursing Home-Based Hospice Unit. Journal of Palliative Medicine, 10(1), 127-135.
  37. Hanson, L. C., Sengupta, S., & Slubicki, M. (2005). Access to Nursing Home Hospice: Perspectives of Nursing Home and Hospice Administrators. Journal of Palliative Medicine, 8(6), 1207-1213.
  38. Harrison, J. P., & Ford, D. (2007). A comprehensive community-based model for hospice care. \American Journal of Hospice & Palliative Medicine, 24(2), 119-125.
  39. Hiatt, K., Stelle, C., Mulsow, M., & Scott, J. P. (2007). The importance of perspective: Evaluation of hospice care from multiple stakeholders. American Journal of Hospice & Palliative Medicine, 24(5), 376-382.
  40. Holohan, B. (2007). Private home care and hospice: The call for collaboration. Home Health Care Management & Practice, 19(5), 364-368.
  41. Huynh, B. C., Rovner, A., & Rich, M. W. (2008). Identification of older patients with heart failure who may be candidates for hospice care: development of a simple four-item risk score. J Am Geriatr Soc, 56(6), 1111-1115.
  42. Irwin, S. A., Rao, S., Bower, K., Palica, J., Rao, S. S., Maglione, J. E., et al. (2008). Psychiatric issues in palliative care: recognition of depression in patients enrolled in hospice care. J Palliat Med, 11(2), 158-163.
  43. Irwin, S. A., Rao, S., Bower, K. A., Palica, J., Rao, S. S., Maglione, J. E., et al. (2008). Psychiatric issues in palliative care: Recognition of delirium in patients enrolled in hospice care. Palliat Support Care, 6(2), 159-164.
  44. Jasper, J. W., & A. (2007). Kenosis in hospice patients and the effect of educating their caregivers. ProQuest Information & Learning: US.
  45. Johnson, C., & Arrington, D. B. (2007). Art therapy in the hospice setting. In Art, angst, and trauma: Right brain interventions with developmental issues. (pp. 208-229): Charles C. Thomas Publisher: Springfield.
  46. Kapo, J., Harrold, J., Carroll, J. T., Rickerson, E., & Casarett, D. (2005). Are We Referring Patients to Hospice Too Late? Patients' and Families' Opinions. Journal of Palliative Medicine, 8(3), 521-527.
  47. Kapp, S. A., & Nelson-Becker, H. B. (2007). Evaluating hospice services for improvement: A manageable approach. Journal of Pain & Palliative Care Pharmacotherapy, 21(2), 17-26.
  48. Kayser-Jones, J. S., Kris, A. E., Miaskowski, C. A., Lyons, W. L., & Paul, S. M. (2006). Hospice Care in Nursing Homes: Does It Contribute to Higher Quality Pain Management? The Gerontologist, 46(3), 325-333.
  49. Keating, N. L., Landrum, M. B., Guadagnoli, E., Winer, E. P., & Ayanian, J. Z. (2008). Care in the months before death and hospice enrollment among older women with advanced breast cancer. J Gen Intern Med, 23(1), 11-18.
  50. Kinsella, A. (2005). Telehealth in Hospice Care, or Telehospice: A New Frontier of Telehealth Service Delivery. Journal of Palliative Medicine, 8(4), 711-712.
  51. Klein, R. E., & Burns, G. W. (2007). The metaphor that sang its own sad song: Therapeutic storytelling in pediatric hospice care. In Healing with stories: Your casebook collection for using therapeutic metaphors. (pp. 199-209): John Wiley & Sons Inc: Hoboken.
  52. Lawson, R. (2007). Home and hospital; hospice and palliative care: How the environment impacts the social work role. Journal of Social Work in End-of-Life & Palliative Care, 3(2), 3-17.
  53. Locher, J. L., Kilgore, M. L., Morrisey, M. A., & Ritchie, C. S. (2006). Patterns and Predictors of Home Health and Hospice Use by Older Adults with Cancer. Journal of the American Geriatrics Society, 54(8), 1206-1211.
  54. Martin, D. (2006). Review of Dying Declarations: Notes From a Hospice Volunteer. Psychiatric Services, 57(5), 746.
  55. McKee, M., Kelley, M. L., & Guirguis-Younger, M. (2007). So no one dies alone: a study of hospice volunteering with rural seniors. J Palliat Care, 23(3), 163-172.
  56. McMillan, S. C., & Small, B. J. (2007). Using the COPE intervention for family caregivers to improve symptoms of hospice homecare patients: A clinical trial. Oncology Nursing Forum, 34(2), 313-321.
  57. Mee, C. L. (2007). Hospice care. Nursing, 37(11), 43.
  58. Mitchell, S. L., Kiely, D. K., Miller, S. C., Connor, S. R., Spence, C., & Teno, J. M. (2007). Hospice care for patients with dementia. Journal of Pain and Symptom Management, 34(1), 7-16.
  59. Modi, S., & Moore, C. (2005). Which late-stage Alzheimer's patients should be referred for hospice care? The Journal of Family Practice, 54(11), 984-986.
  60. Moffatt, P. (2007). Hospice: the heart of end-of-life-care. Int J Palliat Nurs, 13(10), 508-509.
  61. Munn, J. C., Hanson, L. C., Zimmerman, S., Sloane, P. D., & Mitchell, C. M. (2006). Is Hospice Associated with Improved End-of-Life Care in Nursing Homes and Assisted Living Facilities? Journal of the American Geriatrics Society, 54(3), 490-495.
  62. Neigh, J. E. (2007). Additional data necessary for hospice claims effective January 2008: "V" code principle diagnosis claims no longer acceptable. Caring, 26(9), 60-61.
  63. Neigh, J. E. (2008). Hospice 2007 regulatory issues. Caring, 27(2), 10-11.
    Oliver, D. P., Wittenberg-Lyles, E., Demiris, G., Washington, K., Porock, D., & Day, M. (2008). Barriers to Pain Management: Caregiver Perceptions and Pain Talk by Hospice Interdisciplinary Teams. J Pain Symptom Manage.
  64. Peck, C. A. (2006). Review of Transitions in Dying and Bereavement: A Psychosocial Guide for Hospice and Palliative Care. Educational Gerontology, 32(9), 803-804.
  65. Portenoy, J., & Teno, J. M. (2007). Hispanic language version of the family evaluation of hospice care. J Pain Symptom Manage, 34(5), 459-461.
  66. Portenoy, R. K., Sibirceva, U., Smout, R., Horn, S., Connor, S., Blum, R. H., et al. (2006). Opioid Use and Survival at the End of Life: A Survey of a Hospice Population. Journal of Pain and Symptom Management, 32(6), 532-540.
  67. Prince-Paul, M. Relationships among communicative acts, social well-being, and spiritual well-being on the quality of life at the end of life in patients with cancer enrolled in hospice. J Palliat Med, 11(1), 20-25.
  68. Prince-Paul, M. (2008). Relationships among communicative acts, social well-being, and spiritual well-being on the quality of life at the end of life in patients with cancer enrolled in hospice. Journal of Palliative Medicine, 11(1), 20-25.
  69. Renzenbrink, I. (2007). The shadow side of hospice care. Illness, Crisis, & Loss, 15(3), 245-259.
  70. Rhodes, R. L., Mitchell, S. L., Miller, S. C., Connor, S. R., & Teno, J. M. (2008). Bereaved family members evaluation of hospice care: what factors influence overall satisfaction with services? J Pain Symptom Manage, 35(4), 365-371.
  71. Rhodes, R. L., Teno, J. M., & Welch, L. C. (2006). Access to Hospice for African Americans: Are They Informed about the Option of Hospice? Journal of Palliative Medicine, 9(2), 268-272.
  72. Rickerson, E., Harrold, J., Kapo, J., Carroll, J. T., & Casarett, D. (2005). Timing of Hospice Referral and Families' Perceptions of Services: Are Earlier Hospice Referrals Better? Journal of the American Geriatrics Society, 53(5), 819-823.
  73. Roscoe, L. A., & Hyer, K. (2008). Quality of life at the end of life for nursing home residents: Perceptions of hospice and nursing home staff members. Journal of Pain and Symptom Management, 35(1), 1-9.
  74. Roscoe, L. A., & Schonwetter, R. S. (2006). Improving access to hospice and palliative care for patients near the end of life: Present status and future direction. Journal of Palliative Care, 22(1), 46-50.
  75. Schim, S. M., Doorenbos, A. Z., & Borse, N. N. (2006). Enhancing Cultural Competence Among Hospice Staff. American Journal of Hospice & Palliative Medicine, 23(5), 404-411.
  76. Schonwetter, R. (2006). Hospice and palliative medicine goes mainstream. Journal of Palliative Medicine, 9(6), 1240-1242.
  77. Schonwetter, R. (2006). Hospice and Palliative Medicine: Ten Years Has Made a Difference. Journal of Palliative Medicine, 9(2), 236-238.
  78. Schonwetter, R. S., Roscoe, L. A., Nwosu, M., Zilka, B., & Kim, S. (2006). Quality of Life and Symptom Control in Hospice Patients with Cancer Receiving Chemotherapy. Journal of Palliative Medicine, 9(3), 638-645.
  79. Shapiro, J. (2007). "Hospice" and "Catching Comprehension". Families, Systems, & Health, 25(1), 130-131.
  80. Shega, J. W., Hougham, G. W., Stocking, C. B., Cox-Hayley, D., & Sachs, G. A. (2008). Patients dying with dementia: experience at the end of life and impact of hospice care. J Pain Symptom Manage, 35(5), 499-507.
  81. Smith, M. A., Seplaki, C., Biagtan, M., DuPreez, A., & Cleary, J. (2008). Characterizing hospice services in the United States. Gerontologist, 48(1), 25-31.
  82. Steele, L. L., Mills, B., Hardin, S. R., & Hussey, L. C. (2005). The quality of life of hospice patients: Patient and provider perceptions. American Journal of Hospice & Palliative Medicine, 22(2), 95-110.
  83. Steele, R., Davies, B., Collins, J. B., & Cook, K. (2005). End-of-Life Care in a Children's Hospice Program. Journal of Palliative Care, 21(1), 5-11.
    Stevenson, D. G., Huskamp, H. A., Grabowski, D. C., & Keating, N. L. (2007). Differences in hospice care between home and institutional settings. Journal of Palliative Medicine, 10(5), 1040-1047.
  84. Strassels, S. A., Blough, D. K., Hazlet, T. K., Veenstra, D. L., & Sullivan, S. D. (2006). Pain, Demographics, and Clinical Characteristics in Persons Who Received Hospice Care in the United States. Journal of Pain and Symptom Management, 32(6), 519-531.
  85. Stuart, B. (2007). Palliative Care and Hospice in Advanced Heart Failure. Journal of Palliative Medicine, 10(1), 210-228.
  86. Teno, J. M., Shu, J. E., Casarett, D., Spence, C., Rhodes, R., & Connor, S. (2007). Timing of referral to hospice and quality of care: Length of stay and bereaved family members' perceptions of the timing of hospice referral. Journal of Pain and Symptom Management, 34(2), 120-125.
  87. Tyrera, F., & Exley, C. (2005). Receiving care at home at end of life: Characteristics of patients receiving Hospice at Home care. Family Practice, 22(6), 644-646.
  88. Victoroff, M. S. (2000). HMOs best stay mum regarding hospice care. Manag Care, 9(7), 65-66.
  89. Vogt, K. (2006). Productivity Versus Case Management in Hospice. Home Health Care Management & Practice, 18(6), 467-478.
  90. Walworth, D. D. (2007). Review of Hospice and palliative care music therapy: A guide to program development and clinical care. Journal of Music Therapy, 44(1), 85-88.
  91. Washington, K. T., Demiris, G., Oliver, D. P., & Day, M. (2007). Home Internet use among hospice service recipients: recommendations for Web-based interventions. J Med Syst, 31(5), 385-389.
  92. Weschules, D. J., Bain, K. T., Reifsnyder, J., McMath, J. A., Kupperman, D. E., Gallagher, R. M., et al. (2006). Toward Evidence-Based Prescribing at End of Life: A Comparative Analysis of Sustained-Release Morphine, Oxycodone, and Transdermal Fentanyl, with Pain, Constipation, and Caregiver Interaction Outcomes in Hospice Patients. Pain Medicine, 7(4), 320-329.
  93. Wilkinson, S., Croy, P., King, M., & Barnes, J. (2007). Are we getting it right? Parents' perceptions of hospice child bereavement support services. Palliative Medicine, 21(5), 401-407.
  94. Zalenski, R. J., & Raspa, R. (2006). Maslow's Hierarchy of Needs: A Framework for Achieving Human Potential in Hospice. Journal of Palliative Medicine, 9(5), 1120-1127.

 

Nursing Homes Articles & Chapters

  1. Achterberg, W., Pot, A. M., Kerkstra, A., & Ribbe, M. (2006). Depressive symptoms in newly admitted nursing home residents. International Journal of Geriatric Psychiatry, 21(12), 1156-1162.
  2. Achterberg, W. P., Pot, A. M., Scherder, E. J., & Ribbe, M. W. (2007). Pain in the nursing home: Assessment and treatment on different types of care wards. Journal of Pain and Symptom Management, 34(5), 480-487.
  3. Allen, P. D., Nelson, H. W., & Netting, F. E. (2007). Current practice and policy realities revisited: Undertrained nursing home social workers in the U.S. Social Work in Health Care, 45(4), 1-22.
  4. Andel, R., Hyer, K., & Slack, A. (2007). Risk factors for nursing home placement in older adults with and without dementia. Journal of Aging and Health, 19(2), 213-228.
  5. Arling, G., Kane, R. L., Mueller, C., Bershadsky, J., & Degenholtz, H. B. (2007). Nursing effort and quality of care for nursing home residents. The Gerontologist, 47(5), 672-682.
  6. Bauer, M. (2007). Staff-family relationships in nursing home care: A typology of challenging behaviours. International Journal of Older People Nursing, 2(3), 213-218.
  7. Bern-Klug, M. (2008). The emotional context facing nursing home residents families: a call for role reinforcement strategies from nursing homes and the community. J Am Med Dir Assoc, 9(1), 36-44.
  8. Bern-Klug, M., & Forbes-Thompson, S. (2008). Family members responsibilities to nursing home residents: "she is the only mother I got". J Gerontol Nurs, 34(2), 43-52.
  9. Black, B. S., Finucane, T., Baker, A., Loreck, D., Blass, D., Fogarty, L., et al. (2006). Health Problems and Correlates of Pain in Nursing Home Residents With Advanced Dementia. Alzheimer Disease & Associated Disorders, 20(4), 283-290.
  10. Blass, D. M., Black, B. S., Phillips, H., Finucane, T., Baker, A., Loreck, D., et al. (2008). Medication use in nursing home residents with advanced dementia. International Journal of Geriatric Psychiatry, 23(5), 490-496.
  11. Branco, K. J. (2007). Religious activities, strength from faith, and social functioning among African American and White nursing home residents. Journal of Religion, Spirituality & Aging, 19(4), 3-20.
  12. Burgio, L. D., Park, N. S., Hardin, J. M., & Sun, F. (2007). A longitudinal examination of agitation and resident characteristics in the nursing home. The Gerontologist, 47(5), 642-649.
  13. Carlson, W. L., & Snowden, M. (2007). Improving treatment for depression in the nursing home population: Integrating the model of depression care manager. Harvard Review of Psychiatry, 15(3), 128-132.
  14. Castle, N. G., & Engberg, J. B. (2007). Nursing home deficiency citations for medication use. Journal of Applied Gerontology, 26(2), 208-232.
  15. Cohen-Mansfield, J., & Jensen, B. (2007). Changes in habits related to self-care in dementia: The nursing home versus adult day care. American Journal of Alzheimer's Disease and Other Dementias, 22(3), 184-189.
  16. Cohen-Mansfield, J., & Lipson, S. (2006). To Hospitalize or Not to Hospitalize? That Is the Question: An Analysis of Decision Making in the Nursing Home. Behavioral Medicine, 32(2), 64-70.
  17. Cohen-Mansfield, J., & Wirtz, P. W. (2007). Characteristics of adult day care participants who enter a nursing home. Psychology and Aging, 22(2), 354-360.
  18. Cornali, C., Bianchetti, A., & Trabucchi, M. (2008). End-stage nursing home residents with dementia: recognizing the need for palliative care. J Am Med Dir Assoc, 9(4), 281-283.
  19. Dale, S. B., & Brown, R. (2006). Reducing Nursing Home Use Through Consumer-Directed Personal Care Services. Medical Care, 44(8), 760-767.
  20. Daly, J. M., & Jogerst, G. J. (2007). Nursing home statutes: Mistreatment definitions. Journal of Elder Abuse & Neglect, 18(1), 19-39.
  21. Daly, J. M., & Jogerst, G. J. (2007). Nursing home abuse report and investigation legislation. Journal of Elder Abuse & Neglect, 19(3-4), 119-131.
  22. DuBeau, C. E., Ouslander, J. G., & Palmer, M. H. (2007). Knowledge and attitudes of nursing home staff and surveyors about the revised federal guidance for incontinence care. The Gerontologist, 47(4), 468-479.
  23. DuBeau, C. E., Simon, S. E., & Morris, J. N. (2006). The Effect of Urinary Incontinence on Quality of Life in Older Nursing Home Residents. Journal of the American Geriatrics Society, 54(9), 1325-1333.
  24. Elkins, J. S., Whitmer, R. A., Sidney, S., Sorel, M., Yaffe, K., & Johnston, S. C. (2006). Midlife Obesity and Long-Term Risk of Nursing Home Admission. Obesity, 14(8), 1472-1478.
  25. Engel, S. E., Kiely, D. K., & Mitchell, S. L. (2006). Satisfaction with End-of-Life Care for Nursing Home Residents with Advanced Dementia. Journal of the American Geriatrics Society, 54(10), 1567-1572.
  26. Ernst, S., Welke, J., Heintze, C., Gabriel, R., Zllner, A., Kiehne, S., et al. (2008). Effects of mindfulness-based stress reduction on quality of life in nursing home residents: a feasibility study. Forsch Komplement Med (2006), 15(2), 74-81.
  27. Fiorentino, L., & Ancoli-Israel, S. (2006). Sleep disturbances in nursing home patients. Sleep Medicine Clinics, 1(2), 293-298.
  28. Fleischer, S., Roling, G., Beutner, K., Hanns, S., Behrens, J., Luck, T., et al. (2008). Growing old at home - A randomized controlled trial to investigate the effectiveness and cost-effectiveness of preventive home visits to reduce nursing home admissions: study protocol [NCT00644826]. BMC Public Health, 8(1), 185.
  29. Fonad, E., Robins Wahlin, T.-B., Winblad, B., Emami, A., & Sandmark, H. (2008). Falls and fall risk among nursing home residents. Journal of Clinical Nursing, 17(1), 126-134.
    Gianola, F. J. (2008). When a competent elderly man refuses nursing home placement. JAAPA, 21(2), 72, 74.
  30. Gosney, M. A., Hammond, M. F., Shenkin, A., & Allsup, S. (2008). Effect of Micronutrient Supplementation on Mood in Nursing Home Residents. Gerontology.
  31. Gozalo, P. L., & Miller, S. C. (2007). Hospice Enrollment and Evaluation of Its Causal Effect on Hospitalization of Dying Nursing Home Patients. Health Services Research, 42(2), 587-610.
  32. Grabowski, D. C., Stewart, K. A., Broderick, S. M., & Coots, L. A. (2008). Predictors of nursing home hospitalization: a review of the literature. Med Care Res Rev, 65(1), 3-39.
  33. Gruneir, A., Miller, S. C., Intrator, O., & Mor, V. (2007). Hospitalization of nursing home residents with cognitive impairments: The influence of organizational features and state policies. The Gerontologist, 47(4), 447-456.
  34. Gruneir, A., & Mor, V. (2008). Nursing home safety: current issues and barriers to improvement. Annu Rev Public Health, 29, 369-382.
  35. Hallenbeck, J., Hickey, E., Czarnowski, E., Lehner, L., & Periyakoil, V. S. (2007). Quality of Care in a Veterans Affairs' Nursing Home-Based Hospice Unit. Journal of Palliative Medicine, 10(1), 127-135.
  36. Han, B., Tiggle, R. B., & Remsburg, R. E. Characteristics of patients receiving hospice care at home versus in nursing homes: results from the National Home and Hospice Care Survey and the National Nursing Home Survey. Am J Hosp Palliat Care, 24(6), 479-486.
  37. Hauge, S., & Heggen, K. (2008). The nursing home as a home: A field study of residents' daily life in the common living rooms. Journal of Clinical Nursing, 17(4), 460-467.
  38. Helton, M. R., van der Steen, J. T., Daaleman, T. P., Gamble, G. R., & Ribbe, M. W. (2006). A Cross-Cultural Study of Physician Treatment Decisions for Demented Nursing Home Patients Who Develop Pneumonia. Annals of Family Medicine, 4(3), 221-227.
  39. Hoeffer, B., Talerico, K. A., Rasin, J., Mitchell, C. M., Stewart, B. J., McKenzie, D., et al. (2006). Assisting Cognitively Impaired Nursing Home Residents With Bathing: Effects of Two Bathing Interventions on Caregiving. The Gerontologist, 46(4), 524-532.
  40. Huizing, A. R., Hamers, J. P., Gulpers, M. J., & Berger, M. P. (2008). Preventing the use of physical restraints on residents newly admitted to psycho-geriatric nursing home wards: A cluster-randomized trial. Int J Nurs Stud.
  41. Huskamp, H. A., Stevenson, D. G., Keating, N. L., & Newhouse, J. P. Rejections of drug claims for nursing home residents under medicare part D. Health Aff (Millwood), 27(2), 560-567.
  42. Jablonski, R. A., Utz, S. W., Steeves, R., & Gray, D. P. (2007). Decisions about transfer from nursing home to emergency department. Journal of Nursing Scholarship, 39(3), 266-272.
  43. Jervis, L. L., & Manson, S. M. (2007). Cognitive impairment, psychiatric disorders, and problematic behaviors in a tribal nursing home. Journal of Aging and Health, 19(2), 260-274.
  44. Joseph, J., Koka, M., & Aronow, W. S. (2008). Prevalence of use of antiplatelet drugs, beta blockers, statins, and angiotensin-converting enzyme inhibitors or angiotensin receptor blockers in older patients with coronary artery disease in an academic nursing home. J Am Med Dir Assoc, 9(2), 124-127.
  45. Kane, R. A. (2008). Providing structured opportunities for nursing home residents to choose community care. Journal of the American Geriatrics Society, 56(1), 163-165.
  46. Kaup, B. A., Loreck, D., Gruber-Baldini, A. L., German, P., Menon, A. S., Zimmerman, S., et al. (2007). Depression and its relationship to function and medical status, by dementia status, in nursing home admissions. American Journal of Geriatric Psychiatry, 15(5), 438-442.
  47. Kim, H., & Whall, A. L. (2006). Factors Associated with Psychotropic Drug Usage Among Nursing Home Residents with Dementia. Nursing Research, 55(4), 252-258.
  48. Kolanowski, A., Hoffman, L., & Hofer, S. M. (2007). Concordance of self-report and informant assessment of emotional well-being in nursing home residents with dementia. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 62(1), P20-P27.
  49. Kuske, B., Hanns, S., Luck, T., Angermeyer, M. C., Behrens, J., & Riedel-Heller, S. G. (2007). Nursing home staff training in dementia care: A systematic review of evaluated programs. International Psychogeriatrics, 19(5), 818-841.
  50. Lacey, D. (2006). End-of-Life Decision Making for Nursing Home Residents with Dementia: A Survey of Nursing Home Social Services Staff. Health & Social Work, 31(3), 189-199.
  51. Lachs, M., Bachman, R., Williams, C. S., Kossack, A., Bove, C., & O'Leary, J. R. (2006). Violent Crime Victimization Increases the Risk of Nursing Home Placement in Older Adults. The Gerontologist, 46(5), 583-589.
  52. Ladwig, S., Fee, E., & Brown, T. M. (2006). Contrary to Stereotypes, a Nursing Home Resident Radiates Dignity and Joy. American Journal of Public Health, 96(7), 1163.
  53. Leong, I. Y.-O., & Nuo, T. H. (2007). Prevalence of Pain in Nursing Home Residents with Different Cognitive and Communicative Abilities. Clinical Journal of Pain, 23(2), 119-127.
  54. Lester, P. E., & Kohen, I. (2008). Smoking in the nursing home: a case report and literature review. J Am Med Dir Assoc, 9(3), 201-203.
  55. Liebson, C. L., Petterson, T. M., Bailey, K. R., Melton, L. J., & Heit, J. A. (2008). Risk factors for venous thromboembolism in nursing home residents. Mayo Clin Proc, 83(2), 151-157.
  56. Marengoni, A., Agero-Torres, H., Timpini, A., Cossi, S., & Fratiglioni, L. (2008). Rehabilitation and nursing home admission after hospitalization in acute geriatric patients. J Am Med Dir Assoc, 9(4), 265-270.
  57. McAuley, W. J., Buchanan, R. J., Travis, S. S., Wang, S., & Kim, M. (2006). Recent Trends in Advance Directives at Nursing Home Admission and One Year After Admission. The Gerontologist, 46(3), 377-381.
  58. Meeks, S., Teri, L., Van Haitsma, K., & Looney, S. (2006). Increasing Pleasant Events in the Nursing Home: Collaborative Behavioral Treatment for Depression. Clinical Case Studies, 5(4), 287-304.
  59. Miller, N., & Weinstein, M. (2007). Participation and knowledge related to a nursing home admission decision among a working age population. Social Science & Medicine, 64(2), 303-313.
  60. Miller, S. C., Papandonatos, G., Fennell, M., & Mor, V. (2006). Facility and county effects on racial differences in nursing home quality indicators. Social Science & Medicine, 63(12), 3046-3059.
  61. Mittal, V., Rosen, J., Govind, R., Degenholtz, H., Shingala, S., Hulland, S., et al. (2007). Perception gap in quality-of-life ratings: An empirical investigation of nursing home residents and caregivers. The Gerontologist, 47(2), 159-168.
  62. Mjelde-Mossey, L. A. (2007). Alcoholism treatment in a nursing home: Meeting the needs of a special population. Alcoholism Treatment Quarterly, 25(3), 87-98.
  63. Moore, K., Delaney, J. A., & Dixon, M. R. (2007). Using indices of happiness to examine the influence of environmental enhancements for nursing home residents with Alzheimer's disease. Journal of Applied Behavior Analysis, 40(3), 541-544.
  64. Morley, J. E. (2008). Managing persons with dementia in the nursing home: high touch trumps high tech. J Am Med Dir Assoc, 9(3), 139-146.
  65. Mukamel, D. B., Spector, W. D., Zinn, J. S., Huang, L., Weimer, D. L., & Dozier, A. (2007). Nursing homes' response to the nursing home compare report card. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 62(4), S218-S225.
  66. Oh, J. (2006). Stroke patients' experiences of sharing rooms with dementia patients in a nursing home. International Journal of Nursing Studies, 43(7), 839-849.
  67. Ott, B. B. Views of African American Nursing Home residents about living wills. Geriatr Nurs, 29(2), 117-124.
  68. Phillips, C. D., Kimbell, A.-M., Hawes, C., Wells, J., Badalamenti, J., & Koren, M. J. (2008). It's a family affair: Consumer advocacy for nursing-home residents in the United States. Ageing & Society, 28(1), 67-84.
  69. Phillips, C. D., Shen, R., Chen, M., & Sherman, M. (2007). Evaluating nursing home performance indicators: An illustration exploring the impact of facilities on ADL change. The Gerontologist, 47(5), 683-689.
  70. Port, C. L. (2006). Informal Caregiver Involvement and Illness Detection Among Cognitively Impaired Nursing Home Residents. Journals of Gerontology: Series A: Biological Sciences and Medical Sciences, 61(9), 970-974.
  71. Powers, B. A., & Watson, N. M. (2008). Meaning and Practice of Palliative Care for Nursing Home Residents With Dementia at End of Life. Am J Alzheimers Dis Other Demen.
  72. Przybelski, R., Agrawal, S., Krueger, D., Engelke, J. A., Walbrun, F., & Binkley, N. (2008). Rapid correction of low vitamin D status in nursing home residents. Osteoporos Int.
  73. Putman, L., & Wang, J.-T. (2007). The closing group: Therapeutic recreation for nursing home residents with dementia and accompanying agitation and/or anxiety. American Journal of Alzheimer's Disease and Other Dementias, 22(3), 167-175.
  74. Rahman, A. N., & Schnelle, J. F. (2008). The nursing home culture-change movement: recent past, present, and future directions for research. Gerontologist, 48(2), 142-148.
  75. Reynolds, K. S., Hanson, L. C., DeVellis, R. F., Henderson, M., & Steinhauser, K. E. (2008). Disparities in pain management between cognitively intact and cognitively impaired nursing home residents. J Pain Symptom Manage, 35(4), 388-396.
  76. Reynolds, K. S., Hanson, L. C., Henderson, M., & Steinhauser, K. E. (2008). End-of-life care in nursing home settings: do race or age matter? Palliat Support Care, 6(1), 21-27.
  77. Rolland, Y., Pillard, F., Klapouszczak, A., Reynish, E., Thomas, D., Andrieu, S., et al. (2007). Exercise Program for Nursing Home Residents with Alzheimer's Disease: A 1-Year Randomized, Controlled Trial. Journal of the American Geriatrics Society, 55(2), 158-165.
  78. Roscoe, L. A., & Hyer, K. (2008). Quality of life at the end of life for nursing home residents: Perceptions of hospice and nursing home staff members. Journal of Pain and Symptom Management, 35(1), 1-9.
  79. Rozzini, R., & Trabucchi, M. (2008). Managing persons with dementia in the nursing home. J Am Med Dir Assoc, 9(5), 368; author reply 368.
  80. Rurup, M. L., Onwuteaka-Philipsen, B. D., Pasman, H. R. W., Ribbe, M. W., & van der Wal, G. (2006). Attitudes of physicians, nurses and relatives towards end-of-life decisions concerning nursing home patients with dementia. Patient Education and Counseling, 61(3), 372-380.
  81. Ruths, S., Straand, J., Nygaard, H. A., & Aarsland, D. (2008). Stopping antipsychotic drug therapy in demented nursing home patients: a randomized, placebo-controlled study--The Bergen District Nursing Home Study (BEDNURS). Int J Geriatr Psychiatry.
  82. Schonfeld, L., King-Kallimanis, B., Brown, L. M., Davis, D. M., Kearns, W. D., Molinari, V. A., et al. (2007). Wanderers with cognitive impairment in Department of Veterans Affairs nursing home care units. Journal of the American Geriatrics Society, 55(5), 692-699.
  83. Schwartz, K. (2007). Remembering the forgotten: Psychotherapy groups for the nursing home resident. International Journal of Group Psychotherapy, 57(4), 497-514.
  84. Scott-Cawiezell, J., Pepper, G. A., Madsen, R. W., Petroski, G., Vogelsmeier, A., & Zellmer, D. (2007). Nursing Home Error and Level of Staff Credentials. Clinical Nursing Research, 16(1), 72-78.
  85. Simmons, S. F., & Patel, A. V. (2006). Nursing Home Staff Delivery of Oral Liquid Nutritional Supplements to Residents at Risk for Unintentional Weight Loss. Journal of the American Geriatrics Society, 54(9), 1372-1376.
  86. Simpson, K. M., Richards, K. C., Enderlin, C. A., O'Sullivan, P. S., & Koehn, M. (2006). Medications and Sleep in Nursing Home Residents With Dementia. Journal of the American Psychiatric Nurses Association, 12(5), 279-285.
  87. Sloane, P. D., Miller, L. L., Mitchell, C. M., Rader, J., Swafford, K., & Hiatt, S. O. (2007). Provision of morning care to nursing home residents with dementia: Opportunity for improvement? American Journal of Alzheimer's Disease and Other Dementias, 22(5), 369-377.
  88. Stathi, A., & Simey, P. (2007). Quality of life in the fourth age: Exercise experiences of nursing home residents. Journal of Aging and Physical Activity, 15(3), 272-286.
  89. Sterke, C. S., Verhagen, A. P., van Beeck, E. F., & van der Cammen, T. J. (2008). The influence of drug use on fall incidents among nursing home residents: a systematic review. Int Psychogeriatr, 1-21.
  90. Stevenson, D. G. (2006). Nursing Home Consumer Complaints and Quality of Care: A National View. Medical Care Research and Review, 63(3), 347-368.
  91. Streim, J. E., Katz, I. R., Blazer, D. G., Steffens, D. C., & Busse, E. W. (2007). Clinical psychiatry in the nursing home. In Essentials of geriatric psychiatry. (pp. 375-402): American Psychiatric Publishing.
  92. Trotta, R. L. (2007). Quality of death: A dimensional analysis of palliative care in the nursing home. Journal of Palliative Medicine, 10(5), 1116-1127.
  93. Troyer, J. L., & McAuley, W. J. (2006). Environmental Contexts of Ultimate Decisions: Why White Nursing Home Residents Are Twice as Likely as African American Residents to Have an Advance Directive. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 61(4), S194-S202.
  94. Tsan, L., Davis, C., Langberg, R., Hojlo, C., Pierce, J., Miller, M., et al. (2008). Prevalence of nursing home-associated infections in the Department of Veterans Affairs nursing home care units. Am J Infect Control, 36(3), 173-179.
  95. Tse, M. M. Y. (2007). Nursing home placement: Perspectives of community-dwelling older persons. Journal of Clinical Nursing, 16(5), 911-917.
  96. Tse, W., Libow, L. S., Neufeld, R., Lesser, G., Frank, J., Dolan, S., et al. (2008). Prevalence of movement disorders in an elderly nursing home population. Archives of Gerontology and Geriatrics, 46(3), 359-366.
  97. Tuya, A., & Teno, J. (2008). Feeding tubes for nursing home residents with advanced dementia: how to approach feeding tube decisions. Med Health R I, 91(1), 33-34.
  98. Washburn, A. M., & Sands, L. P. (2006). Social cognition in nursing home residents with and without cognitive impairment. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 61(3), P174-P179.
  99. Watt, A., & Konnert, C. (2007). Quality of life in the nursing home: perspectives of younger and older residents. Can J Aging, 26(4), 403-410.
  100. Weinick, R. M., Wilcox, S. R., Park, E. R., Griffey, R. T., & Weissman, J. S. (2008). Use of Advance Directives for Nursing Home Residents in the Emergency Department. Am J Hosp Palliat Care.
  101. Williams, C. L., & Tappen, R. M. (2007). Effect of exercise on mood in nursing home residents with Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementias, 22(5), 389-397.
  102. Wilson, R. S., McCann, J. J., Li, Y., Aggarwal, N. T., Gilley, D. W., & Evans, D. A. (2007). Nursing home placement, day care use, and cognitive decline in Alzheimer's disease. American Journal of Psychiatry, 164(6), 910-915.
  103. Zuidema, S., Koopmans, R., & Verhey, F. (2007). Prevalence and Predictors of Neuropsychiatric Symptoms in Cognitively Impaired Nursing Home Patients. Journal of Geriatric Psychiatry and Neurology, 20(1), 41-49.
  104. Zwakhalen, S. M., Koopmans, R. T., Geels, P. J., Berger, M. P., & Hamers, J. P. (2008). The prevalence of pain in nursing home residents with dementia measured using an observational pain scale. Eur J Pain.
  105. Zwakhalen, S. M. G., Hamers, J. P. H., Peijnenburg, R. H. A., & Berger, M. P. F. (2007). Nursing staff knowledge and beliefs about pain in elderly nursing home residents with dementia. Pain Research & Management, 12(3), 177-184.

End-of-Life Articles & Chapters

  1. April, C., & Parker, M. (2007). End of life decision-making in neonatal care. Journal of Medical Ethics, 33(3), 126-127.
  2. Becker, G., Sarhatlic, R., Olschewski, M., Xander, C., Momm, F., & Blum, H. E. (2007). End-of-life care in hospital: Current practice and potentials for improvement. Journal of Pain and Symptom Management, 33(6), 711-719.
  3. Bernal, E. W., Marco, C. A., Parkins, S., Buderer, N., & Thum, S. D. (2007). End-of-life decisions: Family views on advance directives. American Journal of Hospice & Palliative Medicine, 24(4), 300-307.
  4. Berzoff, J. (2008). Working at the end of life: Providing clinically based psychosocial care. Clinical Social Work Journal, 36(2), 177-184.
  5. Bickel-Swenson, D. (2007). End-of-Life Training in U.S. Medical Schools: A Systematic Literature Review. Journal of Palliative Medicine, 10(1), 229-235.
  6. Biola, H., Sloane, P. D., Williams, C. S., Daaleman, T. P., Williams, S. W., & Zimmerman, S. (2007). Physician communication with family caregivers of long-term care residents at the end of life. Journal of the American Geriatrics Society, 55(6), 846-856.
  7. Bolmsjo, I. A. (2008). End-of-Life Care for Old People: A Review of the Literature. Am J Hosp Palliat Care.
  8. Boss, R. D. (2008). End-of-life decision-making for infants abandoned in the neonatal intensive care unit. Journal of Palliative Medicine, 11(1), 109-111.
  9. Braun, U. K., Kunik, M. E., & Pham, C. (2008). Treating depression in terminally ill patients can optimize their physical comfort at the end of life and provide them the opportunity to confront and prepare for death. Geriatrics, 63(6), 25-27.
  10. Bryon, E., Gastmans, C., & de Casterl, B. D. (2008). Decision-making about artificial feeding in end-of-life care: literature review. J Adv Nurs.
  11. Burnell, G. M. (2008). Freedom to choose: How to make end-of-life decisions on your own terms: Baywood Publishing Co: Amityville.
  12. Cahana, A., Arigoni, F., & Robert, L. (2007). Attitudes and beliefs regarding the role of interventional pain management at the end-of-life among caregivers: A 4-year perspective. Pain Practice, 7(2), 103-109.
  13. Childress, S. B., & Christensen, A. R. (2007). Improving symptom management at the end of life in the home care environment. Home Health Care Management & Practice, 19(5), 360-363.
  14. Cicirelli, V. G., Tomer, A., Eliason, G. T., & Wong, P. T. P. (2008). End-of-life decisions: Research findings and implications. In Existential and spiritual issues in death attitudes. (pp. 115-138): Lawrence Erlbaum Associates Publishers: Mahwah.
  15. Coggon, J. (2007). Review of Death's dominion--Ethics at the end of life. Journal of Medical Ethics, 33(12), 742.
  16. Cohen, J., van Delden, J., Mortier, F., Norup, M., Cartwright, C., et al. (2008). Influence of physicians' life stances on attitudes to end-of-life decisions and actual end-of-life decision-making in six countries. Journal of Medical Ethics, 34(4), 247-253.
  17. Cohen-Mansfield, J., & Lipson, S. (2008). Which advance directive matters?: An analysis of end-of-life decisions made in nursing homes. Research on Aging, 30(1), 74-92.
  18. Daaleman, T. P., Williams, C. S., Hamilton, V. L., & Zimmerman, S. (2008). Spiritual care at the end of life in long-term care. Medical Care, 46(1), 85-91.
  19. DesHarnais, S., Carter, R. E., Hennessy, W., Kurent, J. E., & Carter, C. (2007). Lack of concordance between physician and patient: Reports on end-of-life care discussions. Journal of Palliative Medicine, 10(3), 728-740.
  20. Devictor, D., Latour, J. M., & Tissires, P. (2008). Forgoing life-sustaining or death-prolonging therapy in the pediatric ICU. Pediatr Clin North Am, 55(3), 791-804.
  21. Dy, S. M., Shugarman, L. R., Lorenz, K. A., Mularski, R. A., & Lynn, J. (2008). A systematic review of satisfaction with care at the end of life. Journal of the American Geriatrics Society, 56(1), 124-129.
  22. Eliott, J. A., & Olver, I. N. (2008). Dying cancer patients talk about euthanasia. Soc Sci Med.
  23. Elvidge, K. (2008). Improving pain & symptom management for advanced cancer patients with a clinical decision support system. Stud Health Technol Inform, 136, 169-174.
  24. Formiga, F., Lpez-Soto, A., Navarro, M., Riera-Mestre, A., Bosch, X., & Pujol, R. (2008). Hospital deaths of people aged 90 and over: end-of-life palliative care management. Gerontology, 54(3), 148-152.
  25. Fridh, I., Forsberg, A., & Bergbom, I. (2007). End-of-life care in intensive care units - Family routines and environmental factors. Scandinavian Journal of Caring Sciences, 21(1), 25-31.
  26. Funnell, N. (2007). Review of Patient-centered ethics and communication at the end of life. International Psychogeriatrics, 19(4), 800-801.
  27. Garrett, D. D., Tuokko, H., Stajduhar, K. I., Lindsay, J., & Buehler, S. (2008). Planning for End-of-Life Care: Findings from the Canadian Study of Health and Aging. Can J Aging, 27(1), 11-21.
  28. Gilbert, R. B., Balk, D., Wogrin, C., Thornton, G., & Meagher, D. (2007). Religion, spirituality, and end-of-life decision making. In Handbook of thanatology: The essential body of knowledge for the study of death, dying, and bereavement. (pp. 65-74): Routledge/Taylor & Francis Group: New York.
  29. Gingerich, B. S. (2007). Quality and competence in end of life/palliative care. Home Health Care Management & Practice, 19(5), 402-403.
  30. Goold, S. D., Williams, B. C., Arnold, R., Singer, P. A., & Viens, A. M. (2008). Conflict in the healthcare setting at the end of life. In The Cambridge textbook of bioethics. (pp. 78-84): Cambridge University Press: New York.
  31. GrÈgoire, M.-C., & Frager, G. (2006). Ensuring pain relief for children at the end of life. Pain Research & Management, 11(3), 163-171.
  32. Groen, K. M. (2007). Pain assessment and management in end of of life care: A survey of assessment and treatment practices of hospice music therapy and nursing professionals. Journal of Music Therapy, 44(2), 90-112.
  33. Hales, S., Zimmermann, C., & Rodin, G. (2008). The quality of dying and death. Arch Intern Med, 168(9), 912-918.
  34. Hallarman, L., & Kearns, C. (2008). The military history as a vehicle for exploring end-of-life care with veterans #152. Journal of Palliative Medicine, 11(1), 104-105.
  35. Hallenbeck, J. (2008). Access to End-of-Life Care Venues. Am J Hosp Palliat Care.
  36. Haller, I. V., & Gessert, C. E. (2007). Utilization of medical services at the end of life in older adults with cognitive impairment: Focus on outliers. Journal of Palliative Medicine, 10(2), 400-407.
  37. Halpin, D. M., Seamark, C. J., & Seamark, D. A. (2008). End-of-life care for patients with COPD in the community setting. Br J Gen Pract, 58(551), 390-392.
  38. Hancock, K., Clayton, J. M., Parker, S. M., Walder, S., Butow, P. N., Carrick, S., et al. (2007). Discrepant perceptions about end-of-life communication: A systematic review. Journal of Pain and Symptom Management, 34(2), 190-200.
  39. Harrington, S. E., & Smith, T. J. (2008). The role of chemotherapy at the end of life: "when is enough, enough?". JAMA, 299(22), 2667-2678.
  40. Heismann, S. (2007). A Catholic view on end-of-life care: Review of Medical care at the end of life: A Catholic perspective. Ethics & Behavior, 17(4), 403-406.
  41. Hermann, C. P. (2007). The degree to which spiritual needs of patients near the end of life are met. Oncology Nursing Forum, 34(1), 70-78.
  42. Hooke, M. C., Grund, E., Quammen, H., Miller, B., McCormick, P., & Bostrom, B. (2007). Propofol Use in Pediatric Patients With Severe Cancer Pain at the End of Life. Journal of Pediatric Oncology Nursing, 24(1), 29-34.
  43. Husain, A. F., Stewart, K., Arseneault, R., Moineddin, R., Cellarius, V., Librach, S. L., et al. (2007). Women experience higher levels of fatigue than men at the end of life: A longitudinal home palliative care study. Journal of Pain and Symptom Management, 33(4), 389-397.
  44. Ingalls, L. (2007). Bring your love: Therapeutic and effective end-of-life discussions. Home Health Care Management & Practice, 19(5), 369-381.
  45. Jakobsson, E., Bergh, I., ÷hlÈn, J., OdÈn, A., & Gaston-Johansson, F. (2007). Utilization of health-care services at the end-of-life. Health Policy, 82(3), 276-287.
  46. Kees, N. L., Aberle, J. T., Fruhauf, C. A., Linville, D., & Hertlein, K. M. (2007). Aging parents and end-of-life decisions: Helping families negotiate difficult conversations. In The therapist's notebook for family health care: Homework, handouts, and activities for individuals, couples, and families coping with illness, loss, and disability. (pp. 211-216): Haworth Press: New York.
  47. Klugman, C. M. (2008). Dual roles of the care provider at the end of life: An autoethnography. Illness, Crisis, & Loss, 16(1), 53-63.
  48. Knight, S. J., & Emanuel, L. (2007). Processes of adjustment to end-of-life losses: A reintegration model. Journal of Palliative Medicine, 10(5), 1190-1198.
  49. Kreeger, L. (2008). Continuous deep sedation: Good care at the end of life, not hastening death. BMJ, 336(7653), 1085.
  50. Kressel, L. M., & Chapman, G. B. (2007). The default effect in end-of-life medical treatment preferences. Medical Decision Making, 27(3), 299-310.
  51. Kuehn, B. M. (2008). Guideline for end-of-life care released. JAMA: Journal of the American Medical Association, 299(8), 888.
  52. Lloyd-Williams, M., Kennedy, V., Sixsmith, A., & Sixsmith, J. (2007). The end of life: A qualitative study of the perceptions of people over the age of 80 on issues surrounding death and dying. Journal of Pain and Symptom Management, 34(1), 60-66.
  53. Longden, J. V., & Mayer, A.-P. T. (2007). Family involvement in end-of-life care in a paediatric intensive care unit. Nursing in Critical Care, 12(4), 181-187.
  54. Macdonald, M. E., Liben, S., Carnevale, F. A., & Cohen, S. R. (2008). Signs of life and signs of death: brain death and other mixed messages at the end of life. J Child Health Care, 12(2), 92-105.
  55. McCarron, M., & McCallion, P. (2007). End-of-life care challenges for the persons with intellectual disability and dementia: Making decisions about tube feeding. Intellectual and Developmental Disabilities, 45(2), 128-131.
  56. McCluskey, L. (2007). Amyotrophic Lateral Sclerosis: Ethical issues from diagnosis to end of life. NeuroRehabilitation, 22(6), 463-472.
  57. McLean, L. M., & Jones, J. M. (2007). A review of distress and its management in couples facing end-of-life cancer. Psycho-Oncology, 16(7), 603-616.
  58. McNichols, K. Z., Feldman, D. B., Plante, T. G., & Thoresen, C. E. (2007). Spirituality at the end of life: Issues and guidelines for care. In Spirit, science, and health: How the spiritual mind fuels physical wellness. (pp. 191-203): Praeger Publishers/Greenwood Publishing Group: Westport.
  59. McPherson, C. J., Wilson, K. G., & Murray, M. A. (2007). Feeling like a burden to others: A systematic review focusing on the end of life. Palliative Medicine, 21(2), 115-128.
  60. McPherson, C. J., Wilson, K. G., & Murray, M. A. (2007). Feeling like a burden: Exploring the perspectives of patients at the end of life. Social Science & Medicine, 64(2), 417-427.
  61. McPherson, M. L. (2008). Management of diabetes at end of life. Home Healthc Nurse, 26(5), 276-278.
  62. Moran, J. D. (2008). Families, courts, and the end of life: Schiavo and its implications for the family justice system. Family Court Review, 46(2), 297-330.
  63. Mowery, R. L., Balk, D., Wogrin, C., Thornton, G., & Meagher, D. (2007). The family, larger systems, and end-of-life decision making. In Handbook of thanatology: The essential body of knowledge for the study of death, dying, and bereavement. (pp. 93-101): Routledge/Taylor & Francis Group: New York.
  64. Periyakoil, V. S. (2007). Panic disorder at the end of life #145. Journal of Palliative Medicine, 10(2), 483-484.
  65. Prince-Paul, M. (2008). Relationships among communicative acts, social well-being, and spiritual well-being on the quality of life at the end of life in patients with cancer enrolled in hospice. Journal of Palliative Medicine, 11(1), 20-25.
  66. Prince-Paul, M. (2008). Understanding the meaning of social well-being at the end of life. Oncol Nurs Forum, 35(3), 365-371.
  67. Puchalski, C. M. (2007). Spirituality and the care of patients at the end-of-life: An essential component of care. Omega: Journal of Death and Dying, 56(1), 33-46.
  68. Richardson, S. S., Sullivan, G., Hill, A., & Yu, W. (2007). Use of Aggressive Medical Treatments Near the End of Life: Differences between Patients with and without Dementia. Health Services Research, 42(1, part 1), 183-200.
  69. Rietjens, J. A. C., Bilsen, J., Fischer, S., van der Heide, A., van der Maas, P. J., Miccinessi, G., et al. (2007). Using drugs to end life without an explicit request of the patient. Death Studies, 31(3), 205-221.
  70. Roscoe, L. A., & Hyer, K. (2008). Quality of life at the end of life for nursing home residents: Perceptions of hospice and nursing home staff members. Journal of Pain and Symptom Management, 35(1), 1-9.
  71. Rose, J. H., Radziewicz, R., Bowmans, K. F., & EE, O. T. (2008). A coping and communication support intervention tailored to older patients diagnosed with late-stage cancer. Clin Interv Aging, 3(1), 77-95.
  72. Rosenfeld, B., Jacobson, C. M., & Goldstein, A. M. (2007). Forensic Issues at the End of Life. In Forensic psychology: Emerging topics and expanding roles. (pp. 661-680): John Wiley & Sons Inc: Hoboken.
  73. Salviano, S. (2007). Review of Palliative & end-of-life care--Clinical practice guidelines. Journal of Community Health Nursing, 24(3), 201.
  74. Sanders, C., Rogers, A., Gately, C., & Kennedy, A. (2008). Planning for end of life care within lay-led chronic illness self-management training: The significance of 'death awareness' and biographical context in participant accounts. Social Science & Medicine, 66(4), 982-993.
  75. Sesterhenn, A. M., Folz, B. J., Bieker, M., Teymoortash, A., & Werner, J. A. End-of-life care for terminal head and neck cancer patients. Cancer Nurs, 31(2), E40-46.
  76. Seymour, J. E., Janssens, R., & Broeckaert, B. (2007). Relieving suffering at the end of life: Practitioners' perspectives on palliative sedation from three European countries. Social Science & Medicine, 64(8), 1679-1691.
  77. Shubha, R. (2007). Psychosocial issues in end-of-life care. Journal of Psychosocial Nursing & Mental Health Services, 45(8), 25-29.
  78. Singer, P. A., MacDonald, N., Tulsky, J. A., Singer, P. A., & Viens, A. M. (2008). Quality end of life care. In The Cambridge textbook of bioethics. (pp. 53-57): Cambridge University Press: New York.
  79. Smith-Stoner, M. (2007). End-of-life preferences for atheists. Journal of Palliative Medicine, 10(4), 923-928.
  80. Soltys, F. G., Kunz, J. A., & Soltys, F. G. (2007). Reminiscence, grief, loss, and end of life. In Transformational reminiscence: Life story work. (pp. 197-214): Springer Publishing Co: New York.
  81. Spathis, A., & Booth, S. (2008). End of life care in chronic obstructive pulmonary disease: in search of a good death. Int J Chron Obstruct Pulmon Dis, 3(1), 11-29.
  82. Stanley, K. J., Sawrun, D., & Treantafilos, M. (2008). Ethical issues and clinical expertise at the end of life. Nurs Clin North Am, 43(2), 259-275.
  83. Starr, J. (2008). Association between advance directives and quality of end-of-life care: A national study. Journal of the American Geriatrics Society, 56(1), 168.
  84. Strada, A. (2008). Preserving life at the end of life: Shifting the temporal dimension of hope. Palliat Support Care, 6(2), 187-188.
  85. Strassels, S. A., Blough, D. K., Veenstra, D. L., Hazlet, T. K., & Sullivan, S. D. (2008). Clinical and demographic characteristics help explain variations in pain at the end of life. Journal of Pain and Symptom Management, 35(1), 10-19.
  86. Teno, J. M., Gruneir, A., Schwartz, Z., Nanda, A., & Wetle, T. (2007). Association Between Advance Directives and Quality of End-of-Life Care: A National Study. Journal of the American Geriatrics Society, 55(2), 189-194.
  87. Tucker, K. L., & Steele, F. B. (2007). Patient choice at the end of life: Getting the language right. Journal of Legal Medicine, 28(3), 305-325.
  88. Tuffrey-Wijne, I., Hogg, J., & Curfs, L. (2007). End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: A review of the literature and available resources. Journal of Applied Research in Intellectual Disabilities, 20(4), 331-344.
  89. Tulloch, G., Carmel, S., Morse, C. A., & Torres-Gil, F. M. (2007). Bioethics and end-of-life issues. In Lessons on aging from three nations, Volume II: The art of caring for older adults. (pp. 121-133): Baywood Publishing Co: Amityville.
  90. Walker, A. C., Balk, D., Wogrin, C., Thornton, G., & Meagher, D. (2007). Culture, socialization, and end-of-life decision making. In Handbook of thanatology: The essential body of knowledge for the study of death, dying, and bereavement. (pp. 55-63): Routledge/Taylor & Francis Group: New York.
  91. Walker, A. C., Balk, D., Wogrin, C., Thornton, G., & Meagher, D. (2007). Life span issues and end-of-life decision making. In Handbook of thanatology: The essential body of knowledge for the study of death, dying, and bereavement. (pp. 83-91): Routledge/Taylor & Francis Group: New York.
  92. Wenger, N. S., Davis, J. W., Carmel, S., Morse, C. A., & Torres-Gil, F. M. (2007). Resources, autonomy, and lack of focus on the common good: End-of-life decision making for older patients in the United States. In Lessons on aging from three nations, Volume II: The art of caring for older adults. (pp. 179-188): Baywood Publishing Co: Amityville.
  93. Werth Jr, J. L., Harte, C., Balk, D., Wogrin, C., Thornton, G., & Meagher, D. (2007). Historical and contemporary perspectives on end-of-life decision making. In Handbook of thanatology: The essential body of knowledge for the study of death, dying, and bereavement. (pp. 75-82): Routledge/Taylor & Francis Group: New York.
  94. White, H. K., & Cohen, H. J. (2008). The older cancer patient. Nurs Clin North Am, 43(2), 307-322.
  95. Williams, C., Munson, D., Zupancic, J., & Kirpalani, H. (2008). Supporting bereaved parents: practical steps in providing compassionate perinatal and neonatal end-of-life care - A North American perspective. Semin Fetal Neonatal Med.
  96. Wolfson, J., Morgan, R., Blackburn, J. A., & Dulmus, C. N. (2007). Health decisions and directives about the end of life. In Handbook of gerontology: Evidence-based approaches to theory, practice, and policy. (pp. 519-541): John Wiley & Sons Inc: Hoboken.
  97. Yingling, J., & Keeley, M. (2007). A failure to communicate: Let's get real about improving communication at the end of life. American Journal of Hospice & Palliative Medicine, 24(2), 95-97.
  98. Zikmund-Fisher, B. J., Lacey, H. P., & Fagerlin, A. (2008). The potential impact of decision role and patient age on end-of-life treatment decision making. Journal of Medical Ethics, 34(5), 327-331.
  99. Zucker, A., Balk, D., Wogrin, C., Thornton, G., & Meagher, D. (2007). Ethical and legal issues and end-of-life decision making. In Handbook of thanatology: The essential body of knowledge for the study of death, dying, and bereavement. (pp. 103-112): Routledge/Taylor & Francis Group: New York.

 

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